Who is at Envita now?

I am in Arizona trying to make a decision. I don't think most here aren't as bad, mentally, as my wife. Just wondering what results you are having as opposed to prognosis.

Thanks,
Claude

I know a bunch that are there. But it is not for me to mention them.

Claude: I agree with you, I read MV post and thought the same thoughts. If they were proud of the success with their treatment, they would not have a problem with spreading the word around. Just my take on it... D

I talked to Marie yesterday. I can start with a less expensive protocol and see if it works. Marie is very informative and has been a lot of help. I drove 2000 miles to get here and I have to try.

Claude

There has been a new discovery that I cant say much about.  The reason Biaxin and Plaquenil are working so much better than other combos is starting to make more sense.  Within the next 3-4 months we will know for sure.  Everyone hang in there and be positive.  If possible...I am not a doctor...but I would try the B & P combo.

Dear Claude,

My heart goes out to you in the decisions that you are needing to make for your wife.
I have read up on your latest posts to catch up...

Follow your heart and your gut instinct. You sound like a very smart man. Your posts are well thought out.

This disease can sometimes put us in a place of feeling desperate to find those answers b/c of the long suffering we see our loved ones going through and quite frankly, b/c of bad behavior that has caused a serious breakdown in the medical community b/c of the politics in moving R&D forward as it should have been. It is wrong that our families are placed in this position. So. please keep asking good questions and only do what you believe is right in your heart to do.

I just wanted to share (hoping that it will be an encouragement to you) - that I will be praying for your strength and for the direction you are to go, to care for your precious wife. I am also going to pray for her health to be restored. She is obviously a very giving and compassionate woman having cared for her mother for so many years. It is a difficult journey we face when the symptoms become so very complicated and life altering.

As you go forward with your quest for the right answer. remember that Lyme mimics and induces other system weaknesses based on many variables within the individual's body. The brain is a complex infrastructure. For some it heals remarkably fast; for some it is a slower steady two steps forward, one back remediation. It all depends on those variables involved for each individual and the areas of the brain involved.

You are right, you have driven a very long way. You deserve the answers to your questions and you need them to meet your satisfaction so that you have peace in your heart that you are doing the right thing. I am encouraging this based on the concerns you shared. I am glad you were able to speak w/Marie.

Feel free to email if you need to talk. Blessings, Sojourner

By the way, Claude, the first vehicle I learned stick shift on at age 16 (way back 'then') was a 1957 Gold Studebaker (I think it was a Packard). I could barely reach the pedals and my dad was the driving instructor in the after school program at our H.S. Imagine how that might have gone down. I was so embarrassed to be driving the most 'old fashioned' car on the lot and had no understanding of classic. The car had belonged to my great, great uncle and dad bought for some change, I believe. I did eventually learn; both to drive it and an appreciation for it.

Post Edited (sojourner) : 2/20/2009 12:22:33 AM (GMT-7)

Claude!
I am so proud of you for sticking it out! I was happy to talk to you. And it was so funny that your wife said in the background, who are you talking
to that talks so much! ha...so I was happy to talk to her also. Remember to tell the people at the clinic to talk to her about her horses, or her babies
as she put it. She needs to think of taking care of them. Since she is a nurturing type. This is the only thing that worked of me. When I was just done with myself
Enivta is trying like everyone else in the world to figure out how to deal with everyones illness. And I only had two infections and most have 3-4.
Everyone is different. And they are still learning. I had one treatment and it worked well for me. But then the other new treatment came out
and I did it too.
I talked to alot of people in Scottsdale and alot of these people had someone sick in their family too. And these people would walk into the
clinic and expect to talk to me while I was getting my 6 hour treatment. Not cool. They do put people together in big rooms. I sat and talked with snake and about 6 others for a hour. Some people like it quiet. And others have their whole family. And about 50% of the people
there are coming out of chemo that did not work and they are dying. So it is a sort of sad deal to get to know some of these people.
I learned alot about cancer. I made some good friends there. My heart is heavy for them. It is a supportive place. Enivta asked me if
they could give out my e-mail to people who had questions about my treatment. I told them no problem. They have a huge board
posted on a wall with all of the success stories there.

Claude, I am so sorry for what you and your wife are going through. It's great that you spoke to Martha's Vineyard. Hang in there and try to trust that the treatments will work, as they did for Marie. Your wife is extremely lucky to have you. I wish you both all the best. Valerie