Memory loss......

Oh absolutely. I think it is a common symptom of Lyme. It takes me hours to do something that I woud have accomplished easily before, such as paying bills etc and things that require organization. Grocery shopping is a a real chore, when before I could have done it in my sleep! Did it not improve at all for you with treatment?? D

The lymers I have met all complain about this problem. I think it is common----even in young people. With successful treatment, it can get better. We have not yet enjoyed this success, but we look forward to it. I agree with all your comments. I write notes/lists to myself all the time, to help with managing this. Best wishes. bablymers mom

WW: That made me chuckle, if I didnt have my sense of humor, who knows where I would be right now! Its SO important, we must laugh at least once a day!

I work from home and my desk is covered in post it notes! I should buy stock in the company. I will send my husband to do list, and set myself appointment reminders - reminders to take my meds through outlook- write the kids notes on post it and stick it to their doors so I don't forget to tell them and talk to them about it later - and this after years of treatment. What was I like before?!?! While I do feel better now to an extent, I still feel I will never be as "quick" as I once was and still find myself some days struggling to juggle the chaos in my brain.

Blessings,
Leah

Contessa: May I ask about your spinal tap. I read somewhere that only 5% of Lyme will show up in a spinal tap. What a "regular" neurologist know to look for Lyme, and what shows up in the spinal fluid, bacteria? Thanks D

Dowa - really? Only 5% of Lyme shows up in a spinal tap? Is that because of strain or the person?
I was already diagnosed with Lyme for over a year and was off of my Doxy because we felt we had gone as far as we could with it. The neurologist I see, works in conjunction with my internist (the man who found the Lyme) and since he had already found neuropothy in my left foot and lower leg and slight neuropothies in both my hands and we had already done a brain SPECT and found profusion in my prefrontal cortex and my ANA was still positive - they both agreed a spinal tap was in order. Now, I'm not sure exactly what you are asking...

I can tell you the spinal tap, itself, was just scary, but no real pain - it was the 7+ days of headaches which really sucked! And, we did it in a hospital and I did everything I was supposed to do to prevent a headache...oh well. But - i'm going to google what you wrote about the 5% now...please feel free to ask whatever...

Good Luck and be well!

anoyed,
the memory loss issue is very scary. and being absent minded. one friend on here left her car running while at the mall. keys and all....in florida. I keep introducing myself to the same people every day at my daughters school. I was getting annoyed that people kept saying "we've met". I was also getting annoyed that my kids started every sentence to me with "remember".
My maid would follow me around the house. My keys never to be found, my glasses, my water, could never find anything. 6 trips to the car later..I am off. Now where was I headed? Then off in the car, uh, what was I going to do? And then oh yeah, the cleaners, and now where is it. Getting lost in my neighborhood, once only 2 blocks from home. That time I did not get scared. Walking out of the grocery store all proud of myself for pulling that off, dressed with matching clothes and clean hair...lol, only to stand in the front and stare at the cars....could not for the life of me remember what I drove. Looked right at my black mercedes and thought, what is the deal with a 430 anyways, and man they are dumb for having a black, and dirty car in the tropics...while having conversation about the stupid person with the black mercedes in my head...
The young man who bags the bags pointed at my car....uh......oh...yeah...thanks....I laughed and went that way. But checking in the back for my kids car seat first. Oh yes. My dirty car. Never liked it much anyways.
Weeks before I came out to scottsdale for my therapy here. I was driving and all of a sudden I freaked. I had no idea where I was and I was scared out of my mind to be driving. I grabbed my phone. And called my x and told him. I felt like pulling over. But was to scared to on the HWY. I could not think clearly. I felt like a 105 old lady in a Porshe. Freaked out. I got home and that was when I decided to have my kids picked up by their dad that day.
I guess it is a blessing of sorts that with the demensha that one gets a wacky sense of humor. I thought everything was funny.

lose everything. including memory. etc.

Can B12 help?

I see the previous posts older, thankful to read these

so me.... wow.

I did forget where my calendar was

paper, pens in every room, purse, so I cna write it down

the phone helps to saving in notes

I dont know how I made it this far, but memory is really bad

scary

Hope2B -
Note taking is a really good way to deal with the poor memory! I used to have notes all over my house reminding me to take

this set of pills at this time, to do things like brush my teeth, or to go to the store, or anything else you can think of!! I used to

think I needed to buy stock in "Post a notes" because I used so very many of them each week!

I couldn't figure out how to take notes on my phone back then - and I lost track of my phone every day anyway!! LOL!

Hang in there! You're in treatment now and things should improve before much longer!