What do you think of this dose of Doxy?

Hi all,

My mom just had her first visit with an LLMD (Dr. L in MI). He put her on Doxy 100 mg 3 times/day. What do you think of this dose and are there any special things we should know about doxy? I know it causes sunburn and should be taken with food.

My mom tested positive for lyme and showed hemobart/mycoplasma on Fry blood smear. She has stomach issues and insomnia so we suspect bartonella.

Thanks for your input.

tickbattler

Hi Ticker

I was wondering if you could point me in the direction on where to find maybe a chart or something listing abx and their usual dosages to treat Lyme or Bart or other co-infections. I just started abx for Lyme 3 weeks ago and I just am curious to see where I fit. I do trust my Lyme doc, but I like to be as informed as possible.

Thanks Minx

Hi Minx.  Dr. Burrascano list recommended antibiotics and dosages starting on page 17 of his treatment guidelines at http://www.ilads.org/burrascano_0905.html  These treatment guidelines are packed with information including diet, exercise, and supplement recommendations.  I think it is important to learn as much as possible.  Knowledge is power.

What meds are you taking?  How are you doing on them?

Ticker--

Yes knowledge is power! I have read Dr. Burrascano's guidelines and I know my doc follows them. I am on Biaxin 500mg. 2X, Amoxicillin 500 2, 2X and Plaquenil. I am doing pretty well on these. The Biaxin gave me bumps all over most of my face and sides of neck but it is slowly going away. I have a dry throat and loss of taste but nothing too bad. I just didn't know if most LLMD's used these guidelines or not because it seems like others are on such different drugs and such different strengths--it gets confusing. Maybe that is where co-infections come in. My doc goes after Lyme first. The very good news is my worst symptom--interstitial cystitis is showing some slight improvement--which is a huge improvement in my quality of life. I am new to this and learning so much-- thanks to this site and the great people here. Thank you for sharing your knowledge.

Minx

Hi Ticker-

When I had all my testing done at Quest, all co-infections came back negative as well as the Lyme. I only had WB done at IGeneX which was CDC positive. Honestly, how can I trust Quest? I don't. I would have to ask my doc about which co-infection tests are different at IGeneX than Quest. I think for now he is thinking I have 2 co-infections based on my symptoms. I do not really remember which ones that he said. I will have to ask him next week and write them down. It may have been Babesia and Mycoplasma. I also tested negative for Bartonella at Fry. Interesting note though--I took Bactrim for a suspected UTI and seemed to have a herxheimer reaction which went away and seemed to come back two days later as an allergic reaction. I don't think you can know for sure sometimes. All my health providers have a different opinion on what happened with that. Anyway, Bactrim does not seem to be on the list for Lyme treatments that I can see. I believe I did herx and I have to question Bartonella. My nurse practitioner believed there is a link between Bart and Interstitial cystitis. She used to think it was Lyme (and maybe still does), but I think she had a difficult time getting positive results for Lyme. She is getting many positives for Bart at Fry and is going with that for now.

Minx

doxy alone will only put Lyme into a dormant cyst form. Flagyl or Tindamax
or a cyst busting herb like GSE should be added.

JA,

GSE is Grapefruit Seed Extract. Check it out.

Yes, 2 month sx free is a good start to wean off abx.

I was at 90% for a good stretch, and stopped my last abx in April. But I stayed on all of my herbals and supplements.

Babs and/or Bart skin issues and other sx returned in 8 weeks so I added cryptolepsis back in with GSE, Cats Claw, and Silver Hydrosol. I just started Cipro last weekend, and may add mino in a few weeks if that doesn't help. If I get back to 90% again I plan to stay on a maintenance abx forever.

JA,

I don't think GSE is even close to being as effective as Tini. It's more for someone who can't tolerate abx, and GSE has other benefits like also being anti-fungal and anti-viral.

as far as the doxy dose, i haven't seen it higher than 400mg - you have to be careful not to take too high of a dose, as it can result in side effects (i ended up with peripheral neuropathy at the 400mg dose and also couldn't handle even driving my car because of the sunburn issue. it was AWEFUL

as for GSE - it is not as "strong" as Tindimax, but on the bright side it does not carry the cancer risk like Tindimax and flagyl. I didn't take any cystbusters. I tried GSE but I couldn't handle it - it was too toxic. There were reports that many GSE products are contaminated and have estrogenic properties. Surely wasn't for me. Be very careful before you jump into taking that stuff. If you do a search on this site, there was a HUGE thread on it last year!

Hi Traveler!! I came on here planning to write an update yesterday, but I got wrapped up in responding to threads instead, LOL

I just posted an update now, hope you have the time to read it!!