Good days and bad days without meds?

It's me again, with more questions. I posted a few weeks ago about the possibility of having Lyme. I still don't have an answer to that. The doctor gave me just 2 weeks of Ceftin, in case I had early Lyme, but I never called him back to ask for an extension because I was getting terrible headaches from the Ceftin and convinced myself I just must have some infection that was weird and intense, but on it's way out the door My mother-in-law, who is a nurse even urged me to get an extension, but I didn't listen. So hear is what happened....

about a week and a half of being off of the Cetin, I felt fine (other than a couple anxiety attacks, which I've never had in the past). A few days ago I woke up with terrible pain in the center of my back. The next day, same pain, but accompanied by pain in my upper arms and upper legs. It was not terrible, but everything felt heavy. I felt like I had spent the previous day lifting heavy objects and wore out my muscles...but I did not do anything like that recently at all. Yesterday before I left for work, I noticed a large swollen gland on my neck, below my ear. It was painful to touch, but I had no problems with it if not touched. As the day went on my ear started to ache really bad on that side of my head, then a spot on my head was also hurting really bad. It felt like I had inflammation running from the top of my head down to the top of my arm on that side. This was coupled with the back pain and I ended up leaving work early because I was in so much pain. Today...no pain! The gland is still swollen and the right side of my head feels a little different, but my body seems to have fought off the problem (or in the process of fighting). I have heard Lyme cycles mentioned on here before and was wondering if that is something that would happen with that. If you go through a cycle, does it work itself out for a while? I don't think this is the end, but maybe a period of rest. I am going back to the doctor on Friday, btw, for another Lyme test.

The doc did not give me details, only that is was negative. He told me when I got it done that it would be negative though, because when I found a tick on me, it was only 4 or 5 weeks before the test was done. From everything I've read though, my symptoms have been identical to Babs (started with a fever, night sweats, heart palps, etc.)!

If you have Lyme, certainly the short course of abx you were on were not enough to kill the bacteria, and then if you have any co-infections...well they have to be treated as well.

Thanks. I will see if I can get a copy of the results. I am curious as to what they will say. I hope I don't insult the doctor by asking for a copy of them, but I would like to have them. I might get a copy of both the new and old ones.

I get copies of each and every test I have. Whether it is an MRI or something as simple as bloodwork.

They are your copies, and no one should take offense. Tell them you want them for your own records.

Mine have come in handy more than one time when I have had to see a different Dr., at least I have copies of my latest tests and lab work.

Why are you 2nd guessing your LLMD TryAnything?

Your Dr. is much better to answer this question than we are!

Also, please start your own thread, that way it will get the answers and attention it deserves.

I had the stabbing pains in my heart area, too. That was my worst symptom. It really scared me.

I just wanted to concur with what the others are saying. I now always ask for copies of my labs. My primary MD drew the Lyme test. I was told it was negative. I then saw my OB/Gyn who asked, "What did they tell you about your Lyme test?" I told her they said it was negative. She said, it was actually a high positive titer with a band that was positive. She was the one who referred me for follow-up, because of the positive test and I was symptomatic.

Never feel bad for requesting your labs. Those are your records and it is your health! Good luck to you.

Heather