Hi Everyone! Still in Remission!!!

Sorry I have been away for awhile.  LOTS going on!  Good news is my LD has been in remission since July of last year.  Same with all three of my daughters!!!  Dr C in Tampa is my hero and saved our lives!  I am so happy not to have to make that monthly 7 hour trip.  On a worse note, the cost of all this has been huge.  My husband and I separated last year, our home is in foreclosure, the girls and I have moved, but I have found a wonderful new man.

For those of you that get down and out and feel like absolute CRAP.  Believe me, I have been there.  There ARE better days ahead and attitude is EVERYTHING!  Do what your LLMD tells you, stick with a strict schedule and diet and you will prevail.

I have learned through this long terrible journey what is really important in life, and that is health and family.  The rest is just stuff.

If anyone needs any help or advice, feel free to ask, I have pretty much seen all the abx, pain meds, supplements, diets, etc. while having 4 (including myself) in LD treatment.  I am very happy to say that I am done with it all except for one pain med I take as needed for my back.  Other than that I am a new person and have not felt better in the 20+ years I was infected.  My treatment started August of 07 and was finished in July of 08.  My teenage daughters had picc lines and were treated intermittently during that time.  My 16 year old had the worst case and required 4 picc lines over the course of that time.  Rocephin/Flagyl/Zith worked for my 13 year old and Vanco/Flagyl/Zith was the key for me and my 16 & 18 yr old daughters. 

I hope everyone is well and to everyone still struggling with this horrible disease KEEP FIGHTING!!!

Hi Melody!

Yes. It seems that this illness dictates your life and then you are left picking up the pieces.

I forget, have you done the IV route or are you still on orals? Orals did nothing for any of us. I know everyone is different.

It is so good to hear from you, keep plugging away!

Anne~

Hey Anne -
So glad to hear you are all doing well! You have such a positive attitude -- that health and family are more important than everything else. I'm glad you decided to check in!
Your post reminded me of something I wanted to share: I went to my psychiatrist last week (I see him once every several months for anxiety, more maintenance now than anything else). I've been seeing him for about 8 years, but I hadn't been in about a year. Anyway, I spent a lot of time telling him about my boyfriend, my business that I'm planning, and how I feel like my life is coming together in a lot of ways. At the end of the visit, he said to me, "This has been a noteworthy session: For the first time in many years, you didn't even mention lyme disease!" Yay! Of course I still think about it all the time, but it wasn't dominating my thoughts about my life during that particular hour.
Anyway, thanks for checking in!

Thanks for a positive post...

Most when they are well, never want to see a Web site for posting about Lyme or any other disorder again!!!

So you are so appreciated as that rare person who cares about those of us still suffering!!!

Question...How long have you guys been in remission?

Thank you and God bless! So sorry about the strain it caused on your marriage. Was probably "for the best".

Since you found a new wonderful man my bet is you'll be in remission forever. Ain't love grand?

I am so happy for you and pray your new life continues to give you hope and health. Blessings to you!