Sorry - I didn't get that either.
I am interested in knowing how we all manage to keep on keeping on. I do believe that some of the damage is permanent - issues with arthritis and joints for example. All we can do is alleviate the pain. I think it's the same with other attacked areas of the body. Sometimes, an area has not been infested with the bacteria for very long so the body is able to repair that part of itself. I saw one doctor who was willing to prescribe five months of antibiotics in hopes that the pain and burning in my skin would stop. It didn't. Johns Hopkins doctors do not believe in giving long term antibiotics for lyme (even though it was ok for my daughter's acne). Getting 2 mo. of intravenous, rather than just one from them was a major dept. hassle. They are willing to prescribe pain medication, but I don't want to walk down that road.
I keep reading the explanations about the bacteria, how they behave, etc., but there is a major disconnect between the research and treatment. That, along with doctors not wanting patients to know anything about the illness or that the doctors themselves know so little about the disease, are two other major problems in our getting well.
It makes perfect sense to me that bacteria sense and go dormanby by forming inpenetrable cysts when antibiotics are in the body. Treatment stops. Bacteria reactivates. I don't think that most doctors know that they need to prescribe a cyst busting medicine at the same time they give out the antibiotic.
The only thing left for us is to try the alternatives, hoping that they will strengthen the immune and lead to the body doing its own fighting. Supplements can seem to make life a little easier or bearable. There are good days and bad days. If we can discover what makes a day good, then there's hope that we can have another good day.
So that's my two cents (well maybe a quarter.)
Blessings on you all,
Ginnia