Bad Bartonella, Please Help!!!

Hi everyone,
i am writting on behalf of my sister, she has had lyme and all of its coinfections for 8 years now, but has only been receiving treatment the last four years. She has done tons of oral antibiotics, IV treatment with a picc line, bassilin shots, tons of stuff
lately, the bartonella has been really really bad. the rash came back, and her symptoms are worse then before. she has spasms in her muscles, horrible headaches, body aches, she can never get into a comfortable position no matter what she does, terrible stomach pain (she doesnt eat much from the stomach pain and nausea and is losing tons of weight)
the herxes she is getting are really bad, she is getting anxious, angry and aggressive and i just dont know what to do, please if any of you have any suggestions for medicines, creams for the rash, good doctors (we are in teh northeast US) anything at all, i would be so grateful
thank you so much

Post Edited (JIJI) : 6/16/2009 7:20:34 PM (GMT-6)

hi,
she has just started levaquin and is having the herx from hell, she had a really bad experience with the picc so she is afraid to do IV medicines, also, who is dr J, i dont know how to private message

For Bart I'm taking Bactrim, Zhang's HH capsules (2 - 3 times a day), using a rife machine 2 times a week, getting TBM therapy, doing Cowden's protocal, Taking Carnivora and teasel root tincture. Juicing also helps. I'm juicing Kale, Garlic, Parsley, Carrots, celery and beets. For the first few weeks I had some nasty herx's. For my rash I am using Ketoconazole (prescription cream). I am also taking Colloidal silver (1 tablespoon 3 times a day).

yeah I'm going for it. I've had enough of this illness. It's war!!!!!!!!!!!!!!!!!

I've taken Rifampicin or Levaquin in the past. Right now I'm taking 2 HH caps 3 times a day. I was feeling pretty crappy until the past few days. I'm also using Testosterone cream and taking a low dose of hydrocortisone. My testosterone and adrenal levels were very low. I may be feeling better now because of the steroids but I'm not sure.

I am doing it at the same time as antibiotics.

I'm actually doing the rife for Bart. I take grapefruit seed extract for the cyst form lyme.

I do notice that I get very tired after doing the Rife machine. I haven't had any major herxes from it.

I'm not sure of the frequencies but the woman that I'm doing therapy with found them on line.

Has anyone ever heard of DR. Shaller in Naples, Florida? He supposedly treats and has a patent on a test for Bartonella. He claims to be able to identify the different strains of bart and which treatment is best for which strain. he is expensive at $875 per hour and doesn't take insurance. Has anyone here ever seen this guy? Is he legit or just another profiting from these awful ailments?

Yes, I have his book although I have not invested the money to speak with him. He advertises a free 5 minute consultation which I took advantage of but he told me nothing except nothing works to cure Bart except what he knows and you must pay him $500 for a half hour consultation to get that information. His book is the most expensive book I have ever purchased and also tells you nothing except what does not work. He has a lot of fuzzy black and white pictures in it of bart skin rashes etc. His web site gives much better pictures so the book is useless. I was lucky to have several people email me that had spent the money to consult with him. They were all told the same thing, to take 20 HH capsules a day for bartonella. Apparently Zhang is friends with Schaller and has agreed to double the mg in his HH capsules. I emailed Zhang to ask about when I could buy it and was told the new HH capsules are sill in customs. More than likely he is trying to sell out all the old bottles before offering the new double dose. I hope it is not double the price. In Schallers book he says cumanda and clove bud oil taken "in very high doses" will also cure bartonella. He says what is recommended is "very small". Therefore when you use logic, 3 hh capsules being very small, 5 being small, 9 being average, 12 being above average, 15 being high and 18 being very high.. . . Use that for the cumanda also. If you are to take 30 drops a day, very high would be at least 6 times that much. It is expensive. So far I am taking 12 working up to 15 today and having no problem with it. I am doing just as well as abx, infact better as I have no yeast or other side effects.
I tried ordering the hh from another online company and got something completely different. Zhang's hh smells and tastes just like dead fish. It is so horrible I can't tell you. But the herb I bought from the other company has no smell or bad taste. It is different. Someone on here said they located the company in China selling the houtynia to Zhang but it was too expensive to buy as an individual. I could not find out the name of the company. One bottle of hh has 45 capsules and costs about $32 so it would be about $430 a month to get enough of this herb to cure the bart - and who knows how long it takes to cure - Schaller says "a long time". I am hoping the Zhang is kind enough, rather than exploitive, to double the megagrams in the capsules without upping the price.

 grapefruit seed extract??? this works for the cyst form of lyme? this is the first I've heard of this!

Amongst my worst symptoms is anxiety so I just started taking lithium orotate.  it is recommended in the book Ten Best Treatments for Lyme.  It is supposed to protect the brain from the toxins.  I just started so I cannot tell you yet if it is working but it seems there are few side effects so I am giving it a try.  Perhaps if nothing else it may help her emotionally.