How do you do this.

Kathleen, as I've said before....I'm right there with you.

I was only able to work today because they let me work from home. My vertigo, double vision, blurry vision, nausea, etc, etc are completely OUT OF CONTROL. I have to be in a dark room with minimal noise or I feel like I'm going to upchuck.

Plus I'm in a lot of pain in my rib cage and upper back....hurts when I breathe deeply or move.

One thing that helps me is to talk to people on the Chronic Pain forum here on HealingWell. They deal with excruciating pain on a daily basis and can give you lots of tips on how to get through it without losing your mind. They are a good bunch of people, just like everyone here on the Lyme forum.

Does ice help? Or heat? Can you take a long hot bath? Do you have pain meds? Will your doctor prescribe a different med if your current meds aren't working on the pain?

I wish I could be of more help!!

Sending prayers and ((((hugs)))) your way......
JoAnn

I'm afraid to let work know I'm still sick (four years later).

Gee - Sorry I forgot so and so's name - I have brain fog. Where's my desk again? Right, I've been here for nine years and all of a sudden I forgot how to answer the phone.

You have brain fog? Maybe you shouldn't be working if your brain isn't working so great.

But I need this job - I need the insurance - I live by myself.

I just keep taking meds. If something makes me herx too bad, I stop taking it and take something that just keeps me functional. I've been breaking out in lesions - that's really depressing. I just wish my headache would stop. I felt great last month - what the heck is going on? I hate this disease. I hate what it does to you, I hate what it does to me.

Victoria (who is still at work)

Don't know if it will help but have to share what seems to be helping me.  I have cut out sugar and starting taking lithium orotate and Q10.  The anxiety is the best it has been in literally 4 years.  I feel better too.  I had no idea I was having sugar problems (which is apparently common in lyme - I was undiagnosed for 4 years despite my valiant effort to get docs to listen to me) as one dr. did do glucose testing but from what I understand you can test fine unless you have the more definitive test where you drink the sugary liquid.  Lithium orotate is supposed to help with lyme toxins and the brain, Q10 for the heart.  My heart palps have all but stopped and my head pressure is gone.  I shall see if it continues but perhaps a simple enough thing to try.  FEEL BETTER!!!

my heart goes out to all of you, and especially to victoria cuz i can associate with her. i live alone. i need to have to work to need insurance. and to buy meds, and i need work to even be present in the country where lyme *can* be treated.

today in 70F, with 3 layers, i was still in chill, and no fever. and today at work i had sweating armpits profusely. no brain fog yet. no GI yet. but who knows whats coming next. i still don't know what it's like to be herx or may be i've been herxing just have no idea. with every passing day i want to introduce new symptoms and sometimes take away the old symptoms, only to realize, they come back with new ones attached.

Nasalady:
if you have lyme, i'd DISCONTINUE prednisone RIGHT NOW! don't do this to yourself but again ask your doc why he has put you on it in the first place.

The anxiety is a common herx effect.

Just one thought - do you work for a large enough company that you have FMLA (family leave). If so, an intermittent family leave might be a big help in managing those bad days. Your HR dept. can answer questions about FMLA. There will be a form for your Dr to fill out.

If I had the choice between the knee pain and the nausea/panic/GI stuff... I would take the knee pain. Luckily where I work, my hours are flexible. I will go in for a bit on Sat to make up for yesterday.

I am exhausted. I feel like this battle is hopeless. I stopped the plaquenil last night as I think that is what is causing the latest symptoms. I cannot get another knee injection until March so I will have to deal with the pain until then. Ice does help. I go through epsom salts like crazy. Wish they sold bigger containers.

Thanks for all the input. I certainly don't feel alone when I am here.

Kathleen

Can you use regular vitamin D from a drugstore?

Victoria

vicparis said...
Can you use regular vitamin D from a drugstore?


Victoria

Well, it's important that you get the vitamin D3, not just any vitamin D. Have you been tested for this yet?

Gary

It is best to have your Vitamin D tested by a doctor, that way, you know how much Vitamin D you need. Vitamin D-3 is best to take.

I don't know if I've been tested. I can ask when I go next month. I'm gonna be in trouble because I didn't follow through with my lab stuff from two months ago. The lab used to be so convenient - just upstairs from my LLMD - then they moved down the street. I always go on my lunch break. I take the bus and then walk back to the office through China Town (I work in downtown SF). She's really good about testing - I'm just really bad about remembering.

Victoria