Researcher developing new testing for LD willing to test your blood

Here's a link to a story about a doctor developing a new way to test for LD.  I contacted him, and he is willing to test your blood as part of his study.

I just had a member that I sent the info to point out that it does say you will not get the results from the test.  I didn't see the last 3 attachments (one had this info in it).  You would be taking part in the study with no direct benefit to yourself  ie: no diagnosis or test results.

 

Still an interesting story!

http://www.jacksonville.com/lifestyles/health_and_fitness/2009

do a search on UNF professor works to unlock Lyme disease's mysteries

If you are interested let me know and I will send you the information he sent me (I already wrote and ask his permission to pass along his info).

KO

KO: I am interested. Thanks [email protected]   D

1bitten2xshy,  Was he there as a speaker? 

KO

i would like info [email protected]

Depends on cost but I'm interested - [email protected].

KO,

Please send me the info. I would love to participate in the study if I don't have to go to Florida and can just send in blood samples.

Thanks,

As stated, I met him in person and this is what he sent me in an Email:

If your doctor suspects you have Lyme disease, and is willing to collect the sample and send to us for our research testing, we can do that. We have a lot of forms that have to be filled out. This is for research purposes, though, and not for patient diagnosis.

I recommend that people obtain as many different types of Lyme tests as possible in an attempt to clarify a diagnosis. For example, I recommend that patients obtain the following different tests:

(1) Bb by Flow Cytometry—a direct antigen test done by Central Florida Research Lab in Winter Haven. They have a web site for more info.

(2) Western Blot Antibody test—done by several different labs; the results can vary over time, so having this done more than once might be informative

(3) PCR test—a few different clinical labs do PCR, for example IgeneX, Clongen, and maybe a few others

Maybe KO has some different or further info.

Bitten, I am interested in getting my PCP to send a sample. Or am I to understand that 2) means to send the results?? Should we contact this poor man who will soon be buried in blood and questions???

I just tried to send the info to everyone that has requested it so far, please let me know if you didn't receive it and I will try and send it again.

KO

Ko,

Can you send me the info too please. Thanks Hun.

Ko,

I received the email and document attachments - thanks for sending them. I'm curious - do you know if this study is limited to people who live in the South-Eastern US or is it for anyone anywhere in the US/world? I'm asking because one of the documents seems to suggest it is only for residents of the South-Eastern US.

Thanks,

I received the e-mail.  I live in SC but, if I have a TBD, I was exposed in Northern, MI.  I don't see how or why it matters much.  Thanks for sending it KO.

Hi All,

I edited my original post to include that as one member pointed out we will not get any personal benefit from this study ie: no test results or diagnosis. 

 

I did ask if it was only for people in Florida and he said "no, I'm interested in people from all over the country!" 

 

It's too bad that we can't get results, I would love to have that just for piece of mind.

 

KO