Posted 10/2/2010 10:48 AM (GMT 0)
Hello everyone...
Just came across this site and thought I would put my 2 cents in... I have been friends with a married couple that have morgellons for about 7 years now. They have had "Morgellons" for appx 10 years now they tell me. For the first 5 years that I knew them and they would tell me about Morgellons and there symptoms and I honestly thought that they were nuts...They would tell me about the fibers and how they move, about "fiber pillows" (just a tiny little ball of insanely intertwined and tangled fibers), about black sand like specks that would come outt of their skin, brain fog...and many more symptoms. I could see the lesions they both got and how they were very slow and hard to get to heal. ( I have worked in medical for past 1o years as an EMT and a CNA and no matter what we tried it was brutal to get the lesions to heal) well i really did think that they had delusional parasitosis and that the lesions were just a result of their drug addiction (they both smoke heroin and have for 15+ ? years) and it was just toxins coming out of their skin. well 2 years ago after I moved into a house on their property I started getting symptoms. it started out with insane itching, and sharp biting/stings and then after a couple of near suicidal months the fibers came. Thank God I dont get the lesions (everyone please knock on wood for me..lol). For the first 6 months I had it, my life was a living hell, the nonstop crawlie feeling and maddenin itching about drove me nuts. I tried the Doc thing, and was referred to dermatologist. she put me on a creme for scabies and sent me on my way (which, btw, in 3 visits to Doctors and 5 visits to dermatologists, not once has anybody examined me in any way, no scopes, no skin scrapings, nothing. I would tell them my symptoms and they would say ok lets get you on lindane... or someother poison....well i gave up on them and started tryin things myself ( DO NOT DO THIS, IT WONT HELP ...WILL JUST HARM) i tried any chemical i could get my hands on, bleach, nutrasilver,turpentine....its amazing i didnt kill myself with all i did, but at the time that risk was worth it..
So anyways alot of the morgellon sufferers do test positive for lyme disease as well (forget the percentage but its high, like %70-90). which is interesting to say the least. one of my friends tests pos. for lymes but his wife does'nt.
well to sum this up (sorry to ramble on this was intended to be short) I am now almost symptom free, i still have occasional flare ups of the insane itching and crawling sensations that last 1-2 days, but only every other month or so. My friemds arent healing as fast as me, but they no longer have the lesions, and slowly are even getting rid of alot of the neurological probs (brain fog, depression...) symptoms as well.
How? well first im not selling,endorsing any product or brand of anything. what has finally worked the best of anything else ive tried (and i have tried most of the things you hear online:nutrasilver,alfalfa tabs, borax,......some helped a bit for a little while, but nothing has even came close to lasting as long as this had or as well...what is it?> SULFUR...it has worked so incredibly well...ii cant believe it...
google sulfur, its not as bad as you think (well it wasnt as bad as i thought anyways) its actually one of the top 10 most abundant minerals in the human body....has alot to do with skin,healing,hair.... just google it, see what you think..
I dont recomend trying anything without getting medical advice from you doctor first,,,
i bought some sulfur tablets from the health food store which i take internally as directions on bottle state,
and I also bought a bag of sulfur pellets (star nursery) which i ground down into a powder and added to soap and lotion. (you can buy sulfur soap/lotions,,,,online but i didnt want to wait for it and made my own).. so now once a week (started out daily for awhile till symptoms went away) i use the lotion and then shower with the soap rinse real well and no more probs. it makes your skin really soft which was cool, but can also dry skin out so use a good lotion afterwards .
I discovered how well sulfur works by buying rosacea one day just to see if it helped, well it did!! so i looked at the ingredients in rosacea.....the only active ingredient was SULFUR ...well at 10 bucks for a tiny tube no way i could keep doin that, so i bought the 5 lb bag of sulfur for $5.00 at star nursery and im set.
I hope that this will help someone get better, not all treatments work for everyone...
also regarding borax/nutrasilver.....Dr Stalingrader (sp?) recomends against using these even though they give relief for awhile because i guess the morgellons have a cocoon out casing that they produce toprotect themselves from outr immune system fighting them, and the longer you use it, the thicker the shells they develop whick in the long run might really make it hard to kill iif they ever find a true cure....dont want to feed the monster...
good luck all..
feel free to ask any questions, im not shy and if i can help one person thru this well its all worth it,,.,there was one person online that helped me thru my initital stage and suicidal thoughts that so many morg suffers get and do...just know that there is hope..
PEACE