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Naturopath diagnoses Lyme...could it be?

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Posted 3/6/2011 3:19 PM (GMT 0)
Hi All !!

I've been reading alot of your posts the last few days and decided to join.  You all seem so nice and helpful.  I'll try to keep it short but it's a long story.

I'm 35 now and feel like I'm 90 some days... since my early twenties I've been diagnosed with a number of things including:

Patello femoral Syndrome

Hiatus Hernia

IBS and IBS with constipation

Sciatica

Coccydynia

Pleurisy

UTI's

Recurring Sinus infections

-lung infections

-Bronchitis

-Pneumonia

There has been very little time where I've actually been healthy, right now I have a sinus infection that won't clear....again, the last time I went through three rounds of antibiotics before it cleared and it turned into a lung infection as well. I have very sore muscles and stiff joints, when i get home from work, getting out of my truck is the worst I stiffen right up after sitting any length of time.  lately I'm really losing my memory, couldn't remember my moms phone number the other day and I had to look it up, I call her every day.  I speak and it comes out gibberish, totally unintelligable, I have to concentrate then to form the words.  I can't remember words and end up looking a bit dim. I also have major sensitivities to chemicals now, cleaning products mostly.

My doctor says I'm just unlucky....so I went to a naturopath who did some testing on a computer with meridians and out of the blue asked if I'd ever been bitten by a tick....I had when I was 20 but had never thought about it since, it was burrowed half into my right breast and i had to pull it out.  Could this be some kind of hoax or can she be right? she gave me a name of an LLMD in New york, I'm from Canada and they seem to believe we don't have it here......a little confused.....I called the LLMD and haven't gotten a response yet from earlier last week...is it possible the Naturopath could tell that I have Lyme? she seemed so sure....please help with some advice...

 

Posted 3/6/2011 5:41 PM (GMT 0)
Given your previous exposure to tick bite, and your symptoms, you may or may not have Lyme - that's why it is good to consult a Lyme specialist (LLMD) for evaluation and diagnosis.  And they usually also have the most experience with treatment, although many find that they need supportive treatment from natural medicine in addition to the standard LLMD treatments. 

Also, some find they just do better in general when they follow non-pharmaceutical methods of treating Lyme.  There are a number of herbal protocols out there for treating Lyme - Buhner, Cowden, Zhang, etc.

http://www.canlyme.com/ is an excellent resource for anyone dealing with Lyme/tick borne infections.

It would also be good to check out the thread at the top of the forum for those new to Lyme - a lot of good info can be found there.

Something to try maybe is to do some detoxing and see if that helps with any of your symptoms.  Most of us, whether or not we have Lyme, have some kind of toxin buildup - especially if we have the chemical sensitivities.

Another thing to ask your Naturopath about is methylation cycle genomic testing.  Dr. Amy Yasko offers the lowest price on the lab test for the genetic variants that can lead to methylation cycle blocks.  The methylation cycle is the primary detox pathway in the liver, and many who have chronic fatigue, Lyme, and/or chemical sensitivities seem to have need of support for methylation. 

More info about methylation can be found here:  http://www.heartfixer.com/AMRI-Nutrigenomics.htm

Order the test kit from here:  http://www.holisticheal.com/health-tests/nutrigenomic-testing/comprehensive-methylation-panel-with-methylation-pathway-analysis.html

Note: I have no financial connection with any company or website listed in this post.

I also should mention that many times, chronic sinus infections are caused by fungal infections (bacterial infections can develop secondarily to the fungal infection), and sometimes are also complicated by allergies or other causes of sinus inflammation.  Also, history of broken nose and/or deviated septum can predispose one to more issues with chronic sinus infections (of any kind) because circulation and sinus drainage is limited compared to normal.

I hope this helps...take care,

 

Posted 3/6/2011 8:22 PM (GMT 0)
Flower lover,

No it isn't a hoax, and it might well be the diagnosis that can help you get your health back. It is well worth going to the llmd, they will be able to diagnose you properly and hopefully get you started on the road to recovery.

You mention some cognitive problems ... this is serious and should be addressed.

Good luck!
Posted 3/6/2011 8:42 PM (GMT 0)
Flower lover,

I'm 52. Recently pos for test in Dec. Went to Neurologist, he ordered testss and sent me to another Dr. We found I had neck imflammation from his hundreds of dollars worth of tests. I had intense headaches , fatgues, joint pain, fluish, achy, and I was pos for neuropathy.
Posted 3/6/2011 8:42 PM (GMT 0)
Flower lover,

I'm 52. Recently pos for test in Dec. Went to Neurologist, he ordered testss and sent me to another Dr. We found I had neck imflammation from his hundreds of dollars worth of tests. I had intense headaches , fatgues, joint pain, fluish, achy, and I was pos for neuropathy.
Posted 3/6/2011 8:50 PM (GMT 0)
Oops! PC cut me off!

My memory is sooooo bad, it concerned me. I know it is Lyme. With the shooting pains in my legs and arms, I can't sleep well at times. My whole sleeping schedule changed. I go to bed late and wake up later.

No hoax. Get the help ASAP.

Tested several years for MS, Lupus, Lyme, finally after years of pain they found the culprit. Lyme hides, I think it's fortunate I tested positive. When I did go for the tests, however, I was so ill I could not walk a short distance without getting really tired! Going to the Dr. was an extreame chore! I about cried in his office to help me. I had been going to him since 1997 and always tested neg. for MS because I always had the MS symptoms.

Then I recently heard that he was sued for crippling someone by neglect; 8 million dollar law suit. Gosh, was I in shock. I will not be going back to him, ofcourse.

HH
Posted 3/6/2011 10:48 PM (GMT 0)
hi guys,

thanks for your replies, I am concerned and will be getting tested for lyme now, it would really silly of me to ignore a possible answer.  But just to clarify I totally believe that Lyme is a chronic disease, I was just wondering if anyone else was told by a naturopath that you have Lyme and if anyone  had the meridian testing done by the naturopath and if you believe it is legit?

Posted 3/7/2011 2:16 AM (GMT 0)
Yes, I've had the meridian testing. Yes, they said I had Lyme and Bartonella (previously confirmed by LLMD and lab test for Lyme, and the LLMD also believed I had clinical evidence for Bartonella despite negative tests).

I think the meridian testing can help reveal avenues for further testing and/or treatment, but I do not think it is 100% accurate 100% of the time. There are things that can interfere with accuracy, and I also believe that not everyone who uses the meridian testing is as skilled with it.
Posted 3/7/2011 2:51 AM (GMT 0)
You were fortunate to go to a naturopathic doctor that knows about Lyme and suspected you have it. You do have many of the typical symptoms of Lyme disease. The sooner you see an LLMD and start treating it the better.

Question, do you recall seeing a bullseye rash or a rash of some kind after you got bite by the tick?

Gary
Posted 3/8/2011 12:32 AM (GMT 0)
No I don't remember having the bullseye but I think I did have a quarter size red welt...not totally positive though, it was 15 years ago and I didn't think anything of it at the time.  Except that it was gross that I had a bug taking up residence in my skin ...lol

Has everyone had the bullseye?  or other forms of rash or mark?

Posted 3/8/2011 1:20 AM (GMT 0)
No, not everyone gets a bullseye rash. Sometimes people get no rashes at all. That isn't the only thing a doctor will look at when he/she makes a dx. Because Lyme disease is a clinical dx, the doctor will look at a number of things, including symptoms, Western Blot test, etc.

Lyme disease can mimic around 300 other diseases. This is why it's best to be dx by a qualified ILADS LLMD. I sure hope you see one soon and get the appropriate treatment because the longer you wait to treat this disease the harder it is to get better.

Keep us posted.

Gary
Posted 3/8/2011 10:32 PM (GMT 0)
I'll keep you posted for sure and may have other questions, I'm doing alot of reading on Lyme right now and other diseases and I'm not sure of anything. The LLMD I've called is booking for may so it's not too bad.
I've had four rounds of antibiotics (incl. Biaxin twice) in the last 6 months for sinus infections, if I did have Lyme, could that have helped to fight it? and from what I'm reading wouldn't I feel worse on the medication if i did have Lyme?
Posted 3/10/2011 12:46 AM (GMT 0)
Hi flowerlover,
No hoax on the meridian; or electral-dermal, BioSet, Asyra, testing. Like with all other computer programs, some are better, more accurate than others. And it totally does make a difference with experience of the person doing the testing.

I'm an RN and went to see an acupuncturist that has been doing BioSet testing for 15+ years. I went to her a total skeptic, gave her very little info about my diagnosis that I already had, and got the same results within 1 hour that took 1 year to get from doctors. Out of all the treatments for Lyme that I've tried, I definitely highly agree with this one. It's very hard to understand, but if you believe an EKG machine works, then we've got to believe this works too.

This kind of testing is very good for showing any kind of inflammation and where its coming from. And also gives you methylation info that Razzle talked about.

The BioSet program that was used on myself showed not only the Lyme that I tested positive for but also Bartonella, Babesia and Erhlichia that I tested negative for. It also showed the different species of ticks that I've been bitten by!! I was never aware of a bite or a rash that I knew of. Had removed many crawling ones though.

Anyway, check out www.ImmuneMatrix.com. They have lots of info about the meridian testing. And the last I heard, will be or have opened a new clinic in New York somewhere.

And ask your Naturalpath if they can write a Rx for Biaxin til you get to a new LLMD. Or maybe they have a MD referral that will give you an RX. And have the Naturalpath do food and environmental testing on you too. Many allergies, that get worse with Lyme disease cuz your immune systems suppressed, can cause chronic sinus and lung infections. I was getting bronchitis all the time.

Much luck to you and prayers driving to New York,
Lisa
Posted 3/10/2011 3:42 PM (GMT 0)
Hi Flowerpower!
Welcome to the forum!! To answer your question about previous abx use effecting the possible tick infections - no, not necessarily. Most of the time docs don't prescribe a large enough dose to even touch the tick-borne infections when they are treating for other things like sinus infections.

The recommended dose for Doxycycline for tick-borne infections is 600 mgs a day - divided into 3 doses each day.

I would like to encourage you to read through the thread at the top of the forum titled. "New to Lyme?...Start here!" as it has a lot of really great info about Lyme & other tick-borne infections that the members here have put together. You'll find a lot of useful information there!

I hope this helps a bit!!
Trav
Posted 3/11/2011 3:56 PM (GMT 0)
ok thank you everyone, what a great site this is, so glad I found you !! thanks so much for all your info. I was starting to think I was just going crazy or terribly unlucky.

I think I'm rid of the sinus infection I think but now I have this huge headache ! I used to think it was a stress headache because it feels like it starts in a ball on the left side of my spine in my neck and runs up into my head and around it like a crown.

I'll probably have it for a week or so now, but now I'm wondering if it's related to the Lyme i get them every couple of months and they stick around for awhile. does this sound like anyone elses headaches?
Posted 3/13/2011 3:35 PM (GMT 0)
I'm not a Dr. Flowerlover, I'll tell you my story.

Since about 2009 my nose would run about every day, headaches and upper neck pain that crackles and is painful when I turn.

I kept thinking hum........... gosh....... I've got a cold/flu again. Too many times, I put one and one together and after this site and educating myself on Lyme, this is one symptom. I'm achy and flu like a lot and these are major indications of this nasty disease.

Headaches, OMG, yes! Ended up in ER Nov.2010 because of it. I had a hard time walking into the hospital because I was sooooooo weak and my neck was in horrible pain.

Don't know if this will help. It's my story and I have tested several times positive for Lyme, even though you only need one pos result! I'm in the chronic stage because after months/years of testing is was ignored!

Thur I recieved IV picc for antibiotics.

Good luck to you.

HH

I rec'd I
Posted 3/15/2011 12:33 AM (GMT 0)
Wow, I'm sorry to hear about all of your stories, I seem not so sick in comparison. I hope that your IV helps HorseHelper and you start to feel alot better. thanks again for all of your advice.  If I ever hear back from the LLMD hopefully I'll get my answers.

Shan

Posted 3/29/2017 6:27 AM (GMT 0)
Hi everyone. I'm a new member and was reading a lot of posts that are quite old but wanted to inform those who are not aware that a Naturopath IS a doctor. If they haver N.D. after their name they can write prescriptions just like an M.D. My daughter is an N.D. and specializes in cancer support at a hospital in Portland, Oregon. East meets West!
Posted 3/29/2017 8:08 AM (GMT 0)
Just wanted to say hi and welcome Flygirl smile

I know that folks here do indeed use a variety of different doctors and the 'trick' is finding one that knows about and can treat Lyme. Sadly many MDs, infectious disease docs etc etc either can't or won't recognise and treat Lyme. Naturopaths, like other docs who do are brilliant when it comes to diagnosis and treatment!

Great to hear about your daughter, it must be a tough but rewarding thing to specialise in smile

Can I ask are you a Lyme sufferer? If there are any questions that you have the fab peeps here will be glad to help you out if they can.
Posted 3/29/2017 12:39 PM (GMT 0)
Hi Flygirl

We're so glad you found this forum.

There are many knowledge people here who have all kind of information for different things that helped them.

You will find what works for you and learn along the way.

Hang in there!
Posted 3/29/2017 12:52 PM (GMT 0)
Hi Flygirl,
Welcome to our community! What a wonderful endevour that your daughter has taken on!
We do appreciate you chiming in, but we do realize that ND's are doctors - this is just a really old post (2011) and they were questioning if an ND would recognize Lyme.

And, honestly, not all states recognize ND's in the same way as the recognize MD's - here in Arkansas, the only doctors that can write prescriptions, order tests and admit someone to the hospital are those that hold a current MD's license. So, it's wise to check with your state to see if the doctor you wish to see can do those things if you need a doc that can.
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