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Stoped taking my meds for Lyme an now feel worse than ever

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Posted 2/11/2011 3:44 PM (GMT 0)
My doctor started treating me for Lyme disease an gave me 2 weeks of doxy, when I went back to get some more he would not give me any because my test came back negative which I was not that bothered about because he had already told ne he new nothing about the disease so I booked in to see a LLMD which I'm going to see him on Monday, I've been off of the antibiotics now for over a week and half an started feeling poorly yesterday an really can't be bothered to get off the settee today I feel that bad ie ears started hitting, stabbing pains, back knees and neck hitting again an just feeling run down and detached from myself, is this normal. Thanks x
Posted 2/11/2011 7:08 PM (GMT 0)
Here we go. I hope you have a real LLMD and document everything..

including all the flawed adduce from your doctor.

His job is to refer you to an expert not just TRY a little, doxy.

he should loose his liscence.

and I hope you have gone to lymebook.com and read everything.

what kind of tests were done? Igenex? confections? parasites? thick blood?

how long have you been sick?

did you see a tick bite ever?
Posted 2/12/2011 3:52 PM (GMT 0)
Hi bucci
I add the bullseye rash back in September an did not no what it was then a couple of weeks later I started to feel poorly with dizziness an my ears feeling blocked an my head feeling full,my doctor started giving me ear drops an kept sending me home, so after months of no joy I started looking thinks up myself an came across Lyme disease which ad the same symptoms I were having an as soon as I seen a picture of the rash I new that was it, I think it was the ELISA test I have add done, and yes the LLMD doctor as been highly recommended, hope feeling ok it's just nice to talk to people who are going through the same thing. Thanks ps how long have you ad Lyme and what were your symptoms x
Posted 2/12/2011 4:16 PM (GMT 0)
Hi 079,
I am so sorry that you are feeling so poorly, and that you were only given 2 weeks of abx. Many well-respected LLMD's diagnose Lyme Disease as soon as they see evidence of a bulls eye rash. It's that definitive.

Your experience that you have described -taking the abx for only 2 weeks and then have a relapse - is very common & should be expected by docs - if they don't have their heads stuck in the sand!! I'm sure glad you took things into your own hands & sought out a specialist!

When is your appt with the LLMD? Please be sure to let us know how things go at that appt!! You should start detoxing right away, that way the 'pathways' for detoxing are already working when you start to kill off that bacteria!!

Don't forget to ask about co-infections when you see your LLMD.

I hope you start feeling better soon!!
Posted 2/17/2011 12:15 PM (GMT 0)
Hi traveler
Been to see the LLMD an as diagnosed me straight away so 3 months ov antibiotics an then he wants to see me again just glad I'm getting somewhere now, I've been told it's a long road ahead but really don't no what to expect can anyone let me no what that means xxxx
Posted 2/17/2011 1:08 PM (GMT 0)
Sorry you are feeling poorly. But sounds like things may turn out awesome for you, you say you are going to get IV abx

for 3 months. Great start for you considering you learned about your rash in September. From experience of others one

being my daughter whom also had the rash and me finding out about it after the rash went away and came back a few

months later but bigger. She was not givin the IV meds because she was pregnant and took pill form thru whole pregnancy,

and does not have one symptom, and grandson is healthy. But from the experience of others that have been given the IV

after a few months of finding out they had the rash are all better. Length and type of treatments vary from person to person.

Sounds like you have a wonderful LLMD that can get you on the path of a quick recovery...

Hope you are one of those people who get lucky with the first round...But keep in mind if you are still not feeling better you

may want to talk to your dr about maybe extending your IV meds for another month....The reason I say this from my

experience when I had my first Picc Line for IV meds I was only givin a 28 day treatment....That clearly was not long enough

to touch the bacteria that was overloaded in my body...
Posted 2/17/2011 2:24 PM (GMT 0)
079,
CONGRATS(!!!) on seeing the LLMD & getting treatment started!!

Do you know what abx & what dosage you sill be started on? If you post about that, I'm sure other members with experience with those abx will comment.

The first thing I would like to suggest is that you start detoxing right away - before you start feeling worse. There is a great post in the thread "New to Lyme?..." that describes what you need & how to do detoxing & dry skin brushing made by Deejavu (a long time member). I believe it is the 3rd post.

The abx kill bacteria, which will then produce toxins, which will increase a persons' symptoms &/or will bring out new symptoms - making the person feel a whole lot worse ... which is just not necessary.

Also drink as much water as you can - the old recommended amount of 8 - 8 oz. cups of water needs to make a comeback. This will aid your body in flushing out those toxins! A lot of us also add lemon juice to our water - it helps me to drink that

much water, but it also helps to make our bodies a less desirable place for infections & viruses. -if I got that wrong, someone please correct me!!

I do hope that this info helps you a bit. Please be sure to let us know when you start your treatment & how things are going!!
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