What is the Worst thing about Lyme's?

I think the worst thing is the stigma of being nuts. Since so few people know or understand lyme, I myself have found myself constantly trying to explain it to everyone, hence coming across a little strong and looking like I am a looney bin or hypochondriac. I really don't think the majority of people believe there is anything wrong with me or at least not to the extent of how I feel. Its one thing to be sick or struggling mentally, but to be doubted is horrible. As far as symptoms, I'd have to say the anxiety. To not be comfortable in your own skin is a terrible terrible thing.

Yes, Lyme is taught in medical school, but it is doctors firmly entrenched in CDC/IDSA dogma who write the material that is taught.

I agree that the worst thing about Lyme is doctors' lack of understanding and knowledge about this disease, which then has turned us into a stigmatized "somatoform" or "hypochondriac" population in the eyes of the medical field. The second worst thing about Lyme is the lack of insurance coverage for long-term treatment. And also the attacks on LLMD's.

It is my opinion that good quality research from respected institutions is the only way to overcome these things (the CFSID and AIDS groups have been able to do this...). The trick is convincing researchers at these institutions that this is necessary.

Ok, for the worst Lyme symptom itself, I'd have to say the ability of the bug to rob us of basic bodily functions (such as the ability to eat, or the ability to walk, or the ability to think clearly), often without abnormalities showing up on any tests (hence contributing to the idea that we're "nuts" even when we KNOW we aren't).

I think the worst part is looking totally fine to everyone else. I even know I look fine so to say I feel awful or don't want to get out of bed does seem crazy. Then I start to feel crazy. In fact, I have lost weight from this and I have more people now telling me I look amazing! So, as far as a solution to that? I don't think there is one. My sickness isn't going away and I look great. So it is like suffering in silence. The minute I start to talk about it I can see eyes roll. Just one of the MANY horrible things about this disease. And of course the not feeling good part. And when you do it is short lived.

lymesolution,

Not to be a skeptic, but I'm a skeptic. If you weren't selling something, why wouldn't you just make a detailed post here on the forum about what your proposed solution? If you are selling something, then your ambiguity and dancing around the subject make more sense. Please enlighten those of us (with moderator permission, of course) who are looking for answers what your "solution" is - specifically.

Thanks,

Worst part of Lyme for me is people that claim they have the "solution" to it all...even if someone does have an idea about how to "fix it", its not a one size fits all kind of disease...