How best to describe this illness?

I know this is a weird illness, but I don't know how to describe how it makes me feel sometimes.

The pain in my head is dull and my personality seems so flat -- I used to be a livewire.

I also had a strong feeling that in my body that things are so very amiss. Does that make sense? Almost as if I were poisoned. Is that a symptom? What would cause it -- Lyme, co-infections, something else.

Something is so disagreeing.

On holiday from all treatments so this may be why.

Forgive me for the weird symptoms post.

When I first got sick... and during the first 2 years... I used to jokingly ask my husband if he was trying to kill me. I told him that if he was.... I wish he'd speed it up. Then I went through I period thing that the wiring in the refridgerator was "off" and I was being poisened by copper wire................... Nothing makes sense with this illness.

Hoping,

The best way I describe the yucky feeling inside is like a toxic feeling. Is that how you feel?

I always tell my family :I feel like Im being poisoned!!

EXACTLY!!!!!!!!!!!!!!!!!!!!

Lyme,

Omg!!! I feel that too!!!!!! Especially after the dose of antibiotics last week. I felt it when I took Amoxicillian too. It feels like something is moving around in my legs mostly, but I feel it in my arms and my lip sometimes too. I think they are actually moving around and running away from the meds. I think they are trying to find a place to hide. I saw a show on TV about a girl who had Lyme Disease and she explained it the same way. I thought I was going crazy until I saw that episode.

I get the vibrating feeling too. I sometimes think it's my phone ringing since I put it on vibrate at night, but it's me! I swear, I think I check my phone a million times before I finally just give up. Sometimes, I think I can actually hear the vibrating too. It's kind of like the sound a June bug makes. Weird!

Lyme,

Are you on antibiotics right now? I don't remember but was your WB positive or negative? I think I remember you saying it was negative.

Quest called my WB negative.

I had a problem bite and became mildly ill a few weeks after. I have symptoms now, just never had the bull's eye. But band 39 was positive, so I currently consider myself lyme positive. Band 39 is perhaps the most species specific band of all. So I have been researching WB tests, bands, and any info on possible false positives on the bands. (not the tests in general, because Quest might give a false positive overall if you have enough reactions on bands that are not significant for Lyme. But I cannot find ANYTHING on false positive BANDS)

Because Lyme specific antibodies were found in my blood, I am also searching for any possibility that I was exposed at one time, but no longer have an active infection. If I don't, why do I have symptoms?

My PCP who knows little of Lyme or the tests, but knew enough to order a WB assumes I have lyme. He referred me to LLMD who I will see 2 weeks from this Tuesday. (unfortunately got rescheduled) I hope to learn a LOT more from him, because like others, he left his family practice to devote his life to lyme.

I am not currently on abx, but just finished a round of them for cellulitis in my thumb that stubbornly returned.

Meantime, now that I've become more aware and concerned, I have to put my glasses on and I am finding teeny tiny DEAD ticks in my bed almost daily! (I sleep w/ dogs). Thank goodness they are dead (thank you frontline), but looks like it would be a miracle if I dont' have a TBI!

I will share ALL answers that I find and we WILL find answers!


PS: right now (and for 20+ yrs) I take lots of vitamins, megadoses of some. I strongly believe in C and garlic.

Lyme,

Well, we both had negative test but both have the same symptoms.

Thanks, Traveler. I'm looking forward to this, but am on my way out and will be sure to go to your link when I get home. Thank you for sharing!

Cajun, I consider my test to be positive. And I will continue to until I have seen my LLMD and learn a valid reason for my antibody reaction. Also, his nurse has assured me that he will know what tests to order.

What did your tests show?

Well i arrived here sbout an hour ago..lyme and co came with me.
im stuck in the chair, i cant move, i wanna drop some weed killer into my IV just to see if it will help get me moving...
Am i in hell or on earth...cant make my mind up..i got lost earlier in my own home!!
Now im stuck, alone..no one to help me up hmmm
maybe i will still be here on monday when i may see someone..maybe my legswill decide t work in a few minutes..gee i hope so. im scared..AGAIN. hearts not happy either, or is it its beating very! fast.

oh and hello im new here..x