I don't understand

Veronica,

You mentioned rashes before. Have you thought about seeing a dermatologist? Many can look and possibly do a biopsy and tell you what type of rash it is. People with cutaneous Lupus (skin) can present with normal blood test results but the rash biopsies would reveal Lupus. What tests did they specifically do? My ANA is normal most of the time, but one of my ENAs (anti-Ro) is not and my inflamation levels are always high and now my liver enzymes are elevated as well as noticing some heart problems. These all kind of crept up on me. Some docs stop testing after the ANA comes back negative. If you know you don't feel right, push the doctors; only you know your body and what feels normal or not. But if your like me, you walk around for a few years thinking that everyone feels like you do and thinking thats normal and then come to find out that not everyone does in fact feel like you.

Take Care

I know she said that she was going to do one on my liver and kidneys but the woman didn't say anything about those.
Shewas suppose to check for antiimmune but I'm not sure if she did. I'm not giving up cause like you all siad I know my body doesn't feel right.

Veronica

((((((veronica)))))))), I'm sorry about the way the tests turned out. If you don't know if she tested for lupus you should call back ask if they did an ANA. That would be like the first thing they would do. Also tell them to mail you a copy of your tests. It doesn't matter if they are ok or not. At least you will have a copy of everything that has been done. Tests change all the time. Keep on your doctor. Don't give up.
Hang in there
hugs
carol

Veronica,

My doc told me in the beginning to take my temp 3 times a day at the same times (morning, afternoon, evening) for 2 months to get a baseline temperature. That way you know what normal is for you. If you keep a temperature log, then you can take your temperature, record the time and record what activities you were doing within the hour before taking the temp. It really opened my eyes. I found out then that 98.6 temp is not one size fits all. Hope things get better for you. I'll be keeping you in my thoughts.

Veronica,

Also remember that our body temps usually go up after physical activity. I sympathize with you. It is so, so, so frustrating when you feel so miserable and hurt so much yet have no "name" for why you are feeling so poorly. As others have said, many times our bodies are ahead of our labs. Then other times our labs might turn up looking lousy and we feel better than when our labs looked "good". One thing I know for certain is that there is no rhyme nor reason to autoimmune diseases.

In the meantime, take care of yourself. When taking care of your little ones, enjoy them, do what you need to be doing for their care and well-being and nothing else. Don't try to do too much at once. When your work day is done, rest before trying to do anything else. Then if your body can tolerate it, try a little something. If not, simply get ready for the next day. Eat well and sleep as well as you can. Keep us posted.

xoxo emmie

Peacesoul, can lyme disease also cause fevers fro no reason?

Veronica

Veronica, All my labs usually come back normal- when my hands were so swollen they were like claws and all red and hot and my rheumy could feel swelling in the joint tissues my ESR and SED came back NORMAL. My liver tests are the only ones to ever really go nuts and those are okay so long as I am on Imuran. I do occassionally test positive for lupus anticoglutant or anti-cardiolipin antibodies but never really strongly so. Yet the best way to tell how my disease is doing is my joint tissues and cognative function along with occassional checks of my liver panel. Heck I have severe pitting edema but my kidney tests are all normal and my blood pressure is normal again- three or four times a year it goes high but 2-3 weeks on water pills and it is normal again. So blood work is definately not the end all be all. Actually my rheumy said blood work is unreliable heck my hubby had a positive ANA 1:160 then 2 weeks later it was negative the positive was when his hands were swollen and red and warm. The negative was when the swelling was almost gone, the reddness was gone and the warmth was gone. Blood work changes from day to day and hour to hour. I actually had a negative pregnancy test when I was 4 months pregnant once in the ER and I had to make them list to the baby's heart to make them believe I was pregnant. Most blood work is done the same way it has been for at least 40 years just faster and by machines most of the time. Humans would catch things machines miss but they are too slow and expensive so most blood work is run by machines. All the research into blood work is how to make the results come faster and cost less to produce not how to make it more accurate or reliable. Funny huh? Some things machines do better than humans but heck if it is testing for one thing and something else is wrong with the blood it doesn't care you only get the results for that one test. A human would call attention to the other problem as well as giving results for the ordered test. Profit and the almighty dollar have really hurt us in health care especially women and most especially autoimmune patients because no one tries to find better more reliable tests.