Central Nervous System and CHRONIC PAIN< FIbro, Myofascial, etc

I too have the CNS version, although it seems to like the organs better these days.  When I first had symptoms of Lupus I had CP, hemipelgia and muscle twitching.  For years I looked for help.  I was diagnosed with borderline lupus at the onset then they switched to depression ( I wasn't depressed but after constantly being told I was and in chronic pain and disability, I eventually became convinced that they must be correct - it was all in my head- It was very surreal then and still is today).  Eventually, one year I had dementia, blood clots, pericarditis and chostrocondritis back to back and neuromuscular heart problems.  Finally, I was rechecked and found to have Lupus.  I know one other person with the CNS version.  Her story is much like mine, except her muscle weakness is more pronounced.  I no longer have chronic pain but I remember the days well.  Hang in there, apparently the disease can change its M.O.  Nerve pain is way up there on the charts.  The only thing comparing for me was my severe flare up of the RA.  Good news; I now have an extremely high tolerance to pain.  There is a bright side to everything I suppose.  Well, I wish you the best on your journey - Kristin