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Posted 6/4/2009 11:53 PM (GMT 0)
Just wondering if anyone ever has problems speaking. The other night I was trying to make dinner.I looked in the fridge for 5 min. and could not remember what I was doing. My boyfriend finally asked me what I was looking for and when I remembered I tried to talk. and nothing would come out. I finally got out some of it but it sounded all wierd and like I was sluring. So I just gave up.
Posted 6/5/2009 12:01 AM (GMT 0)
I have a major problem remembering things. When I go to get something, I forget and have to retrace my tracks to remember. Sometimes, I still don't remember. This happens all the time to me. Many times I've opened the refrigerator and cannot remember what I was looking for.

As for speech problems...I don't have the slurring but I've tried to say a word and another word will come out. Or, if I'm thinking of two words at once, both words with come out mashed together somehow. It doesn't even make sense.
Posted 6/5/2009 12:06 AM (GMT 0)
I forget everything. It seems to be getting worse. The speech thing was kind of new. It has happened before but not as bad as the other night. I just locked myself in my room and cried.
Posted 6/5/2009 12:42 AM (GMT 0)
Awww I'm so sorry. I know exactly how that feels. Sometimes, all I can do is just cry.

Are you on treatment now?
Posted 6/5/2009 12:48 AM (GMT 0)
Yes I was treated 10 years ago. Now I have been back on treatment for the past year. I have mostly just been on 1500mg of tetracycline. I tried 1500mg of Keflex( never heard of it) but it did not help. so I am back on tetracycline. I know I need more meds but its hard to afford some. I have no health insurance.
Posted 6/5/2009 12:57 AM (GMT 0)
Neurological symptoms are terrible. I had a bad herx on amoxicillian 1500mg and couldn't remember what my husbands name was. I just sat up in bed and stared at him. It was weird and scared me really bad.

The girls here are great and know a whole lot about this disease. Keep coming back because I'm sure someone else will post to you.

Did you get tested for co-infections?
Posted 6/5/2009 1:02 AM (GMT 0)
No I have not been but pretty sure I have bart also. I have heard that Tetracycline does not treat bart only Lyme, so I guess I will look into other meds.
Posted 6/5/2009 5:32 AM (GMT 0)
Do the soles of your feel hurt? Mine hurt all the time. My doctor thinks I have both Babesia and Bartonella. Bart also causes anxiety, panic attacks, depression, moodiness, and rage. There are more but I can't remember. Levaquin is a good drug for Bartonella but there are others that work well too.
Posted 6/5/2009 12:42 PM (GMT 0)
I had a speech problem and it scared the crap out of me.  I felt a disconnect between my brain and my mouth and the words I was trying to say came out garbled.  I thought I was having a mini stroke.  LLMD said it was the Lyme.  I had others tests and they all came out negative. 

Posted 6/5/2009 12:43 PM (GMT 0)
I forgot to add that the balls of my feet hurt all the time.  I was told it was the Bartonella.

Posted 6/5/2009 1:40 PM (GMT 0)
If it is any consolation, my brain has been a little like that all my life that I can remember. Not the slurred speech, but the staring into the fridge type of stuff, and trying to think of words or names and it's there but I can't think of the right one. Also going to say something and something else comes out. It happens when I'm tired, stressed or PMSing, and I work in a nursing home as a Restorative Nurse Aide, so it does happen there sometimes. I have vowed to take better care of myself, treat myself better!

At least if you can find the right treatment, your symptoms should improve.
Posted 6/5/2009 1:46 PM (GMT 0)
Hi,

I know exactly how you feel, I used to end up just making some sounds when I wanted to say something, I knew what I wanted to say the words just didnt come out, I was treated for approx 1 1/2  years and that symptom and most of my other symtoms are gone

Posted 6/5/2009 10:07 PM (GMT 0)
Thanks. At least Iam not alone. Yes some times my feet hurt but, it does not happen often.
momtothree, That is a good way to describe it. That is how I feel, it is the worse when it happenes.Iam going to look into other meds, I know that levaquin is to expensive. Without health insurance I can not afford that one. Judy3, It is good to know that some of your symptoms are going away. what treatment were you on?
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