EVERYONE please share!

Hi Finding!!
Well, as for me - one yr of Mino only made me worse - probably just needed to do a ton of detoxing, but couldn't even imagine trying,

since I herxed so much cognitively. I really couldn't even think straight, begun to stutter, & all that fun stuff! Once I started having a few

small seizures - it scared the bejeebers out of me - so I quit.(I need to have a little guy crying his eyes out here!!)

Now I'm ONLY detoxing - that's proving to be hard to stick with as well , but I'm determined to get better - so will stick with it no matter what this time.

I used to treat myself with herbs soley-way back when - but that was back when I had a functioning brain!!!

I have only been in treatment for 3 months, and still feel wretched. Doxy for five weeks: felt some relief in the 4th and 5th week. Then started Mepron/Zithro: had shaking chills and neuralgia from hell: it passed somewhat but I never felt better. Now I am trying Cipro: it has only been a week and I am hoping that the current neuralgia & insomnia are a herx. Did Zhang herbs for the three months as well: not sure if they had any affect. I have actually bought a month of Cowden herbs, but have not started yet: want to see how the antibiotics play out. So...results just very inconclusive.

Like PSR1, I felt better when I was taking the doxy (less fibro symptoms, much less pins & needles). When I was switched to zithro, mepron, and artisiminin some of the symptoms returned, particularly the pins & needles. Also, I have new symptoms (hot and sweaty every evening and night - feel like I might spontaneously combust). But, all that being said, I still feel tons better than I did before I started meds.

Rose

HI Finding!!
we are going to have to quit meeting like this- people will talk!!!

Anyway, I don't know about feeling better - but you have to understand - I have been un-treated & under treated for an eye-popping 40 yrs. Not real proud of that little detail.

At this point, I can only handle the detox baths 3 time a week (& I'm cheating, my daughter is up for the weekend, so I'm taking

a holiday until Mon!!) I did start with the mustard foot baths today though. Unfortunately, I had the same reaction as

with the detox bath - only this one is a fairly minor migraine.

I'm thinking I need to stick with just detoxing with the baths & such, for an extended period, after 40 yrs of not being

able to detox properly well, there's a lot of crap built up!! At least that's my excuse & I'm sticking to it!!!

ONce I feel I'm better able to handle it, I will then start on Dr. J's neuro antitox- CNS/PNS, as those are the sx's that are the hardest for me to get through.

I can deal with the muscle spasms easier( even though I can & do get entire back spasms & such), and have had the joint pain

for so long, it will actually be weird once I no longer have these constant buddies with me.

I am also drinking 40 - 60 oz. of water w/ lemon, 4 cups of decaf. green tea, and one cup chamomile tea at night, before bed.

While I have not officially been started on Lyme treatment, there are some things that have proven helpful for some of my symptoms:

Herbs/Homeopathy/Supplements:

Milk Thistle - liver is a lot happier on it...liver doesn't hurt anymore, and liver enzyme tests are normal when I take the milk thistle

Nettles - joint pain, wandering leg pain, hand/wrist stiffness/pain all goes away on the Nettles

Acidophilus - helps settle my stomach & keep bowels functional

Acute ViroReliever (homeopathy) - helps my low lymphocyte counts come up to right around the low end of normal

Ailanthus - just started this one, and my energy level has been slowly improving since I started it...

Rescue Remedy (Bach Floral Remedy Mix) - helps with nervousness/anxiety, stress/trauma (emotional)

Homeopathic Causticum - helps restless legs/joints, joint pain, wandering leg pain, hand pain

Vitamin B12 (Methyl-B12 oral spray & injections) - cuts severity of sulfite reactions, increases sulfite tolerance threshold

Magnesium - reduces muscle pain and cramping, helps gut motility

Peppermint essential oil - motion sickness, skin itching, sometimes helps nausea

Homeopathic Ipecac. - helps nausea "attacks"

Medications:

Claritin - hay-fever/sinus symptoms, itchy eyes, etc.

Pulmicort - (sprayed up my nose) helps plugged/itchy ears, nasal inflammation & hayfever symptoms

Domperidone - helps my slow stomach to empty faster, helps me tolerate anything in my stomach (can't eat much without it), helps nausea

Zofran - works for my really bad nausea episodes

Benadryl - I use it for acute allergic reactions, as well as for sulfite reactions

Other:

Gluten/Corn/Dairy-free diet - gluten & corn cause migraines, gut dysmotility & monthly cramps for me, and dairy gunks up my sinuses and may contribute to gut dysmotility

Low protein diet - given genetic issues, I have difficulty processing certain amino acids (sulfur-based) and so have found I just feel better in general on a low protein diet

Heat/heating pad/electric warming blanket - reduces pain, muscle spasms, and just plain helps me feel better (as long as I don't overheat...)

I've been on abx since early this year because of multiple infections (UTI, lung, skin). When the doctor tries to take me off, I get sicker...and last time we tried to lower the dose, I spiked a fever of 103 (my normal is 96-97.5, so 103 is a pretty big deal) within 24 hours of reducing the abx dose by 50%. So my doctor is content to leave me on the abx for now. The abx I'm on is not known to be particularly effective for Lyme, but it must be helping some or I don't think I'd get sicker without being on it.

I have tried different types of natural remedies such as Nutramedix Samento, Colloidal Silver, etc. and those did nothing for me.   Dr. Jernigan's botanicals and his protocol (which includes lots of detoxing) worked for me with no herxing and it's been years that I have been in remission (symptom-free).

All I can say is read books, learn as much as you can and if whatever protocol you are on is not working after 6 months or so, perhaps it time to try a different one..  One can always go back to their original protocol.  I do not believe in long-term antibiotics, I feel they do more harm than good and that's just my opinion.

Denise