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Posted 10/9/2009 1:28 AM (GMT 0)
i've been hoping i could catch you while you were on here, didn't know if you got my response email but i was interested in hearing more about your story with "beating lyme."  I read your and cajungirls post on detoxing and have started doing some of the things-  i was just wondering if you had any bone popping or heart symptoms and if following Dr. jernagin's protocol helped that.  Do you know anyone else who followed his book? I really didn't want to walk through this alone; i must admit this is a whole new battle for me.  Thanks again for your help!
Posted 10/9/2009 2:09 AM (GMT 0)
Hi Finding,

You caught me!  LOL!  Gosh, it's so hard to tell my story in the condensed version..  I actually wrote a novella about my life with lyme but never did anything about it.

Answering some of your questions:  Yes, I had bone popping, bone pain, hip pain, leg pain, knee pain, ear pain, arm pain, couldn't walk for over a year, pain everywhere!  

The doctors were constantly checking my heart, endless tests! They hooked me up to all sorts of machines for my heart and I was okay.  I was told I had permanent knee damage but I ended up not having it.. ha ha on the doctor's who told me that.  My heart skipped beats like crazy, thought I was having mini heart attacks but in the end I found out it was all anxiety, yes, lyme does that to a person.

There were days and months where I would lay in bed just waiting for the end..  I really thought I was that close..  but here I am! 

I had joined a lyme forum (not this one) and I had given up all hope and someone on the forum mentioned Dr. Jernigan's book "Beating Lyme Disease" (at that time it was the first book, not the 2nd edition).  Then someone else went to Dr. J's clinic in Kansas and her husband kept us all informed, I grasped every word from him like it was gold as I had already bought his book and didn't understand many things in the book so he explained...

Thus no, I'm not the ony one who followed his book and became better, but the others do not belong to this forum, darn!  One lady who went to his clinic belongs to this forum and I'm sure she will post soon.   

Anyway, yes, Dr. J's protocol took away all my pain, my heart palpitations, brain fog, lyme rage episodes, etc.    His protocol consists of many things but the 2 main things are:

1.  taking his botanicals (no guess work since they are mixed together and tested).

2.  detoxing and more detoxing!

His protocol works best when one is not taking conventional antibiotics though I do know of some that took both but only to wean themselves off of the antibiotics. 

You do not have to walk through this alone, I already walked it and so did someone else on this forum (she went to his clinic in Kansas), her User Name is Wackowoman if you can search for old posts.   She is not wacko at all, just a nickname one of her kids called her.  She is an extremely intelligent woman with the most beautiful heart who has been through so much and she is doing great after her long battle (over 30 years)...

I guess each of us have our own battles, it's how we deal with them that counts.. 

Please keep your chin up and put a smile on your face even when you don't feel like it because between all of us contributing and helping each other, there is a rainbow at the end of this tunnel and what a beautiful rainbow it is! (Words I never thought I would say when I was sick)... 

Hugs,

Denise

Posted 10/9/2009 2:34 AM (GMT 0)
smilewinkgrin  oh THANK YOU SO MUCH! I started to cry when i read your post! I knew it! I had a feeling there was SOMETHING i needed to hear from you! I could feel it in what is left of this scared heart of mine. You remind me of my parasite cleansing buddy Donna- There are people who get well after years of sickness and i know that their positive spirits make all the difference. Her's is a story similar to yours except she did not have lyme (lucky her) she just had a severe parasite and fibromylgia problem. Anyway I hope i will capture the secret of staying positive! It has been so very hard for me what with my emotions going up and down day after day-hearing scary things-feeling scary things- yes i think my heart symptoms are anxiety i do have it bad! I hope your friend will post as well. I plan on buying his book soon as there is no way i can afford going down there for treatment. I hope i can make sense of the book! Would you mind if i ask you about what i'm reading once i get the book? Thanks again for your response- i might just print it out to have some encouragment. I MUST get well for my kids! Especially if they have this mess; i need to be better so i can help them. It is amazing to hear what you went through and I am glad to not be alone! Thank you for helping me see the rainbow.

Anita

Post Edited (finding721) : 10/8/2009 8:44:44 PM (GMT-6)

Posted 10/9/2009 5:02 PM (GMT 0)
Hey Finding,
I'm gearing up to start Dr. J's 'home tx'. I'm in a position where I just cannot afford all of those tests & tx that western medicine demands. We are already under a mountain like that!!
The other things is that at one time (feels like eons ago!), I used to treat myself with herbs, homeo & supplements all the time. Of course I also knew when to give in & go to a doc for abx if I had ended up with an infection.
I quit treating myself when my brain fog got too thick & I couldn't count on my brain thinking straight any more.
Posted 10/9/2009 6:42 PM (GMT 0)

Traveler, that's great!! Please let me know which edition of the book you are getting- the first older edition or the new 2nd edition so that i will get the same copy.

 Deejavu you said you had the first older edition right? Do you think it matters which edition we get- do you know if the material is bascially the same in the new edition? Anyway, I started looking at the ingredients in some of the supplements- do you know one of the supplements has optic nerve and cerebellum in it? Do you know why that is and from what source-animal or whatever that it is from? I have no clue what half the ingredients are that are listed- how did you figure out what this stuff is? 

Here's the thing- I have not been diagnosed yet by anyone- i have self diagnosed because of my symptoms-which are worsening gradually- and too much the same as many people here- and because the doctors here could not find anything else- I plan to try to get in to an LLMD to be tested to see what particular strains i am dealing with but i worry what if nothing shows up??  I am pretty sure at this point that i have it, so should i still attempt Dr. J's program even though i won't know which bacteria i'm dealing with? I think i already am chronic b/c of the bone and jaw popping and head and heart symptoms- Do i have to wait further into this disease before something will show on the tests?? I am on a parasite cleanse right now by Humaworm- a home ran business- several friends were on it so i'm giving it a chance but I don't know if the herbs would effect my lyme test results- Deejavu i know you mentioned parasite cleansing with paragone- did you find that this effected the lyme? Has anyone not had their tests show particular strains but stil been treated for them by symptoms?

I think i will go ahead and buy the book at the very least- just let me know traveler what version you got or plan to get and if you have any comments on this Deejavu,  I feel like a lost kid in a mall.... NO one over here knows a thing about lyme.  I mean so if i have heart symptoms would it be beneficial to move near an LLMD in case i need my heart checked?  

Traveler if you start before me please let me know whats happening? Even the simplest details would make things easier and I will do the same. I would greatly appreciate walking through this with both of you.  It's holding me together right now b/c half the time i feel like this is so overwhelming.

Anita :-)

PS  Traveler, Please please if you ever feel your brain fog is too thick ask me ( i will try to get the book quickly) or Deejavu  if you don't remember somthing- the last thing we need is to not do the dosing correctly.  Also Deejavu did you do anything to help with the brain fog? I take omega 3,6,9 by nordic naturals- would this help at all for traveler if she needs it? What else might we do to help our poor brains?


Post Edited (finding721) : 10/9/2009 12:48:42 PM (GMT-6)

Posted 10/9/2009 10:30 PM (GMT 0)
Hey Finding!!
I finally took the time to go through some of the info @ Dr. J's site. You should really go there & read at least a little bit!!

hansacenter.com/links.php

I also went to the site to check out some of the items he says to take :

jernigannutraceuticals.com/home.html

I discovered that in order to get started quicker, I can order the e-book for a lot less!!! I also have the option of only ordering 2 oz. bottles instead of the 4 oz ones. Not quite so cost effective, but when the purse strings are closing.... It will at least cut down the total out-lay of money just to get started!!

I do have to say, I'm FINALLY beginning to see hope of getting tx!!!!
I will come back & actually read your post in a little while - I just kinda excited, as it has been two very long years of no tx!!!
Posted 10/9/2009 11:12 PM (GMT 0)
Hi Finding (Anita) and Traveler,

Aww shucks, you are so welcome!  As far as being positive, I'm not always positive, I have bad days too where I feel sad about losing my baby brother or my Mom starts complaining like crazy or I just want to sell my house already and move to Vermont!   But I do my best.  What sticks in my mind is the quote about Attitude from Charles Swindoll: 

"The remarkable thing is we have a choice every day regarding the attitude we will embrace for that day. We cannot change our past. We cannot change the fact that people will act in a certain way. We cannot change the inevitable.

The only thing we can do is play on the one string we have, and that is our attitude ... I am convinced that life is 10% what happens to me, and 90% how I react to it. And so it is with you ... we are in charge of our Attitudes. "

Anyway, I do have Dr. Jernigan's updated book (2nd edition) as well as his old one, but I only skimmed through it..  I wanted the new book so I could help others and learn more..  I have that kind of mind, very curious and I have this "need" inside of me to want to keep learning things (even things that are NOT lyme related).   If I can't find information on the internet then I buy books..   Don't ask!  LOL!

So yes, it's about time I really read this book and we can walk through it together..   I have the soft cover book in case we need to reference page numbers.  So that's fine with me!

The newer book has more information in it from what I have seen and is more organized compared to his older book.  

Oh, the optic nerve and the other things you mentioned are not ingredients by the way.  What he meant is that the Neuro-Antitox CNS/PNS contains "Sarco-Bioenergetic Potencies"  (the other Neuro-Antitox formula's do not have this) which acts as a driving agent to direct the Silphium and Pale Spike Lobelia to specific tissues where they are needed instead of floating around inside the body.   Thus, if one's optic nerve or cerebellum needs this product in order to get better, it will find it, pretty smart, huh?

Dr. Jernigan grows his own plants in Kansas and tests them before he bottles them and sells them.    He may find a root in Europe somewhere or during one of his many travels that he thinks will be beneficial and then grow it himself and experiment with it to see if it will help or not help.   He will NOT use anything that could harm anyone.   But and I do repeat but, his botanicals are powerful and really should be taken with a "clean body" meaning that if a person is on an antibiotic regime already they should consult with their doctor or Dr. Jernigan before starting his botanicals.  

Personally, I would not mix botanicals with antibiotics though as I said before, I do know of some people that have but they read his book and either talked to their doctor or Dr. Jernigan prior to doing so. 

As far as you not being "officially diagnosed" that's up to you.  I wanted those papers from IgeneX even though I "knew" I had lyme but that was my own personal choice.  No test is 100% reliable or accurate, not even IgeneX but they come pretty close.  Many LLMD's will treat a person based on their symptoms as test results do vary.

If you decide to get tested, please stay away from Labcorp or Quest, they use rat's blood instead of human blood like IgeneX but that's another post.   Some are lucky with those labs, I wasn't.

Okay, you asked about parasite cleansing, I find that colon cleaning is the best way of ridding one's body of parasites..   I did try Paragone and was happy with it but now I prefer colon cleansing and coffee enema's.   I also drink living clay as that binds up toxins, metals, rids my body of parasites, etc.   Hey, whatever works right?

I don't think the herbs you are taking now would affect your test results, but once again, I highly recommend IgeneX.  

Hope this helps,

Denise

Posted 10/9/2009 11:16 PM (GMT 0)
Hey Traveler,

I totally forgot that Dr. Jernigan has a Free E-Book... yes, it's totally free...  For some reason unknown to me, I think you do have to put in a credit card or something like that, correct me if I am wrong..   I don't know the reason for this... I am guessing that perhaps Dr. Jernigan wants to know who is using his protocol in case they have questions??

That's great that you found those links!!  And I agree that clicking around those links will bring up new links and more information!

I'm really excited for you!

Denise

Posted 10/10/2009 1:48 AM (GMT 0)
LOL traveler, you made me laugh! Yes i took some time to look at his info- that's why i wanted to ask Deejavu all about it- YEAH so now i can get the new edition! That was so smart and thoughtful of you Deejavu to get both! Do you know when i went to amazon to look at the reviews i found you there! I said hey, that's Deejavu from the forum! At least i hope it was cause the name was the same as on your email! lol. Anyway, i'm glad you are excited about it traveler- i am too! I am still going to try to get a test done but i don't see the harm in getting the book so i can start reading- and thanks for telling me about the 2oz options for the botanicals- that does save a penny or two! And boy do i need to save pennies! oh my...i feel silly! I can't believe i thought optic nerve and cerebellum were ingredients! LOL. I just saw them listed there on the site under the formula and thought WHAT? haha! well live and learn. While i'm thinking about it- did either of you ever have acid reflux or Gerd? They wanted me to take nexium but i want to treat it naturally- any thoughts? I drink a little aloe vera juice cause i heard that's good-and my sister told me papaya capsules.. Oh and what is this crawly skin feeling i get? Is this from parasites or the lyme? I thought doing a parasite cleanse should clear this up.
Posted 10/10/2009 3:01 AM (GMT 0)
man- i didn't even SEE the external link to nutraceuticals! I'm glad you pasted it Traveler- I was just looking under the estore on the main web page. I think they need to do a little spell checking though on their nutraceuticals webpage! lol. oh and deejavu that was a great quote!
Posted 10/10/2009 3:20 AM (GMT 0)
Deejavu, found this on the anti tox formulas besides the basic one- is this saying that they use tissues from animals? -the following is a quote from the hansacenter website- not my own quote-"SBEP™s added. These are not homeopathic potencies; but rather energetic imprints of tissues of rabbit, porcine, or bovine origin, depending upon which animal’s tissue most closely matches human tissue. In that they are only energetic imprints, there is no potential for viral contaminants, such as Mad-Cow virus."

How do they imprint an animals tissue??? this all so very new to me! shocked

Post Edited (finding721) : 10/9/2009 9:26:23 PM (GMT-6)

Posted 10/10/2009 5:46 PM (GMT 0)
Hi Finding,

I don't believe they use the "actual tissues" from animals, it's all about energy..    The bottom line is SBEP which stands for "Sarco Bio-Energetic Potencies" which enables the botanicals to go human tissues that are impaired in order to heal them.   I guess they wanted to find "imprints" of tissues that were close to human tissues in order to see if this SBEP would work.  It's advanced stuff and I have no idea how Dr. Jernigan did that but then again, Dr. Jernigan does things that are so advanced that I can't even comprehend them.   Perhaps if I had gone to his clinic I would understand it better.   Sounds really far out right and extremely fascinating to me!

This is what the site states in total:

"I have a very simple mind, so it bothers me that we have made the Neuro-Antitox formulas so confusing. If it were me, I would just buy the Basic liquid formula, with Molybdenum and if I felt I needed chlorella and beta-sitosterol, I would add it to my regime. But, it just so happens that people are going to their health practitioner and are discovering that their bodies are asking for the pills or for the different liquids with the sarcobioenergetic potencies. So, what is the difference? The difference is that Dr. David added sarcobioenergetic potencies to help drive the formulas to certain parts of the body. What are sarcobioenergetic potencies?

Sarcobioenergetic Potencies™ (SBEP™) Each formula, with the exception of the Neuro-Antitox Basic, utilizes a new technology – Sarcobioenergetic Potencies™ (SBEP™). SBEP™ represents the latest technology in bioelectrical, biochemical engineering, and quantum physics. According to clinical research, Biosarcoenergetic Potencies may help drive or direct the other ingredients of the formulas to the primary problem areas. While SBEP is an unverifiable technology, clinical outcomes and sensitive testing techniques lend it credibility when compared to the globally-acting Basic Formula, which has no SBEP™s added. These are not homeopathic potencies; but rather energetic imprints of tissues of rabbit, porcine, or bovine origin, depending upon which animal’s tissue most closely matches human tissue. In that they are only energetic imprints, there is no potential for viral contaminants, such as Mad-Cow virus.

Neuro-Antitox Musculo-Skeletal™ - for those suffering primarily from muscle and joint problems from Lyme toxins and heavy metals. Indications: Muscle and joint pain and weakness, sensations in the extremities of burning, tingling, radiating pain, swelling, arthritic and rheumatic conditions. Ingredients – Silphium lac. 100mg, beta-sitosterol 100mg, chlorella 250mg, molybdenum 100mcg, as well as the sarcobioenergetic potencies in P-6, 12, and 30 of connective issue/fascia, cartilage, intervertibral joints (cervical, thoracic, and lumbar), humoral joint, elbow joint, intercarpal joints, knee joint, interphalangeal joint, bamboo, rhus toxicodendron.

Neuro-Antitox CNS/PNS™ - for those suffering primarily from problems in the brain, meninges, and peripheral nerves from Lyme toxins and heavy metals. Indications include, but are not limited to – cognitive disturbances, dizziness, and vertigo, disturbances in vision, neuritis, neuralgia, numbness, palsies, and headaches. Ingredients – Silphium lac. 100mg, beta-sitosterol 100mg, chlorella 250mg, molybdenum 100mcg, as well as the sarcobioenergetic potencies in P6, 12, and 30 of cerebrospinal fluid, dura mater, cerebellum, optic nerve, substantia nigra, cerebral cortex, cranial nerve VIII (vestibulocochlear n.), myelencephalon, temporal lobe, occipital lobe, quadrigeminal plate, lumbar plexus, brachial plexus, periodontium.

Neuro-Antitox Cardio™ - for those suffering primarily from heart problems from Lyme toxins and heavy metal. Indication: angina, palpitations, hypertension, arrhythmia, valve problems, shoulder and arm pain, shortness of breath, chronic fatigue. Ingredients – Silphium lac. 100mg, beta-sitosterol 100mg, chlorell 250mg, molybdenum 100mcg, as well as the sarcobioenergetic potencies in P6, 12, and 30 of cardiac plexus, cardia, myocardium, endocardium, mitral valve, tricuspid valve, and aorta.

Neuro-Antitox Basic™ - good for global detoxification of the Lyme toxins, heavy metals, and for those who are unsure which specific Neuro-Antitox to take. This formula does not contain any sarcobioenergetic potencies. Ingredients – Silphium lac. 100mg, beta-sitosterol 100mg, chlorella 250mg, molybdenum 100mcg"

Denise

Posted 10/11/2009 5:40 PM (GMT 0)
HA HA HA!!! LOL!!! Finding, you gave ME a giggle!!! You sound like I do when talking with my daughter!!!! She is a research scientist & I make her explain sooooo many things to me, as she knows how to break info down so that even my poor ole Lymie brain can get around it!!!!
Posted 10/11/2009 5:43 PM (GMT 0)
Hey Deejavu!!!
Sooooo, could I just stay on the Borrelogen only for a while? I can't afford to just lay out the money for all of the things I understand I SHOULD start on.
Posted 10/12/2009 7:29 AM (GMT 0)
Hi there, it just dawned on me who Dr J is :) thanks for the link, Deejavu. I checked his page and was excited about all his info. As I am on nutritional supplements only, I am very interested in all options possible.
Having 3 young kids and a demanding job and LD - something out there must be able to help. :)
Posted 10/12/2009 7:54 AM (GMT 0)
bembuks, we should talk! :) I have 2 young kids myself! I'm glad to find someone else on the forum in the same situation! YES- I think NATURAL is the way to go- seems most people get better that way! And positive thinking plays a big role! SOmething i struggle with daily- it can be hard when you have little ones to tend to and worry about. But we need to stick together on this so we WILL make it. WE HAVE to make it for our kids. :) ps. i think i might have gotten bit while pregnant too- either that or i've had it for life and it just finally reared its ugly head!

Traveler, glad to give you a giggle- yea i research everything like crazy- too much sometimes! I can be real skeptical too- not good all the time when learning to be positive! I think it helps when you get encouragment from great peopl on the forum though!

Post Edited (finding721) : 10/12/2009 1:58:12 AM (GMT-6)

Posted 10/12/2009 8:03 AM (GMT 0)
Finding,
I will follow your progress:)) We WILL make it.

I hope your kids are safe. My baby was very ill while I was breast-feeding (18 months... grr!!!! the mad doctors!!!!!) and suddenly got so much better when weaned. She is 2 years now and probably fine (tested negative, too, but i don't trust those tests anyway).

staying POSITIVE may be hard on the worst days, but the best I can do - is not judge myself for not being positive, It's not me depressed, it's the disease and it will pass.
Posted 10/13/2009 1:00 PM (GMT 0)
Hey Traveler,

Yes, you can just take the Borrelogen, that's how I started out.  I didn't want to spend money (and money that I didn't have) on more products if I was not going to feel any different from taking the Borrelogen.   Darn, I had already tried Nutramedix Samento and other remedies that I did not feel any difference from taking so I was really skeptical about spending more money.

Looking back, I think I should have first started with Detox Baths and Foot baths before starting anything.   I did it all backward but it worked out in the end.

I thought I read in Dr. J's book that a person should first take the Neuro-Antitox CNS/PNS formula first...  I guess his thoughts are to first start clearing out the toxins...  

I did add the CNS/PNS formula (due to severe brain fog and my lyme rage episodes which really scared me ~  all caused from toxins and ammonia buildup) once I knew the Borrelogen was working so once again, I did it backward, LOL!!  

Denise

Posted 10/15/2009 12:01 AM (GMT 0)
Hey Deejavu!!
Bumping this up for others to find - buuuut, since I am here, I do have something to say (I know, I know - I ALWAYS have something to say!!)
I'm going to stick with just detoxing for a while. I am doing the salt/peroxide baths as often as I can - trying to build up to doing it daily - without any undesirable effects from detoxing.
When I do start on one of the homeopathic 'thingies', I'm just about convinced I need to start with NeuroAntitox Cns/Pns.
Posted 10/15/2009 9:45 PM (GMT 0)
Hey traveler, i am awaiting my book in the mail! I have also started detoxing- i think that is a great first step.  Please let me know how you do with the neuro antitiox forumula- I am trying to decide which i should do first- the antitox or borrologion.  I think my body is highly toxic so i may start with the antitox like you.  Let me know what you think of what you are reading!

Anita

Posted 10/15/2009 11:46 PM (GMT 0)
HI Finding!
You know, I'm getting stuff from reading that book that I didn't think I would!! I feel like I have a much better understanding of the

different tx, which makes me feel like I am making a much more informed decision about which tx I want to use.

It's also made it easier to understand the importance of detoxing. Of course, I'm still reading from plenty of other sources too - but

I feel like I have a better understanding of what I'm reading in the other places as well.
For me it was a really good buy!!

I'm excited for you about getting your copy!!!! I'll be very interested in talking with you about it!

I still have the book sitting by my side!!!
Posted 10/17/2009 7:34 AM (GMT 0)
Yes we will have many in depth discussions- my estimated delivery date is before Nov. 3- but i'll probably get it in the next couple of days. Ordered from amazon-don't know why since i could have ordered straight from their site! lol.  I always order crap through amazon- like neem soap (anti parasitic and gentle on the skin) and enema stuff and baby stuff...the list goes on and on- they usually ship pretty fast so i wouldn't be surprised if i get my book in the next couple of days.  smurf
Posted 10/17/2009 10:49 PM (GMT 0)
Good!!! - take a couple of days to look through it & read some - it'll most likely clarify some things!!!

For me, it actually helped me to decide to go with the homeo tx's. As I said somewhere else (???), I used to treat myself for a lot of different things using only natural/herbal/homeo tx's.

So it really makes sense to me to go back to the ways that are natural for me.
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