Like chopped hamburger!

Ok I know this is gonna sound weird but consider the source. My feet have been giving me alot of discomfort lately. Let's say you look straight down at your foot and you seperate the front from the back.  so the heel part feels fine but from the arch forward feels like it's a frozen block of chopped hamburger. That you could literally take a sharp knife and slice it. I'm sure you have all taken a chunk of hamburger out of the freezer and tried to cut it with a knife. That's what my foot feels like. It's a cold feeling thaat goes way beyond freezing cold. I've been in cold weather that almost gave me frost bite. but this feels worse than any frostbite. but the fact is it's not really there it just feels like it's that cold. It feels like it swells but it doesn't really swell. Does that make any sense? I'm probably not explaining it right. but thanks for reading it anyway

love

carol

LOL sorry ginny, it must be the liquid diet I'm on with all the frozen popcycles. . It actually just started about the time I started getting sick a couple of weeks ago. I was told i might have CREST at one point. I know the R in crest stands for raynauds but nothing was ever determined. It's just weird because half of my foot will feel fine and the other half will no just be freezzing cold but more like frozen solid almost to the point where it doesn't have any feeling anymore. Than out of no where I notice it feels normal again. LMBO yeah like I even know what "normal " means. I suddenly have this vision of a bird belly up at the bottom of a bird cage!

love ya carol

LOL, Carol, at least you can laugh at all this.  You have a wonderful humour that is totally infectious!  Just as long as that bird isn't belly up with frozen feet......

 

Yeah, your description of them getting super cold and then going "normal" is exactly what Raynaud's will do. I get that with my hands.  I'll be ice cold and stiff, and then super hot to the point that my hands and fingers are swollen, red and throbbing from the heat.  Raynauds is really weird.  So if your doctors mentioned CREST to you in the past, it's pretty likely that is what it is. 

 

When is your next doctor's appointment with your rheumy?  I'd bring it up for sure. "Normal" for us is a brief moment in time when we say to ourselves, "That's weird? I don't feel any pain.  No discomfort.  How odd?"  Is that sad or what! LOL!

 

Hope your evening is going as well as it can!  Love and hugs to you and pup!!

 

Ginny

 

 

Hey Okie,

I agree with all the others who mentioned raynauds. The first stage is a white-ish or yellow-ish color to the affected area. That's when it feels and looks like it's "dead". Next comes the purple (some call it blue; I am always purple). Following that is when it turns red as the blood returns to the area. The hands, feet, nose and ears are the common areas that can be affected by raynauds. You don't have to have all areas affected to be diagnosed with it.

You can help prevent an attack by staying warm. It's important that the core of your body is warm not just the affected areas. Also stress can bring on an attack (like we don't have that!). Good gloves and warm socks and a hat on your head are what you need to where when you go outside. For me, I wear gloves in the grocery store, when I get things out of my freezer and sometimes have to resort to them or get outside in the heat in the summer. Then the heat makes me feel like cr*p. oh, well, if it isn't one thing, it's another. Once an attack is underway, putting the affected area in warm--not hot--water helps. Not sure how to put ears or nose in the water!

Also, CREST is now part of what is limited scleroderma (that's what I have). I have the REST part of it along with other stuff that is part of limited. Try to find out if that is what you have...good treatment is important.

xoxo emmie