Anyone privously been diagnosed with ALS/MND?

Yes, my husband was diagnosed with ALS and later tested for Lyme and diagnosed by LLMD. He just started IV Rocephin 4 days ago and we are seeing slight improvement.Have you been tested for Lyme? When did you get ALS dx?

Yes, we had many problems with getting a correct diagnosis, ten doctors and other diagnosis. The doctor that diagnosed ALS will still not admit a mistake was made. Many of us have the same problem getting diagnosed.And getting our meds covered by insurance as there is such controversy connected with Lyme.Good luck. What symptoms does your brother have?My husband had muscle twitching, and weakness in his right hand, neck stiffness. Bev

We live in a suburb of Cleveland Ohio. We have only one LLMD in Ohio and he is very new at working with Lyme disease. Most people that I talk to travel to Pennsylvania. NY and Ct. to an LLMD. It makes it difficult. My Father and his family were all born in Armadale Scotland, nice to hear from someone in Ireland. My home e-mail address is [email protected] if you would like to communicate with me. From what I understand both Lyme and ALS are diagnosed clinically. There are no definitive tests. My husbands WB was a 41 ++ and the two Lyme related bands were IND. I have also talked to another lady on this site who was previously diagnosed with ALS from Florida and she is making progress. I have some info on the connection between the two that I can send you if you like. Take care, Bev

geee i am learning more about this stuff everyday-masonmom would you mind sending me the info on the link between lyme and ALS? how is one supposed to know what they really have?? so far none of my tests show anything but i'm still waiting on my lyme results, thyroid and cd57. what are symptoms of lyme that someone with ALS wouldn't have? Thanks!