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Posted 1/13/2009 12:49 AM (GMT 0)
Has anbody any experience with this. In Ken Singleton'w THE LYME SOLUTION he mentions that this can help many, though not all, Lyme sufferers.

Can anybody shed light on this?

Thanks,
CherylSue
Posted 1/13/2009 1:34 AM (GMT 0)
I've been on LDN for almost three years...I can't say it has done a whole lot - I still continue to get worse...but I don't even want to know how bad I'd be without it. I WILL say that all of my allergies disappeared 100% after being on the full dose (4.5mg), but they started to fade on lower doses as well.

I think that a lot of my decline has to do with drinking alcohol...I know it lowers our immunity, and LDN is an immune system modulator. So, I'm sort of canceling out the LDN when I drink - at last partially.

If you have any specific questions...I'll keep checking the thread.

Jen
Posted 1/13/2009 2:51 PM (GMT 0)

Hi CherylSue - I too take this and I think it has helped me sleep better. I used to take ambien but wanted to stop taking it and I tried LDN - it seems to work good for sleeping, at least for me.

Lisa

Posted 2/23/2009 12:39 AM (GMT 0)
Hi CherlySue.  From what I understand, LDN can be beneficial for people with autoimmune disorders.  It seems to be very easy to tolerate.  Like many treatments, I think it works for some people and not others.  It may be a good idea to discuss it with your doctor.

 

Posted 2/23/2009 12:56 AM (GMT 0)
Hi all;

I have not read the book mentioned, so could one of you tell me if LDN is low dose Naltrexone? thanks, dorit.
Posted 2/23/2009 1:12 AM (GMT 0)
dorit, yes it is.  You can see the home page for it at http://www.lowdosenaltrexone.org/

 

Posted 2/23/2009 8:21 AM (GMT 0)
WOW - this is all sooooooooo confusing!! Really!!

First: thanks a lot, ticker, for answering!

when I tried to find out what ldn might be I found a site form the german ms association about this substance saying that as ms is an autoimmune disease the effect of ldn which is pumping up the immune system (instead of building it up) is not of advantage for the patients;
sadly the website is only in geman, but the sorce (called "quelle" at end of site) is National MS Society, New York, Clinical Programs Department - if somebody wants do dig for further information about their point of view.
(http://www.dmsg.de/multiple-sklerose-news/index.php?kategorie=therapien&cnr=13&anr=861); they say that there are / or here are no independent clinical studies.

I really do not know what so think. Its confusing!

I see a naturopath and homeopath for immunesystem questions and have been told to be very carfully to build up but not boost up
(= "dope") my immune system; the first will make my immune system stronger by giving it what it needs to build up capacity and therefore make it work with increased power; the second "forces" the immune system to fight more than it normally could and "burn out" itself which makes it weaker in the end;

Wish we all would just wake up one day being well again! dorit
Posted 2/23/2009 2:32 PM (GMT 0)
bearsfan,

Does your LLMD prescribe the LDN? I would also like to get off ambien and my LLMD is a rheumatologist so I could ask her what her opinion is; but I would also like to hear a little more from you on the subject.

Anybody else have experience with the drug?

Thanks for any input.
bcaring
Posted 2/24/2009 12:38 PM (GMT 0)

bcaring - I took an info sheet to my LLMD and after reading it he wrote a script. I know it is supposed to boost the immune system, but I'm not sure if it is helping. My LLMD believes in high doses of vitamin c for immune support. When I don't take enough c, I can really feel it. My glands are swollen and I'm run down. I take the powder - I am up to 28,000 mg each day.

Lisa

Posted 7/14/2009 12:16 AM (GMT 0)
Hi,

Just wrote this in another thread.... started LDN today (2mg).  Bearsfan, what time do you take it for it to help your sleep?  Ticker mentioned that it disrupted her sleep (at least in the beginning).

 

My LLPA left me a message that LDN could be my answer to nighttime partching. But he doesn't know I already found an answer (big time high dose fatty acids and MCT's).  Eating fats, supplementing fats constantly.  Crazy, thought I was to stay away from fats.

 

Anyway, it would still be nice to sleep better!  You were able to stop Ambien?

Thanks so much for the info!

Tracy

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