RE-TESTING

   My 13 yr. old daughter was diagnosed with lymes 09/2008 (6 bands).   Treated with ABX for a month.  The past month she had fainting spells.   Had complete blood work up and everything was normal.   I asked that she be re-tested for lymes.   Tests came back with 7 positive bands.  

   I was advised by doctor that the positive bands can show up 3-5 years after initial treatment and that he would not treat her with ABX.   Since 2008 I noticed that she sleeps alot.   She also had to get glasses in 2008.   Doctor advised that all her neuro. look normal.   He advised that she can keep getting re-tested but may get false positives.   So How do you know if your child is treuly getting better or not??????  I am really confused about what to do or not do?   I have been reading alot and there is no black/white answer.     Thanks for any response 

I agree with Razzle. You should seek out a llmd to help your daughter.

Even the CDC does not require a person to test positive to any blood test before receiving a diagnosis!! It is supposed to be a clinical diagnosis - a diagnosis that is based on signs & symptoms.

This is from the CDC's web page on Lyme Disease;
" Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks; laboratory testing is helpful in the later stages of disease."

And here is a link to their site;

www.cdc.gov/ncidod/dvbid/lyme/

I don't know why doctors refuse to acknowledge the CDC.

I am not a medical professional, but it sounds that most likely your daughter has either been re-infected or had a relapse.

Once the infection leaves the blood stream & goes into the tissues (at which point it is considered to be a 'chronic infection'), there is nothing for the body to build antibodies against.

My day has been a bit rough on me, so I'm not sure if I'm making much sense.
I do hope someone finds this helpful.