LLMDs: I need help!

 And a lot of stuff is better.  And now, some stuff is worse.

It is entirely possible (I think) that I have kicked the lyme itself, I don't know. What I am left with are recurring periods (usually every afternoon) of unbearable depression, that come on suddenly and swiftly. Given my other symptoms (I already know my thyroid is low), I think a lot of my symtoms might be due to adrenal fatigue.

What is anyone's opinion about the possibility of being cured of Lyme, but the need to treat some damage that the Lyme caused?

Can anyone please remind me who I can email to look for LLMDs in my area?  I am completely wiped out, financially and otherwise. I have nothing left and am declaring BK.  I must find a Dr who takes my insurance.  

Razzle, no I really have no reason to believe any possible co-infections were even addressed.  My test showed babs, was not tested for Bart; and RMSF & ERLIC were negative, altho these were just titres test and the LLMD said not reliable.  So I just don't know what to think about the co-infections.

My daughter in law took a trip to Ethiopia and had to take Doxy for several weeks prior and after as a preventative for malaria. WEll, since Babs is a malaria-like protazoa, might Doxy not be effective against Babs?  I had a few weeks of Doxy (as a preventive for Rocky Mt after a new tick bite)  I know that most of you believe Babs is much more difficult to kick, but a girl can dream....

CajunGrl, thank you so much for your concerns, but please do not worry about me. I will send you my email, tho, OK? I believe that all of you are suffering so much more than I am, at least at this point and it is so discouraging to see so many of my 'old' pals on here, still fighting this rat bastrd.

I know that the Amox did something -- I don't know for positive that it succeeded, but I did go thru a period that the Lyme was either gone, or gone into C form or hiding.  But recently, and only now and then, I'd fear it was creeping back up -- I'd get that throbbing, aching, buzzing feeling. But it's never set in or taken hold. So I don't know. Maybe the Amox enabled my immune system to fight?

But, oops, just remembered:  I have red things all over my body. REd spots. Some are scaly, some are just marks. All over my arms and legs. I recall something like that in late lyme back when I was researching...

I know my thryroid was/is low and I haven't been treated for it and need to get into a Dr. I am also 99% positive that I have adrenal problems, after researching that. And I believe that is possibly what is causing the unbearable depression that visits almost every afternoon, bringing that nasty 'S' word along w/ it. I have every symptom of that and the LLMD I saw last summer noted that on my blood test. But he gave me a script for something weird that was extremely expensive and I did not fill it. 

I can't tell you how many days that, if I didn't have dogs, I would have checked myself in to some kind of hospital -- that's how messed up I've felt. And I know that it is physical. It comes on suddenly w/ no explanation and it is literally unbearable.

 JY Willy -- where are you? I am in Shawnee, KS.  As I said, I have no more $$. Nadda. Zilch. I am declaring BK mostly so I can start building a little bit of a savings acct in case of emergency or vet emergency. A dental emergency and vet emergency set me over the edge and I'm literally wiped out.

I have been on a local LLMD (who takes my ins) waiting list for a year now.  So I'll keep waiting. Meantime, I'll at least get in to a new PCP in hopes of treating the adrenal/thyroid.

I believe that if I weren't hypglycemic, I might be anorexic (but still overweight because of thyroid). I have no interest in food (except breakfast) and hardly ever feel like eating.  I get kind of aggravated when I feel the need to eat, because I don't want to mess with it.

I still feel like the Lyme is possibly gone. I understand it usually sneaks back up, but I want to think positively on this -- much of my energy has returned and I don't have that constant sick feeling. My neck and back pain are still bad, but I believe the Lyme damaged them and there may never be improvement, unless I try some yoga or something.

Meantime, I still megadose C, D, garlic and take a bunch of other vites.

GWB, I will email you for a list of local Drs, OK?

I cannt respond to everyone on here, even tho I do read your posts and I do care. I am pulling for all of you!  And I would like to say that I do believe that Amox, if you can take it, is effective. I suffered while on it, either depression caused by the Amox, or was herxing. I got relief when I stopped, so who knows?  I realize that we are all different.

I also want to let everyone know that we are not the only ones in this crappy medical boat.

My father has been ill for over 2 yrs now and the Drs say they can't find anyting wrong.  And my daughter has 1 leg that keeps swelling up and causing pain -- this has been going on for months. She has wasted money at the ER when they did nothing for her. Been to her regular Dr, who sent her to a vascular surgeon who ordered 3 different MRIs, but has never returned her calls regarding the results. She is to go back to this Dr to remove a lump under her armpit which she has had for at least a year and none of the Drs will even bother examining it.  She went to this 'specialist' because of this lump, and another one that was infected in her groin area.

This Dr never examined either lump, never looked at them. The Dr was with her literally about one and one half minutes regarding the lump ('probably an ingrown hair infection') in her groin,  and she had to call the Dr back to her (as she was walking out the door) regarding the lump under her armpit.  When she did this, the Dr barely turned around to say, 'The abx I'm giving you will take care of that as well.

 None of the Drs communicated w/ another, none of them tried to put anything together.

Lumps near lymph glands, swollen leg, hmmmmmm.... We finally got the idea she needs to see an edema specialist --  perhaps lymphodema -- this, after about 6 months of nothing. And we are figuring this out, NOT the Drs!

It is not just Lyme. It's everything. It's all a mess!

CajunGrl:  the feeling and the depression that overtakes you sound so much like mine. It is literally unbearable.

 I HAVE to select a new Dr. (PCP) Last year, I started w/ a PCP who knows enough about Lyme to order a Western Blot and a few other tests like thyroid.  He did not know enough to diagnose or treat (I'm not putting him down -- he admits to not being qualified on Lyme) He knew enough to refer me to an LLMD.

 I went to this LLMD twice (no insurance) who ordered another western blot, which the lab neglected to do, the CD57 and other hormone tests, amongst others. He is the one who gave me 2 months of 3500/day Amox. I could not afford to see him again, or get the further tests he ordered, not covered by ins.

After much begging, The Lyme Ass. of Greater KC gave me the name of a practice covered by my insurance 'that was knowledgable of Lyme". I had to get my PCP changed to go to him. He was horrible and I have no idea where this referral came from, nor did he. In fact he laughed in my face. He said no one there was knowledgable of Lyme because Lyme is so rare.

I asked him, why, if it is so rare, are all the Lyme Drs overbooked. He had no idea. He would not listen to me and went off on his own tangent.

So, CG, this is my question for you, until or in case I never, find an LLMD, (say, Lyme aside) -- I've got to get in to see someone about my thyroid and adrenals. Should I choose a new PCP (I liked the first one) or find a specialist, like an internal med DR, as  you mentioned?  I can see a specialist w/o changing Drs under my insurance and w/o a referral, it just costs a little more.