Lyme Disease or Vitamin D Deficiency Causing My Symptoms?

Hi All,

I have been on Ceftin 500/MG 2xday for the past 4 weeks. I've also been taking 1000IU of Vitamin D3. Been feeling a lot better but I slacked off taking my Vitamin D3 pills for the past 4 to 5 days. Last night I woke up with the back of my neck sweating and the back of the head pressure pain again. When I woke up this morning, I was feeling really run down and tired like low blood sugar. I had these symptoms before and automatically thought they were Lyme related since they went away when I was on antibiotics and D3 back in Oct. 08. I never questioned if this could be a connection to the Vitamin D deficiency but I'm wondering.

Anyone else have symptoms related to low Vitamin D while fighting Lyme? How long should I keep staking D3 supplements or is this supposed to be a permanent thing for me since I'm deficient.

   

I saw you are doing Benicar and Mino, I am wondering how much Benicar are you taking? My pressure went too low on 20mg of Benicar

Also, Virginialady, I wouldn't think missing 4 or 5 days of the D would be felt that quickly. But I could be wrong.

That 50,000 dose was probably D2, which must be converted in the body to D3 before it can be used. Some people cannot convert this or convert enough of it to make a difference. So it is better to take the D3 form. And we've had 2 endocrinologists tell us that the body uses 4-6000IU of Vitamin D daily, so unless you're sunbathing in the middle of the summer or eating a ton of oily fish, supplements are a necessity.

Vitamin D enhances the ability of macrophages (part of the immune system) to kill pathogenic organisms - this is a good thing for those of us with Lyme & associated infections.

Thanks Razzle, I bet your're right that I was taking D2. I might call the pharmacy to find out if that's what it was..

I'm wondering if you noticed a lessening of your symptoms when you took D3 and how long did it take?

The life cycle of the bacteria is about 4 weeks, hence the herxing after 4 weeks...and usually the first herx is the worst one because the bacterial load is highest.

I'd love to be able to take D3 in larger amounts, but when I take more than 200IU/day, I can't sleep at all for days (I'm thinking Lyme herx, but could be wrong...). When I was taking more D3 (before I figured out the sleep connection), I didn't get as many colds & such and had more energy during the daytime.

Take care,

What is the best way to take Vit D3. if i was taking 5000 iu is better to take it in the morning and all at once or break it up during the day? Thanks,

kitty9309 said...
judy-

I take 20 mg Benicar 2x a day. My BP has not gotten too low. I was surprised and told the doctor I was afraid I wouldn't get to that dose. He said the body generally adjusts to the Benicar. I am sure that is not true for everyone, however.

I have a lot if inflammation in my body- untreated Lyme for over 14 years. My doctor gave me the results to my inflammation markers and they are high.

He feels that the inflammation is what causes symptoms with "Lyme". Benicar helps to reduce that inflammation and allow the antibiotics to penetrate better at lower doses.

TGF B1- 2x upper limit
C4a- elevated
Also, a high ratio of 1,25-D and 25 D---> inflammation
low CD57

He said these will decrease with proper treatment and resoultion of symtoms. I get the TGF B1 measured at the 3 month mark and the CD57 at 6 months. I am nearly 2 months into treatment now. Still dizzy. He said it will take time to lower the inflammation.

Kitty,

Do you know what laboratory did your TGFb1 and C4a? Are you a patient of Shoemaker?

Pat

Fortified Dairy products

Vitamin D isn't really a naturally sourced nutritious within standard milk. Consequently, vitamin D is certainly included. Commercially distributed milk, soya milk and also rice milk included in bottles are normally found to include vitamin D.



Cod liver fish oil

Cod liver oil has additionally been included in the listing of food resources of vitamin D. Aside from simply being a splendid supply of vitamin D, it's also seen to be loaded with different wellness improving nutritional vitamins such as vitamin A along with omega-3 efas.



Egg Yolk

Egg yolk is available in the selection of pure food supplies of vitamin D. Nevertheless, it's not a great option for individuals troubled with high cholesterol levels.



Nevertheless, uncooked fish is but one of the perfect food resources for vitamin D, preparing food appropriately prior to eating it's a good idea to protect yourself from all sorts of parasitic illness. In addition to preparing food over hot temperatures, ensure that you prevent deep frying, preferably go with baked or perhaps barbequed fish for healthy and balanced preparing food.

resource - vitaminddeficiencysymptomsguide.com

There are huge misconceptions here about vitamin D. Sure people with chronic disease have low vitamin D but its the RESULT of disease NOT the cause. Vitamin D in its activated form (calcitriol) activates the vitamin d receptor (VDR) which then facilitates production of antimicrobial peptides that kill intracellular bacteria. These bacteria and some viruses have a defence mechanism of blocking the VDR or reducing the number of receptors. Once the receptor is blocked, additional vitamin D does nothing to activate the VDR. In fact the body will have already raised the level of calcitriol by converting it from calcidiol - which is the type of vitamin D that's measured by assay, to try to activate the receptor by increasing the concentration. Calcidiol falls as a result and measures low. The high levels of calcitriol cross-activate the PXR receptor which then downregulates conversion of pre-vitamin D to calcidiol. So calcidiol remains low.

When you supplement with vitamin D, both calcidiol and calcitriol will rise. Calcidiol is immunosuppressive. Your symptoms are caused by your immune system producing cytokines (chemical messengers). These cytokines will be suppressed by raised levels of calcidiol. You will feel better. But meanwhile the bacteria that have blocked the VDR will be flourishing as your immune system responds less. In the long run you make yourself worse. And for some people with very high levels of calcitriol, supplementing will make them feel worse - not better- as high levels of calcitriol are toxic and forcing calcidiol up will raise calcitriol too.
If you have Lyme you will likely have low levels of calcidiol (what is measured in most vitamin D assays) but HIGH levels of calcitriol. The last thing you need is an more vitamin D.
In fact if you remove all sources of vitamin D from your diet and avoid sunlight, you may well feel better.
You need to read MPKB.org to understand all this.
Regards gus.

Hi edgaroo - welcome to our community.


I'm not sure what you mean when you say "crooked knees". Are they collapsing inwards...or ?

Is this a new symptom for you?


Are you currently in treatment with a LLMD?

Since you are new here, it would be helpful if you looked through the information in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.

edgaroo said...
Hi there its start after taking vitamin d3 i got pain in my knees and yes they go inwards , if done few WB and Elisa for lyme all actuly came negative but there was few proteins nearly to + like from 8 to 15. i can post here it , well LLMD dont wana treat cuz dont see positive tests...i will not write here my symptoms cuz list is to mutch but i need to start from somewere...i dont belive on such candida crap etc i belive i have lyme or parasite sinfection or both...i will make another test with GSE provocation maybe and some maybe beter testes like LTT maybe

Maybe it's your muscles that are weak causing your knees to do that.
Yes, do post your results - either here or start a new thread.
We can help decipher them.
Candida isn't crap - some people do have Candida infection - but you can have both Lyme and Candida.

Lyme can cause some strange symptoms/changes to our bodies.

Muscle weakness is not uncommon.