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Mood swings and rage so embarassing!

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Posted 6/6/2010 2:55 AM (GMT 0)
Had a meltdown today which is becoming common while amongst my group of friends.  I am mortified and just don't know how to deal.  I'm starting to think I should just stay home instead of embarassing myself.  Anyone have any advice on how to deal once the rage sets in?  Of course 90 degree heat didn't help but my god the simplest things set me off. 
Posted 6/6/2010 4:30 AM (GMT 0)
I used to have those really bad and once it started, I couldn't stop it. Have you been checked for Bartonella? My Lyme doctor said that Bartonella causes it. I started getting better once I started taking Tramadol for pain. It is not considered a norcotic and works in the brain and for some reason, calmed me down a whole lot. You can't go in and ask for Tramadol for rages though so I wonder if something natural like tryptophan or something to calm the nerves would help.

I'm sorry you had to go through that. I know exactly how it feels. Apologize to your friends and explain that it's your disease, the heat makes it worse and you just cannot control it once it starts.
Posted 6/6/2010 1:53 PM (GMT 0)
springsjean,

I can definitely relate to the meltdowns, it is unfortunate that my wife usually catches the brunt of it. This has only recently become an issue for me as the frustration, stress and anxiety levels have increased in my life. I can tell you that when I was taking Gabapentin for my neuropathy, I had zero anxiety or rage issues. That med seemed to keep me in a neutral mood all of the time, I just kind of watched the world go by without a care. Since weaning myself off, I have experienced extreme highs and lows and a great deal of anxiety.

Fortunately for me, my wife is very understanding and appreciates my frustration with this illness. Sometimes we just need to take a deep breath, chage our mindset and apologize like Cajungrl suggested when the train goes off the track. Hope that you are feeling better these days.
Posted 6/6/2010 2:06 PM (GMT 0)
I can't thank you guys enough. I did just test positive for bartonella but haven't been back to new llmd since finding out. I go this week. I am on elavil for neuropathy and it is helping but the extreme heat really sent me over the edge. I really think people think I am nuts and I am on of those perfectionist personalities.

Thanks again. I really don't know what I would do without this site!
Posted 6/6/2010 4:28 PM (GMT 0)
springsjean,

Have you noticed any improvement with your neuropathy? I first started experiencing numbness last July and now have it over most of my body including my face which is very annoying. I don't know what is causing it and am beginning to wonder if it will ever go away. I feel that my neuropathy is progressing into muscle fatigue and weakness especially in my forearms and legs. Do you have any difficulty walking, especially after sitting for a while?
Posted 6/6/2010 4:34 PM (GMT 0)
I have had those 'lovely' flares as well. Fortunately I am a loner anyway, so there weren't many apologies that I had to give - other than to my wonderful hubby. He would stay clear of me when I would have those meltdowns & I would, quite literally, go out back & pick up a fallen branch & beat the livin' cr*p out of a tree!!
Posted 6/6/2010 5:33 PM (GMT 0)
Betterhealth, I have in fact seen an improvement in the neuroparty taking the Elavil. However, I didn't realize it was an antidepressant until about two weeks into it. I was getting burning pain on one side of my face and tingling down left side and stabbing in bottom of feet. It really seems be be better and my mind is not racing and I don't seem to be struggling as much with dealing with things. Strangely enough, I have also found that keeping a fan on me or being outdoors helps with the neuropathy pain a great deal.
Posted 6/6/2010 6:01 PM (GMT 0)
Glad to hear that you are seeing improvement with the Elavil. I had some improvement with the Gabapentin until it just stop working after about three months. Now, I'm just treating with the abx and not taking anything for the neuropathy. I'm hoping that the right combination of abx will resolve this for me. Good Luck! I hope you see continued improvement. Gary
Posted 6/6/2010 11:08 PM (GMT 0)
Traveler,

I really don't mean to laugh, but somehow, you make me laugh every time. I can just picture myself doing something like that, lol. This disease does a number on us.

How have you been?
Posted 6/7/2010 11:23 AM (GMT 0)
Hi all,

Springsjean, I suffered terribly from lyme rage episodes and mood swings and many times my family refused to talk to me (I don't even remember what I said but it must have been really nasty and terrible, I probably used curse words as well knowing me, yeah, the worse words).   After awhile, my apologies didn't work anymore, my family didn't want to hear them...

After I started Dr. J's protocol (I had first started with just the Borrelogen), I called up his clinic because I had another "lyme rage" episode and this time I became scared of myself.. I couldn't figure out why I was acting the way I was as this behavior was not me at all.  Hey, nobody better start teasing me now!  I only curse a little bit now and with good reason.  shocked

Some lady at the clinic told me what I was feeling and the way I was acting was normal if I have an "overload" of ammonia in my brain and suggested I take their Neuro-Antitox CNS/PNS formula to bind up the ammonia and get it out of my brain and body.   So I did and sure enough it made a huge difference!  

I'm sure there are other reasons for lyme rage episodes and mood swings but in my case it was the overload of ammonia.

Traveler, I'm smiling here too imagining you bashing the tree with a branch!  LOLOL! 

Denise

Posted 6/8/2010 1:58 PM (GMT 0)
Patti,

I have problems with noise sometimes too. Even when my husband or daughter talk a little loud, it bothers me. I have to tell them to lower their voices. When my poor dog walks on the floor and his nails make noise, it drives me nuts. It's very frusntrating for sure.
Posted 6/10/2010 2:21 AM (GMT 0)
The anger thing is new to me. It struck when I was at the dentist's a couple of weeks ago. His questions were reasonable, but I wasn't. I know he's not a lyme doctor. I know few people know anything about lyme, yet I expect the people in the health world to be better informed. It was the first time I'd seen that dentist, and fortunately did manage to tell him that I'm not that kind of person.

I've read the "Ammonia in the Brain" article at Jernigan Nutraceuticals, but don't see much there that I can use w/o help.

I pray for all of us. May the Lord guide us to good health.

Ginnia

Posted 6/19/2010 1:24 AM (GMT 0)
Anger is good if you can control it.  I was in a bad case of uncontrolled anger on a periodic time.  I could go on for a couple of weeks when I would loose it all.  I do not have that anymore.  I was given a perscription for Paxil 20 mg each morning.  I do not know how it helps me; but I do not loose my cool any more.  I have been suffering with anger most of my life until about a year ago when I was given that medicine.  I feel that I am cured; but I still have problems as you can see on my post today.  Keep in touch.
Posted 6/19/2010 4:30 PM (GMT 0)

CajunGrl said...
Traveler,

I really don't mean to laugh, but somehow, you make me laugh every time. I can just picture myself doing something like that, lol. This disease does a number on us.

How have you been?

Aww, heck, CG!!! I like laughter turn I feel better laughing than crying!!! smilewinkgrin

What was really funny was the look I would get from hubby when I came back inside afterwards!!! smhair

I must be doing better as I have survived having family staying with us for a week, my youngest sons' wedding, & a whole lot of driving!!!!

Thanks for asking!!!
Posted 6/19/2010 4:53 PM (GMT 0)
Traveler, you cracked me up, too. So far the 'rage' I often feel is sucked in -- probably not good, but because I have to. I work extremely closely w/ 3 total Bs at work. They are snide, rude, insulting, offensive, etc etc. As many 'comebacks' as I've thought of, I have decided I will NOT participate in that --even when they insult me to my face, which is frequent -- I have decided not to let them make me become like them.

Anyway, SO, can't tell you how many days, as I'm getting ready to leave work, I plan to storm into my place and start destroying and smashing everythng in here. I visualize it and it's sweet. (as I feel overwhelmed w/ 'stuff' -- material things, as well). The only thing that stops me is my dogs when I arrive home and the realization that there would be no one else to clean up whatever destruction I would cause.

Lord help me from ever cracking.....
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