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I am *so* tired...

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Lupus
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Posted 9/20/2007 2:15 AM (GMT 0)
...and I guess I just wanted to say that out loud. I seem to have *way* too much to do, which seems like it should be impossible since I'm not working. I volunteer on my local Homeowner Board & am Treasurer & it's time to do the 2008 budget...and the 2006 tax return just came from the auditor and has to be checked... I do web site work on *one* site & I accidentally deleted something I need to re-create... I'm just *so* tired...my head hurts, my back hurts, I'm having a hard time eating right... Had some pre-skin cancer stuff froze/burnt off my face Mon, it's making me tired. Have to keep it moist w/Vaseline which feels nasty & like my whole face is a teenage grease nightmare... Finally got a decent haircut today (I think) but it involved meeting a new person & explaining hair & what I wanted... I think I forgot to take my pills this morning... My neighbor is outside smoking and since it's nice out my window is open & the smoke comes right in... Everything is actually ok compared to how I've felt previously, I just feel like rolling under the bed until someone else comes along and takes care of all this stuff. Sigh.
Posted 9/20/2007 2:16 AM (GMT 0)
PS. I think I forgot to take a shower today.
Posted 9/20/2007 2:23 AM (GMT 0)
Uh oh . . . . better take the time to get some sleep. You'll be more productive if you get some rest. It sounds like you are heading for a flare. I hate it when the "pill thing" happens. I have to count pills into daily dividers. There are four compartments for each day and seven separate pill containers for each week which all snap into one box . . . so I can take out one day's container and set in on the counter to help me keep tract. *sigh* . . . I really feel for you Lynnwood. Be good to yourself and rest. Blessings!
Posted 9/20/2007 2:38 AM (GMT 0)
Yup, I do the pill count thing...I do a month at a time, and was about out when I left last week, so today was the last day, and I didn't want to count....just another thing for tomorrow.... and pickup records from Dr-who-needs-heart-transplant....and check to see what refills he can do before he goes away Friday...and see if my PCP can do a blood panel while I'm finding a new Dr..... the list feels endless right now...... usually better in the morning...a bit better now that I showered....now some food, meds, extra pain med, and sleep..... you elves ARE planning on fixing my life before 11am, right?
Posted 9/20/2007 2:42 AM (GMT 0)
Oh you poor baby!!! It's Doctor Wonderful withdrawal . . . I feel SO bad for you Lynnwood. I was crushed when I lost my rheumy and I sure don't have all the issues that you do . . . I hope you will be able to see a new rheumy faster than me. My appt. was made for 2.5 months out . . . I'm glad I'm feeling better this week. Have you decided who you will be going to see next??? Again . . . SO sorry about your doc. Blessings!
Posted 9/20/2007 3:31 AM (GMT 0)
Lynnwood, this elf is calling in all her favors at the north pole and has been guaranteed that you'll feel a lot better by 11:00 a.m. The guy up north didn't bother to say what day at 11:00 a.m. but recommends that you shower daily so you'll be ready for him. Or maybe it was the fairy godmother. Do they have elves?

Do you know this is the first time I've heard you feel so bad and tired and overwhelmed. You're usually the strong silent type who takes care of all your children here. So I know it's really awful for you.

What you described about being too tired to fill your little pill boxes is so very familiar. I had mine all couunted out for my trip plus another week and now I'm going through one bottle at a time, just hoping I won't miss any of my two handsful of pills. I hope your work deadlines are over and that the extracurricular work you do for your neighborhood assn isn't too hard on you.

Get some rest. You've been going so fast that I'm also worried that your spin yourself into a flare. Take care.

Did you get a cute haircut? That always cheers me up & hope it did you.

(((((hugs)))))

Pat
Posted 9/20/2007 3:10 PM (GMT 0)
(((Lynn)))... Gosh woman, you have been so busy, no wonder your tired. I admire you for being so active in all of your extra activities but I worry about you overdoing it. You are a smart woman though so I trust you will know when its time for a break. Please make sure to get plenty of rest, rest, rest in between all of the chaos. Take care of you, first and foremost.

Take Care
Posted 9/20/2007 3:25 PM (GMT 0)
The deadlines have to do w/the homeowner stuff -- these are the only things I do, besides eating, sleeping, reading, and maybe trying to walk some when I feel ok. I don't do any other work. However, I guess it was time to complain...maybe I don't do that often enough! Thanks for the support
Posted 9/20/2007 5:25 PM (GMT 0)
Budget and taxes!!! ... that is a big job either way, hard enough to do my own, can't imagine trying to figure someone else's out!!!

I'm so glad you are getting it out... vent away woman, its about time!! :-)
Posted 9/20/2007 7:41 PM (GMT 0)
I remembered not to have all my pre-skin cancer spots removed at once (had 6 done on face, about 6 left on body), but I forgot they usually bump prednisone a little for even minor surgeries. Just figured that out about an hour ago -- will bump it a bit for Friday and I'm sure that will help me feel less *tired*. I'm kinda' enjoying having my own little vent topic...it's nice to have someplace to dump this stuff, even if you guys get tired and stop reading it! :)
Posted 9/20/2007 9:59 PM (GMT 0)
Hi Lynnwood,

Sounds like you are doing a bit better. Hope the elves have arrived!

I started reading your post because I knew I could relate to the subject matter. Just got up from a half hour nap, fed the cats and the dog (fed my son earlier on McDonalds food) and now I am going back to do a "volunteer" problem session with calculus students. This after 3 - hour and twenty minute classes today. I want to weep with exhaustion.

Hope the homeowner stuff resolves itself and you can get some rest.

Stay Strong,
Sue
Posted 9/20/2007 11:16 PM (GMT 0)
Hiya Lynn:

Sorry to hear that you're so tired. Yup sounds like your pred needs to be bumped up some. Even for very simple procedures we need that extra boost. I hope by tomorrow you're feeling much better. I know you quite well and for you to mention you're feeling poorly, you must be in really bad shape. Here's some much needed positive vibes and prayers your way. Know I'm here for you if you need me. I'm just a phone call away. You take care and get plenty of rest.

Love,
Barb
Posted 9/21/2007 6:43 AM (GMT 0)
I hope you get enough sleep and remember to up the pred for a lil while. Also feel better soon. I am tired myself, but for a happy reason. I will keep you in my thoughts and prayers.
Posted 9/21/2007 1:56 PM (GMT 0)
Lynnwood, sorry I got to this topic a little late. I really hope the bump in prednisone does the trick for you. Everyone is right that you rarely talk about how you are feeling, so when you say you are feeling bad, we know you have to be feeling pretty miserable. You are so right that it is nice to be able to come here when you feel rotten and know that people will really understand and be there for you. I think the support here is such a blessing, and you certainly deserve to be on the receiving end of it. I hope that once your deadlines are over you can really rest up and de-stress and do absolutely nothing. Take good care of yourself.
Posted 9/21/2007 2:57 PM (GMT 0)
Hi Lynn, It's a good thing you remembered to bump up your prednisone a little. When you do that, how much do you take? I find that sometimes even taking an extra 1mg can help but I imagine that for a procedure you'd need more than that.

Are you feeling any better? I hope you've been able to make a dent in your homeowners' work and in getting the website recreated. Don't you wish that sometimes you didn't have anything at all to do for a few days? I crave times when my calendar is clear and I can take a big breath and relax.

Take care Lynn, and continue having fun with your little vent post. I'll bet you have more stuff to dump if you stop and think about it. :)

Hang in there.

Pat
Posted 9/21/2007 3:46 PM (GMT 0)
Yeah, I feel some better today. My usual pred dose is 10mg, I bumped to 12mg today. Will probably do that thru the weekend (3 days total), then go back to 10. I am having a bit of fun w/my own little vents, thank you all for playing! Last evening I went out to eat. I was supporting my neck w/my hand & arm as I was reading the menu. The waiter asked if my neck hurt. I said my whole body hurt. He suggested a cocktail!!! I've never been a drinker, but did decide to have a light beer despite my meds (only takes 1/2 to get me buzzed even w/out meds). It did help me relax in a different way than meds do. And the waiter got an extra tip.
Posted 9/21/2007 3:50 PM (GMT 0)
LOL . . . glad you enjoyed your dinner last night Lynnwood . . . I hope today's event goes better than the last . . . it sure doesn't take much to through us into trouble. Let us know how things go today when you feel up to it. Blessings!
Posted 9/21/2007 4:25 PM (GMT 0)

Hi Lynwood,

I think the stress of ending a trusted relationship with your Rheumatologist, skin cancer removal and your projects are screaming for you to take it easy. I know the projects are extra things that you do, but you seem to be a person of excellence which means, if you are going to do it then it will be right. It will get done. You still have clarity and a great attitude.

The last few weeks have been terrible. My parents wanted for me to go with them on a very nice long vacation at no cost to me and I was unable to go. Can't imagine a trip down the road. I felt guilty and anxious, but thankfully my mom cancelled the trip and said we will go if and when she sees significant improvement.

Last night, I made a mistake with my seven day tray and took my AM meds in the very early morning hours. Prednisone, etc. Wide awake until 4:30 until I discovered the mistake. I just could not believe it! I have not left the house, almost quite literally for weeks. I try to excercise, but literally sit and keep thinking I will get moving soon. Just too exhausted. I did the hair thing, but at home, good hair day for no one to see! 

I have two places I need to have checked on my face for skin cancer, looking forward to the greasy face! :-)

You have also just jogged my mind that I need to file my taxes! Thank you. After reading everyones words to encourage you, I agree, get your doctors file, shower once or twice, and then take it easy.

I also was encouraged to see that everyones response had such a thread of similarity, that I don't feel like I am the only one with such unique struggles. I have the big seven day pill trays and can relate to what someone wrote about the last day being the worst becasue you have to start over. Chasing down prescriptions, reload for a few weeks. During that time I usually get irritated thinking about how many and how much money I have swallowed! "Medical PMS" It takes me about five or six hours to get it done!

My mom thinks the challenges of losing such a tremendous doctor and feeling medically orphaned until finding a new one is in part causing my flare. Just can't believe it. I saw my file and made the mistake of looking at it. I still can't believe after all of this time that I have SLE/Sjogrens. Does anyone else go through that?

You are very much appreciated on this forum, I am not on it much but it is evident! Take care of yourself. Yes, getting your hair done is a nice lift, I hope you like it! Above all else, we are still women.

GAGirl1

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