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What is it about Lyme disease that makes doctors so afraid to believe it affects so many people...

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Lyme Disease
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Posted 2/13/2010 1:13 AM (GMT 0)
As my journey into the world of Lyme disease progresses one thing stands out above all others....Doctors act like we are trying to convince them that we have been invaded by aliens. What makes it so difficult for them to see what is right in front of there noses? They seem to be willing to bet that it is anything....ANYTHING...as long as it isn't Lyme.  For the most part all people want is a proper course of antibiotics. It isn't as though we are asking them to make marajuana legal or prescribe dope. I just don't get it. My doctors are absolutely convinced that it isn't lyme-even after I tested positive. They say it is fibromyalgia, and lupus, and anxiety, and chronic fatigue compounded by the stress of daily life-working mom with three kids. Maybe it is a little bit of all of it...but maybe those things were brought on by this very complex bacteria. What harm is there in treating the Lymes? Are they afraid of losing someone that they can keep coming to them for a multitude of pharaceuticals? Do they try to keep us as chronically ill patients?

I really just don't get it. Someone please enlighten this virgin lyme carrier to the reason the medical community has turned they back against something that seems so easy to treat and causes so many poeple to become soo ill.

Very Curious,

Cass

Lyme +

ANA +

EBV +

Posted 2/13/2010 4:09 AM (GMT 0)
It's a pretty complicated question to answer. However, if you want to understand why doctors are reluctant to give a lyme diagnosis to those of us who have lyme, this is a good place to start:

http://www.ldsg.org/index.php?id=71

http://lymemd.blogspot.com/2009/02/war-idsa-vs-ilads.html

http://findarticles.com/p/articles/mi_m0ISW/is_286/ai_n19170415/

http://lymebook.com/blog/news/idsa-ilads-controversy-review-guidelines/

http://lymebook.com/blog/politics-patient-activism/idsa-vs-ilads-lyme-controversy/

http://www.townsendletter.com/July2009/idsa0709.html

http://www.ilads.org/news/lyme_press_releases/60.html

There's much information about this if you do a google search on the subject. But the bottom line is--it's all about politics and power.

Gary
Posted 2/13/2010 4:30 AM (GMT 0)
1. Testing is faulty, and out dated.
2. Most want the support of blood work, even though Lyme is a clinical DX.
3. Most refuse to think outside the box, they go by what is in their hand book, or what their colleagues tell them.
4. Medical school training on Lyme, and associated diseases is about as long as this sentence.
5. Fear of loosing their medical license, due to IDSA guidlines

This is just the tip of the iceberg, anyone else like to add to the list??
Posted 2/13/2010 1:13 PM (GMT 0)
It's all about the money. That is, the original folks who created the guidelines for the CDC/IDSA were in it for the money...

And insurance co's don't want to have to pay for long-term abx.

And fear - fear of the effects of long term abx (i.e. "super bugs" - germs that are abx resistant).
Posted 2/14/2010 9:34 PM (GMT 0)
I think Razzle is right. greed and money $$$
Posted 2/14/2010 10:31 PM (GMT 0)
I think it's because some doctors interested in successfully treating lyme have lost their licenses.
Posted 2/15/2010 4:26 PM (GMT 0)
My goodness. I am amazed. Thank you for all the great links and info!
Cass
Posted 2/15/2010 9:50 PM (GMT 0)
The book, "Cure Unknown," by Pamela Weintraub, delves into this issue some also.
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