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Posted 12/24/2009 9:21 PM (GMT 0)
I know i've probably posted about this in the past- but i am getting it everywhere last few days- little tendon spasms/ internal popping in my hands and arms and even legs- regular muscle spasms and then little tendon spasms.  does anyone else have a body quite as spasmy? i'm taking a little magnesium and potassium but trying to watch cause of my low blood pressure...will this ever let up or is it just going to get worse? so far the little spasms i get- like little internal pops everywhere- are not visible or audiable- i get some minor bone popping too, but this is the tendons and muscles. i'm going to try and get in with a neurologist asap, just wondering if anyone else deals with this constantly for some time or has had it go away or what. Thanks, and Merry Christmas everyone!
Posted 12/24/2009 10:28 PM (GMT 0)
An epsom salt bath may help. Also, a Naturopath told me sometimes the tendon clicks & pops are from inflammation (can be from Lyme-related inflammation or herxing) and that sometimes anti-inflammatory treatment is needed. Not steroids, but maybe Advil or something would help...? Boswellia cream can also be helpful (but it is expensive) - it is a natural anti-inflammatory.

I've got my share of spasms, "creaky joints" and joint pops/clicks. I also get stuck tendons in my ankles that makes it very painful to walk when the tendon is stuck...and it is very annoying...

I hope you feel better soon. Good luck & happy holidays,
Posted 12/25/2009 3:42 AM (GMT 0)
thanks razzle- just looked it up the closest thing i can define it as is tendon reflexing- dont know but maybe it is from inflammation- anyway its not incredibly painful but i have a feeling it's  worth a trip to the neurologist.  Perhaps i am too in tune with my body- a nice doctor answered a call i made about it after hours- she explained that most likely it had to be the muscles spasming-causing me to feel the tendon reflex- nerves typically do not spasm-she said if they do that would be a seizure-but i'm not having seizures- at least not that i'm aware of, unless its in my sleep.  I will simply have to have an emg and then hold my breath.  I don't know if they will want to do another MRI since i had one done about 4 months ago.  Is that enough time to develop MS lesions? I ask the craziest things don't I? lol.

I am so sorry your legs are in pain like that! Does anything relieve it? Please take care and thank you for your reply.   Happy Holidays!

Posted 12/25/2009 6:40 PM (GMT 0)
FINDING721::You just helped me a lot. I am going to a Neuro. in February. I need to see if I have MS lesions. I am having som many neuro problems. thanks
Posted 12/25/2009 6:42 PM (GMT 0)
I have these problems that you are talking aobut. the severity comes and goes, which leads me to believe that My nervous systme is involved. I need an MRI.
Posted 12/26/2009 2:12 AM (GMT 0)
Don't count on an MRI showing anything with Lyme. I don't know anything about MS or the timing of the lesions, but I do know Lyme can cause lesions in the brain that are indestinguishable from MS lesions.

My ankle only gets the stuck tendon once in a while...the only thing that helps is if I maneuver my foot around until the tendon gets un-stuck. Typically when it happens, it happens when sitting in the car, which isn't very convenient, LOL.

If the nerve that goes to a particular muscle is irritated by Lyme/Bart, then it can cause the muscle and associated tendon(s) to spasm. I get this in my gut a lot...

Take care & happy holidays,
Posted 12/26/2009 4:33 AM (GMT 0)
happy to know someone with my symptoms...been meaning to get this checked out too. Razzle is right my last MRI didn't show anything (4 mths ago) but i was thinking of having an emg done...
Posted 12/27/2009 5:18 AM (GMT 0)

finding721 said...
I know i've probably posted about this in the past- but i am getting it everywhere last few days- little tendon spasms/ internal popping in my hands and arms and even legs- regular muscle spasms and then little tendon spasms.  does anyone else have a body quite as spasmy? i'm taking a little magnesium and potassium but trying to watch cause of my low blood pressure...will this ever let up or is it just going to get worse? so far the little spasms i get- like little internal pops everywhere- are not visible or audiable- i get some minor bone popping too, but this is the tendons and muscles. i'm going to try and get in with a neurologist asap, just wondering if anyone else deals with this constantly for some time or has had it go away or what. Thanks, and Merry Christmas everyone!

Hello,

 

I can totally relate to the musle spasms. The good news is they eventually go away. Sometimes they come out of nowhere....but I have noticed that if I don't sleep well or overdue it then they come more often. My DR told me to take calcium with magnesium for it. I went to a neurologist too who ran an MRI and thank God all came back ok. So it's related to the Lyme.  Hope you feel better and get some relief soon. Have a good day!!!

Posted 12/27/2009 7:23 AM (GMT 0)
I do suspect it might be a nervious system thing- if it was muscle spasms only i wouldn't ask about it anymore- I cannot describe it as a tendon that gets stuck and un stuck- although putting pressure on my arm will aggrivate it- if i lean on my arm sometimes i can feel the tendon spasm or move- stress tends to aggrivate it more too. Thankfully today i have not had many occurances. I also get the gut aggrivation you mentioned Razzle- at least on the walls of my gut- seems like i can feel the tendons pulling or maybe this is the nerves- one lyme doc explained it the way you did- the bacteria aggrivating the muscle- causing inflammation and irritating the nerves.

Stutterbug does movement or pressure aggrivate the tendon issues for you?
Posted 12/27/2009 7:02 PM (GMT 0)
No movement doesnt aggevate it. When I feel "keyed" up and I can tell that my nervous system is aggitated, then it happens.
Posted 12/27/2009 7:09 PM (GMT 0)
I will actuall have a series of twitches. It goes like this -- My muscle or tedon will twitchand then my head will twitch right after that. This usually goes on when I feel my CNS all WIRED UP.
Posted 12/27/2009 7:18 PM (GMT 0)
I was all twitches and spasms as the abx I was on lost their effectiveness. Now that I've changed over to Flagyl they have almost all gone away. Maybe time to change prescriptions?
Posted 12/28/2009 2:59 AM (GMT 0)
stutterbug today i was just sitting here and it was happening- so i guess its not just a movement thing -i am almost always keyed up so maybe thats why its happening more- you know it means A WHOLE lot to know someone describing the feeling too- because often my head will twitch as well. Just a slight twitch but i know i've posted about that before too- i think i called it "head tremors". Anyway thank God i have my appt wednesday and will actually start something under a doctor's care- I never posted about my igenex bands on the forum- i just realized-

I am CDC positive with bands IGM 23-25, 31 IND, and 41. My CD 57 is still pretty high so i wonder if that means its a more recent thing- i think it was like 153.

stutterbug have any of your medications made your twitching/spasming stop? I wonder how starting treatment will effect this... I am still so "up in the air" about whether to do the cowden protcol- this doc will let me- but i haven't heard enough from people on it- I feel so confused about whether to do abx or natural. I really can't do the natural on my own without some guidance -i ended up bringing my blood pressure down with trying to do things on my own.
Posted 12/28/2009 6:27 AM (GMT 0)
stutter- also how long ago did you start noticing the tendon involvement? Did it start after any particular abx or anything? Do you feel it in your hands and arms? Sorry for all the questions- i just haven't run into many people who actually describe the exact same sensation of the tendons twitching. Thanks.
Posted 12/29/2009 4:40 AM (GMT 0)
I have had this twitching for a very long time. I always thought I had aquired a nervous twitch, becuase it always go worse when my CNS was stirred up. During times of stress and anxiety.- - - it did get worse when I was on treatmetn. I was pretty severe then. I was on doxy and flagyl.- - -I have had LD for 29 years now. I am going to see a neurologist soon to see if I have plaque on my brain. - - -I dont expect anything to really change. I think my nervous system is permanently damaged.

Posted 12/29/2009 7:08 AM (GMT 0)
stutter- the encouraging thing about your post to me is that you have had this twitching a long time- i know that is not pleasant for you but i have been worried that my tendons might actually tear from all this action- i totally understand you on thinking your CNS is permanently damaged- i think that a lot and i haven't even started abx yet. I suppose doing the oil of oregano or the herxing from the humaworm i did could have set my twitches off- I first noticed it on the humaworm- in my fingers- but more than that i am an anxious wreck so i don't expect they will calm down a lot without a little assistance from an anti anxiety med.

When i went to see my sister in the ER- right after her car wreck on christmas day- i was twitching absolutely EVERYWHERE. That is when i thought it might be increased by stress. To destress right now is a real challange for me as im sure it is for most people with lyme. Especially since i'm worried about my kidneys and what damage may have been done..

I do not know that you will find anything on your brain- but i understand the need to check- i feel like i must do the same my MRI feels like years ago already and i wonder what may have happened in the last 5 mths.

I do worry that my tendons are damaged as i can feel them spasm sometimes when i lean on an arm a certain way- but there is no rhyme or reason- sometimes i can lean on my arm and this does not happen. doing absolutely nothing can set it off. taking my blood pressure can set it off. Thank ou so much for answering my post ;) you helped me more really- i feel so alone with some of these strange symptoms.

Have you asked your LLMD or doc if there is something to help calm the twitching or the CNS?
Posted 12/29/2009 9:21 AM (GMT 0)
My twitching, spasms and jerks get worse with stress. I noticed that my head usually jerks more often when I'm stressed or on treatment. I also get spasms in my fingers and hands. Sometimes my thumb moves back and fourth on it's own like it is stuck. When I went to my Daddy's funeral, my arms, fingers and hands started jerking and spasming. I think stress does a lot to the body.
Posted 12/29/2009 11:39 PM (GMT 0)
I cant imagine how hard that was for you cajungrl, its impossible in some situations to not feel stress- i felt my body go nuts at my grandfather's funeral. I really do need to learn some destressing steps- my head tremors are starting to be noticable- one regular doc actually asked me if i was alright during one and i was thinking- do i LOOK alright?! So much for non lyme literate doctors.
Posted 12/30/2009 1:13 AM (GMT 0)

finding721,

I had twitching to. That's how the insomnia started. I'd fall asleep and my leg would twitch bad and keep me up. I'd be driving and my left leg would start. Then I felt like my whole body was twitching I thought I was shaking the table or bed.  Once my chiropractor/nutritionist recommended Magnesium at bedtime. I'm not sure if you need to talk to your doc first with regards to your blood pressure.  He also checked by saliva for my cortisol levels which turned out to be pretty high all day.  With lyme I started to experience extreme anxiety like never before that my primary wanted me to start antidepressants. I refused because I was afraid of all the side effects.  My chiropractor/nutritionist said he was not from the school of antidepressants. Turned out I didn't need them and recovered without them. My anxiety and twitching disappeared.

-phillypina

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