doubt is like a symptom!!! help

Okay, can anyone relate to this?   First, I know my body very WELL.     I have been paying attention to what I call mild – or tolerable flares.   I decided to start using some of my antibiotics that I had stashed for this occasion.   (not expired!) and work on getting treatment in the mean time.   So I am on just a 5 day of azithromax.   I also have tetracycline and minocycline.   No ceftin unfortunately.   Timeline: really ill sep 04- to - july 07. Then did 90 day couse of Ceftin.   Had a baby and felt super- myself again.   Symptoms returning, off and on… but so I could not be sure enough about them I started to think , oh it was a cold, or I am tired.   Thinking maybe this is how I feel now when I am tired, or have a cold.     I find myself back and forth- - back and forth.   I have it – I don’t have it.   If I don’t have it what do I have?   If I do have it what do I do?   This think makes you a mess in your own head.   Now that I believe the symptoms are getting stronger, I question – did I cause them to return stronger?   I found this site not because I was having “strong” symptoms.   Or did my mind lead me here because I sensed it was inevitable?     I was getting worred in Dec, I went to Doctor and started new.   He’s not LLMD but funny thing is, when I went to that appt. I decided I would not mention that I believe I have Lyme, and so we talked and told him what I felt, and the guy – says, have you ever considered LYME?!   We did w. blot though as I look at results I don’t think he actually did blot but a pre-qualification to blot… not elisa.   I don’t know what it is. Anyway.   My question, for those of of you who never had lyme definitively diagnosed, or should I say your tests do not show you have lyme and have ruled out everything else… MS,for example, or were diagnosed with CFS, or EBV or CMV for example… do you feel back and forth and sometimes like your own mind is at fault?   I came to a point before where they tried to tell me it was anxiety.. and I finally said okay fine--- treat my anxiety!! Though I knew it was not me but I was willing… and we never had to because I stumbed onto antibiotics which CURED me of all symptoms.- then     It’s crazy, I can see my mind going through the same motions of what I did before… I don’t want to go there again! Help any comments or recommendations?!     Also, I told someone yesterday that I believe I have lyme and then I worried and worried like- - I am liar.. or something.   What is this about ?   Why do I want to keep it secret to me and only my husband and his family since they know lyme disease since they have experienced it first hand.  

i didn't read anything but your title"doubt is like a symptom!!! help" and just thought I'd let you know... I was (maybe still am) in denial for the past approximate 6-8 years. I thought I'd get "it" all back... the job, the friends, the energy, etc., etc. Now, for the past 8-12 years, I ask myself, "OK, I ain't getting it "all" back, what is my life supposed to look like now?"

I don't know the answer, he1/, it took me 8-10 years to figure out the question!

Thanks everyone for your reply and reassurance!       The mind sure wanders when without positive diagnosis about what if I am wrong and it’s this, or that.   (even tho most everything else has been eliminated)   I am gonna stop the mental roller coaster cycle I put myself thru and give myself a break this time.   Instead I am trying to reach a LLMD in MN that I was referred to by MN support group and also have already ordered the Igenex tests.     I don't WANT LYME disease but if i have it- I WANT a diagnosis!!!  It's confusing because i keep hoping for a positive test!  Weird right, but i guess that's how strongly i feel i have it.  of course i want clinical diagnosis and treatment regardless of test but, i'll always wonder.  the key is i don't want lyme disease but if i do indeed have it, i wish a lab could support it.    

Good for you for wanting to fight. Are you not seeing a lyme literate doctor. As you have had the disease for awhile it will take someone with experience to treat you so that you make a full recovery.

Nicki33,
Try taking the Tramadol with a couple of ibuprofen. I have the same problem, gives me a terrible headache, but it does knock down the pain very well for me most days - when the pain is really bad it doesn't help as much, but it's better than nothing! Good luck!

God bless you all -- your searching and your fighting is amazing. The grief that you suffer is amazing, as well. Here is a question and I wonder if it could be the answer to some aspects of Lyme:
This does not apply to the physical pains you are suffering, but I am talking about the mental, emotional, and cognitive aspects:

Perhaps this should have been a different post, but I thought about this while reading others' suffering above. Maybe this must be treated on its own, maybe treatment for Lyme does not address the damage done to our adrenals. And so maybe some of you are actually getting better from the lyme, but left w/ damage done by lyme?

Adrenal fatigue. I KNOW that I am suffering w/ this. Given my history, (30 yrs hypoglycemia, stress and emotional episodes, each manifesting worse than the one previous, etc etc) the lyme and how I feel now, it seems impossile that I wouldn't have it.

When I had an LLMD, he noted it in my blood work. When I look it up, I have almost every symptom and I relate to so many things, many of which can be attributed to depression, but many which differ from classic depression. A friend at the dog park loaned me her book by JW on Adrenal fatigue. (and yes, once I have survived the blackness that descends on me each day, sometimes, not all the time, I am able to pack up my dogs and take them out-- I have to)

According to the 'test' in this book, mine is severe. The list of symptoms describe me to a T. You know, I REALLY got it when he described difficulty in making decisions, even the simplest, like what to wear.

This sounds SO stupid and petty. But seriously, I suffer standing for as long at 15 min at a time, staring at my closet, unable to pick out something to wear. My mind feels blank, the decision seems impossible and insurmountable. This is one reason I pack the same foods to take to work each day -- so I do not have to think about what I will eat.

What is disappointing tho, is the same ole, same ole. Most Drs don't believe in it, they do not know how to accurately test for it, and they do not treat it. This has been discussed here before. I hope to find some answers in this book, once I can get thru it -- I can only handle a couple of pages per day.

What I'm getting at, is adrenal fatigue seems to account for most of the symptoms I have now, except for the back and neck pain, which I've learned are progressively worsening scoliosis, and the occasional return of sore, throbbing mouth and muscles, which could be lyme, I don't know.

I had hoped it would resolve, as the lyme resolved, but evidently not. JW's book even states that if you also have low thyroid (which I do and most of you also probably do), the adrenal fatigue should be addressed first.

I am wondering if it is possible that many people who have received lyme treatment are still suffering from adrenal fatigue which has not been addressed. Adrenal fatigue describes almost everyone's symptoms here, from the depression, lack of motivation, anxieties, lethargy, feelings of hopelessness, thoughts of 'S', cognitive issues, etc etc etc.

Since Lyme causes adrenal fatigue, it would only make sense that these present as symptoms of lyme.

I may still have lyme, I don't know. I am still on LLMD waiting list, but I can't keep waiting to address the issues I'm having now which are ruining my entire persona and life. (thyroid and adrenals)

I know many of you are receiving treatment and/or are working on the Adrenal fatigue aspect. I would like to know if you if you are progressing any, or experiencing any improvement. And do you believe that I will necessarily need alternative medicine to get a diagnosis (even tho LLMD did) and any kind of treatment?

This would explain to me WHY my depression feels so different and so physical, and why it hits me out of the blue, often at the same time each day.

In some way, I hope this helps others to think about this and this possibility. Because if you have adrenal fatigue, then abx and other lyme treatments may not help this. And so you may continue to feel hopeless. Has this been discussed by anyone?

Bad tick

  Hi I understand. I lived 18 years thinking I had MS. In a fight my nero said its like only a lil ms, Now At the time I couldnt walk lol, so sick! I read a dug up info I took western Blot, Boom Posotive for babesia! Now I have lesions on My mris last 18 years also.

It was tuff to swallow information, I seen LLMD last year and he confirmed the Lymes.

 Its really hard to let it sink in.....But as most my help has come from people on here, I agree see a LLMD. What ever it takes just do it! Atleast you can feel better about whats going on and get the truth from other sourcse

 Your in my prayers, And You know what, YOUR NOT ALONE!

Big Hug

 

The jury is still out on whether or not I do have Lyme disease. But only six weeks in, I seem to question myself quite a bit. Due to the up and down symptoms, it just makes you wonder. Just going to keep taking my meds and see what the test says next week.

 

Jeff