Losing ground

Although I am sure there are "relapses" for some lyme patients, I don't think they are as common as some want us to believe. I suggest you have your hormones checked; thyroid, adrenal and sex hormones and some viral testing done. Your symptoms are classic for hormone imbalance and/or viral infection(s). I do realize some would say they are also classic lyme symptoms, but you have treated lyme for two years, right? Maybe it is time to look at things from another angle. Perhaps your llmd (he/she should) will test these other things.

I'm so sorry for your situation but I can tell you from my experience that everytime I stop any type of tratment the lyme goes to another part of my body it never stops but thats me. . Go to your lyme Dr and go to the neuro also have your thyroid alot of lyme people have thyroid problems. my opion are that yes alot of lyme people do get relapses. I agree with Mamyou she's right. I went through alot of Drs neuro's you name it. Thinking ok something else is going on always to hear its the lyme or co-infections.

I also put in the movie under our skin 1 night and my husband watched even though he at first didn't want to . let me tell you it shocked him after the movie he was on the internet
reading everything he can. prayers for you ok.

marlene just my experience

you can certainly have a relapse after being well for a long time. I am proof of that. I was on abx for almost 3 years and off them and feeling amazing for over 3 years. I started to get some small symptoms coming back after a stressful event and ended up having a relapase and going back on abx for almost a year. There is no time frame for how long it can take to get well or stay well with this illness. It can't hurt to see another Dr. if you think something else is going on, but listen to your body. If you feel it is lyme it might be best to see your lyme dr. and you might need to go back on meds again. I haven't been on abx for over 3 years since my daughter was born. I still have episodes where I don't feel well and times when I feel great. I don't know if I will ever be 100% cured of this disease. It's been ongoing since 1998, but I do know that at this point whatever flare-ups I have now will pass and I try to keep them at bay with exercise (for me this has been like a miracle cure). I do however have a toddler and not much free time so I am not always able to do it and going through a lot right now personally I have my good days and my bad days.

The key right now is to get it before it turns into a full blown relapse. The sooner you start to combat the symptoms that are showing up now the less likely it will turn into anything long term and maybe you can knock them out with a little bit of treatment.

Achievinggrace, I am soooo sorry that you are still suffering!!
First of all, let me state that I do agree with what everyone has said so far about going back to your LLMD & make sure he/she understands what you are going through. Don't leave even the smallest symptoms when you talk with your LLMD!

I don't necessarily agree with what is being said about chronic Lyme though. I really thought that I was going to slowly waste away due to the toxins not long ago. If you are not seeing any improvement after taking abx long term, maybe it's time to go with a different type of treatment?? It worked for me.

Well, the doc thinks I was probably infected with Lyme Disease again, given my symptoms. And now that I think about it, I did have a funny itchy thing on my scalp that didn't heal for ages. My gosh, this is my third bite, you would think I would immediately have something like that checked out. Back on Rifampin. At least I know the way back to good health now!

Thanks Traveler!

Sounds like you might have some of the co-infections that are still active.  When you are given a drug that is good for lyme and not necessarily good for treating some of the co-infections it can present a problem.  Lyme bacteria replicates very slowly, however, is a very strong disease and usually keeps the other bacterias and viruses in check. Many co-infections can multiply very fast and can actually be worse than lyme, once the lyme bacteria load is reduced.

Well, I'm thinking my llmd was right, that it is a new infection. I am responding very well to the antibiotics. I already have lost the neurological symptoms, my energy has improved, my glands are swelling less often, and I can think! I'm keeping up with my detoxing, to keep the herx reaction to a minimum, at least that's the plan.