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Mytral Valve Prolapse anyone???

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Posted 3/26/2010 12:17 AM (GMT 0)
I just got the results of my echo cardiogram and I have this Mytral valve Prolapse. Anyone dealing wtih this too. Can you tell me anything?? think LD caused it??
Posted 3/26/2010 6:43 PM (GMT 0)
I was told I had it. All in all, what they tell you is if it is not acute, then it's not going to kill you, so live with it!. If you do some reading, you'll find that managing it, is like managing lyme disease. Avoid stress, exercise moderately (as in, do exercise but don't over do it), and avoid stimulants like caffeine, ginseng. Get good rest, and if your heart is acting up, sit down and breathe.

Keep well!
Posted 3/26/2010 9:03 PM (GMT 0)
Achieving grace, thanks for the reply. I have been scared. You know, I have said there is something wroing with my heart for a long time. I know now.
Posted 3/26/2010 9:54 PM (GMT 0)
My mom has this and I was told I didn't, but the tech showed me the blood that was coming out of my valve and said I did have MVP. So, who do I believe? I haven't gone back and checked again but I do have all of the symptoms of it. I was told that there was nothing to worry about. That the amount of blood that was coming out was very minute and to do what was posted above....avoid caffeine, etc.
Posted 3/27/2010 3:52 AM (GMT 0)
Thank you Cajun girl.
Posted 3/27/2010 5:33 PM (GMT 0)
I have it too. It is pretty common among women. It is nothing to worry about. I was told I had it when I was 20 when I was dealing with lyme symptoms causing rapid heart race and palps. I am almost 35 now and other than the occasional skips it isn't an issue at all. It is something to keep an eye on as you get older, but my case was mild and I think 1 in 4 woman actually have it. Something along those lines.

You will need to take antibiotics before going to the dentist and any type of surgery, but other than that, it won't change you life much.

I've even been told I have the perfect heart murmur. Doctors have had their students come in and listen to the perfect click as they called it. At least if you're going to have it, it should be a perfect one. :-)

Posted 3/27/2010 6:18 PM (GMT 0)
JeminiJ: thanks for the info.-- Do you have chest pain or tightness?? Should I go see a cardiologist?? I had the echo cardo. done through my GP.
Posted 3/27/2010 6:43 PM (GMT 0)
Yes.  See my signature and first tick bite.

Posted 3/27/2010 6:59 PM (GMT 0)
Anyone else have the feeling of a skipped beat? I feeling like my heart skips a beat, then gives a big pounding one and it feels like it's in my chest. Btw, I feel like I am the only one that never gets a diagnosis. My doctors always say, "We think you have this" or 'We think you have that". I never get a definite diagnosis. I wonder why the tech said that I did have MVP and I SAW the blood leaking out, but when I call them to ask, the nurse tells me no? This frustrates me so much.
Posted 3/27/2010 7:57 PM (GMT 0)
+LYME:: Did you see are cardiolosit??? You think I need to see one???
Posted 3/28/2010 1:45 PM (GMT 0)
I had a cardiologist when I first found out. I went once a year just to keep an eye on it, but I honestly haven't been back in about 10 years. I have had a # of EKG's over the years during hospital stays and ultrasounds on my heart (while pregnant) so I know things for me haven't changed in almost 15 years of knowing about my MVP.

I do also get the heart pounding. It's as if my heart stops, then starts up again with a really hard thump (this however, isn't the case), it just feels like it. I still get palpatations and rapid heart racing but it is nothing that harms you, just feels really scary. I have learned over the years that this is just "normal" for me.  Exercise is really great way to help with these too.

It can't hurt to have a cardiologist and get a yearly check-up just like you would a physical.

Posted 3/28/2010 3:07 PM (GMT 0)
Stutterbug,

I was dx w/ mitral valve prolapse over 30 years ago by my family Dr. Before I ever complained, he heard the 'swoosh' and the click thru his stethoscope, then worked a little harder on that, then I had something like a sonogram which confirmed it. They showed me on the image, but I couldn't tell -- it was just so amazing to me that I was viewing my own heart!

AT times my heart pounded so loud I thought you could hear it, felt like it did flip flops, had palpatations and racing. I was into some lap swimming and hard walking and feared I was about to have a heart attack, but DR assured me I was OK.

Dr said this would not kill me (tho I was supposed to stop caffeine and smoking). He put me on beta blockers for a time -- he said these were not necessary in my case because I did not have angina. Some people w/ MVP have angina. I didn't like them, they caused bad insomnia and he said it was fine to stop taking. He said no treatment was necessary except for abx before surgery and dental work.

Back then, when trying to research this (NO INTERNET BACK THEN!) I did see that in very rare instances, it can cause sudden death. I asked Dr and he said that was true, but that it was very rare.

I have taken abx before all dental work ever since and my symptoms are not near as bad as they were back then, tho I do now and then feel like my heart has done a summersault or is about ready to jump out of my chest.

Since this round of lyme, I do have mild chest pains, but I am no where near ready to have my heart looked at again. When Drs listen to my heart, they don't say anything, so I dont' either!

OH, and CG, yes, I frequently feel skipped beats and/or double beats.

Posted 3/28/2010 7:45 PM (GMT 0)
Thanks Lyme. I get the racing heart and flip flop feeling too. I guess I need to go back and have it checked out again. My mom(has MVP) complains of the same symptoms that I have so I'm sure I have it too.
Posted 3/28/2010 8:52 PM (GMT 0)
CG, MVP is fairly common in woment. But I also find it listed in many lists of Lyme symptoms. So I had a feeling that mine may have been caused by that nasty tick bite in 1972. Who knows?
Posted 3/31/2010 3:31 PM (GMT 0)
What are the symtoms of MVP?
Posted 4/3/2010 1:05 AM (GMT 0)
Is MVP a side effect or symptom of lyme? Is it heriditary?

I have a friend who thinks he has inherited MVP from his Mother. She is in early 70 or late 60's. She has many typical symptoms of lymes and appears very fragile and all the alergies. They are origionally from Conneticiut.
The son who is now in his early 50's thinks he inherited MVP from his Mother but he seems to be like on a time delay with his mind. maybe even ADD and can't handle stress. He has a low stress business and plays guitar a lot and sings in a band with his buddies.

now that I know what I know about lyme I suspect the Mother has it and thinks it is fibro and all kinds of other things.

is MVP herititary or is it more possible that they both have lyme? When you inherit lyme is it possible to go through your whole life and not have full blown type symptoms??
Posted 4/3/2010 3:29 AM (GMT 0)
bucci, I surely do not know the answers to your questions. I am not up to date on mitral valve prolapse. I have not seen a Dr regarding this for almost 30 years when I was Dx. Thus, I added it to my 1972 tick bite in my signature, because after a lot of research on lyme I noted that Lyme can cause MVP and/or cause heart problems. And the MVP just happened to be diagnosed within a few years of a really nasty tick bite that made me extremely sick.

I do not know if it is hereditary, but will say I have a very large family and no one, that I know of, has MVP. My mother did have a heart condition appx 23 yrs ago that almost killed her. (I do not remember what it was, it was whatever killed the friend in 'Beaches'). She (Mom) is now 80 and very healthy. I'm not sure, but I do not believe that her illness was related at all to MVP.

Bucci, from what I am learning and/or understanding about Lyme (AND other diseases), I have to say that from what I have found, Lyme can cause MVP. However, that does not mean that MVP indicates or diagnoses Lyme.

Mother, I think if you'll look at the previous posts you'll get a good enough idea of the symptoms of MVP. I did not go to my Dr almost 30 yrs ago w/ the complaints, because I believed my smoking was causing me to feel as if I was going to have a heart attack when preparing to swim or walk. That or my hypoglycemia.

But my family Dr is the one that suspected it after listening to my heart. AT least back then, a stethoscope was not enough to Dx, so he asked me to have an ultra sound. Even tho I did not fully understand it, I did see that one of my valves did not close all the way after the blood was rushed in or out. That is all that it is. A valve does not fully close after the blood has rushed in or out.

Back then, my Dr told me it was fairly common, esp amongst women. I think it was 1 or 2 in 10.

Symptoms are: Pounding heart ( you can almost hear it!), palpatations, and very weird but distinct feelings as if your heart has done a sommersault, has skipped a beat or 2, is racing, or feels like it (heart) is about to jump out of your skin.
Posted 4/3/2010 6:17 PM (GMT 0)
I talked to my GP yesterday and she is sending me to a cardiologist becaus i Have tightness and a dull ache all the time. so, we will see.--- I am a person who stutterers and I carry alot of tension in my chest. Physical stress is being put on my chest and heart when I sqeeze out the words. so, I need to go see if this tension is causing anymore problems, if me heart has blockages , or if the MVP is really severe and the stuttering is causing it to leak more . We will see. -- I almost lost consciousness in her office yeaterday. The strain of speaking, along with the heart, I guess I wanst getting enough oxygen to the old brain!! I dont know. I will see when I talk to the cardiologist.
Posted 4/5/2010 2:46 PM (GMT 0)
Stutterbug, please let us know what you learn. ALL kinds of stress and/or anxiety will cause the MVP symptoms to be worse. So you could be on a circular merry-go-round -- one feeding the other. And as you know, Lyme and Babs can cause stress and anxiety too, and Lyme can cause the MVP.

I think it might help if, until you recieve the diagnosis, try to calm your mind a little, knowing that if it is MVP, it is most likely not causing you damage unless you let the anxiety about it take hold. It is just very uncomfortable and sometimes a little scary.

That's great that you're seeing a cardiologist, too. You definitely do need to ensure you do not have blockages. I will hope and pray that you do not!

For those of you w/ hypoglycemia -- this aggravates MVP as well, and these can both be caused by lyme. Well, and actually, you can see how MVP would aggravate hypoglycemia as well.

PLEASE KEEP US POSTED!  Lyme can cause other heart problems, so we are concerned enough to want to know!!!

Posted 4/14/2010 7:20 PM (GMT 0)
Yes it was found a long time ago when i first got sick boy we have some common symptoms is it
stutterbug. I was told mv prolapse will not hurt me but it was uncomfortable he gave me a beta blocker and it was like heaven.
Posted 4/15/2010 12:18 AM (GMT 0)
I just had a stress test yesterday. Just to make sure that my heart is completely fine. They had me wear a heart monitor for 24 hours. I wll get the results on Friday. They also did an ultra soound of the arteries in my legs to make sure they are clogged because I have SO much foot and leg problmes. -- I am hoping everything is fine and I can cross this off of my ever growing list!!
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