For those who are 100% sure they have Lyme, what's your CD57 #

okay are you ready for this...my CD57 was 88 when I did all the testing for lyme in november 2009.

after antibiotic IV, chelation, heavy metal detox (4 o them), ozone, vitamin..homeopathy stuff.

CD57 was 80

My lyme testing was extremely thorough and I have to look up the bands and all this other stuff
but what I remember was chalmadial pneumonia, HHPV6, EBV, erichilles, bartonella

OH and I also was diagnosed in 1996 for HEP C but believe I contracted that in the seventies.

also another area I am very interested in is parasites. It was a stool test that led my Hep C specialist to
believe I had a tick borne thing.

I'm gonna start another thread on that.
the parasites I had were .. strongylides ( horses get this, ) diamebia fragialis, hook worm.

I was told that ticks carry parasites.

so it looks like I have the highest CD57 in the bunch. and the lower the number is what they are looking for.

MY dictor told me the guidline numbers according to standard(???) and I think according to that scale I don't even have lyme??? but my doctor told me his range is much different higher.

he also said that een though he always uses it ....his scale is much higher that he uses because he has seen too many people with obvioous lyme and numbers .

when I get chance I will dig up my other tests. they are very confusing.. I should have them laminated in gold . all this blood work was in the range of $6000

Bucci,

It is interesting that your CD-57 is higher than many others here. There are some in the local Lyme group who have very high CD-57's, as if their immune systems are over-activated instead of being suppressed. I don't think researchers really know all there is to know about the CD-57...and I thought at some point somewhere I read something about other infections possibly rendering the CD-57 test inaccurate, but when I tried to find where I read that, I couldn't find it again so I don't know...maybe it was in a dream or I am remembering wrong...but I do know not all LLMD's bother with the CD-57, so there is some disagreement apparently about its usefulness vis-a-vis Lyme/related infections.

Take care,

Since you have all been so helpful and welcoming I wanted to give you an update and to thank you all for all your help and kindness.

I just spoke to the doc who thought maybe Lyme was my problem because of one band in Igenex and CD57. Well, it appears that it not my problem. My problem is a nasty EBV reactivation. My CD57 is now 207 and she says with my immune system is just exploding all over the place (Immunoglobulin levels very high) that the one band must be a cross reaction. She also mentioned that my candida tests are negative and that's another strong indication that I don't have Lyme since apparently they kind of go hand in hand. Not sure if you all have that experience? I had a feeling it wasn't Lyme and I was right. My inner voice rarely fails me.

So, thank you again everyone and I wish you all the best. I have been sick for 14 years but Lyme certainly trumps what I have been through. You are all so brave to keep fighting such a nasty illness and perhaps one day there will be a cure for everyone!

Hugs to you all!!!!

Thank you Razzle. All the best to you!

Thanks ktp812.

I have to say, just because you felt worse on Valcyte doesn't mean you don't have EBV. That is a very hard drug and unless you have high titers and high HHV6 titers, Valcyte isn't really used. I would get the panel as well has tested for HHV6 and then re-evaluate.

I am going to try Lauricidian. I have heard good things. Keep it in the back of your mind, just in case.

Good luck to you as well and I hope you feel better soon too.

I had EBV panel done last year that I knew was high. My new LLMD remarked that it is quite high, indicating active re-infection w/ EB.

I know that I have Lyme, and I believe this is how my viruses reactivated. Just so happens that I had significantly high numbers on 3 of them. However my new Dr was only concerned w/ the EB, as it was the highest. He said that even tho my other 2 (see signature) were 'high, out of range,' it was possible that these still could mean past infections.

As for CD57 -- and this Dr treats AIDS patients as well, he commented that he knew other LLMDs used this for diagnosis. And he said that he sometimes uses this test to track imrovement. He did NOT say that the CD57 is indicative in other diseases, but did talk about the fact that many of his patients who are very sick, have high CD57s, AND that he has many patients who have been treated, or are currently under treatment and getting better still have very low CD57s.

Basically, he was commenting that this test can be used for tracking progress, but that it does not always indicate how much a patient has improved.

Given the fact that Lyme spirochetes can go hiding, or ball up into round cells to hide from the ABx, I wonder if the CD57 can be used to indicate TRUE improvement of the disease -- and that maybe, just maybe, many people feel better on abx, WHILE on abx because the Lyme is in hiding.

So I am now wondering if this test can possibly be used NOT necessarily to track improvement that the patient FEELS, but actual
improvement of the infection.

Sorry if that does not make sense. It is late and I have owned a true Lyme brain today......

TOGETHER we will get to the bottom of this!

One more quick question, ktp812. Did you have all your CD57 done at Labcorp or did your doctor use Quest. My first test where I had 38 was Labcorp. The last one where my results were 207 was Quest. I though Labcorp was the only lab to use but my doc said she's fine with Quest. I didn't push the point because she seems to be very good and I had a feeling it wasn't Lyme anyway.

+Lyme, not a clue. The Labcorp was last summer and Quest last month. I certainly have no idea why the difference and it didn't even occur to me to ask her. I will try and remember to ask next time we talk and will certainly report back. It would be interesting to see what Labcorps numbers are now, wouldn't it. Hmmmmm.

BP- all my CD-57 testing was done through LabCorp..

I was seeing a top LLMD and he said he doesn't even test it so I guess it never really mattered to me what the results were.

I have read about so many different results with this test that I just don't think it means much of anything.

BP- I totally agree with you about the labs...makes no sense. I just wish I had known more about this disease before having repeated tests over and over..

I have learned alot online forums and that is what got me thinking that these lab tests are so unreliable. So many people with very low CD-57 and feeling good while others with high feeling terrible.

It was my doctor here in NH that did the original test but when I went to the specialist in NY he didn't even care about the number. He told me in his practice the numbers are so much all over the place he doesn't use it at all...

Oh well...live and learn

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My CD57 is 15