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Posted 4/10/2011 12:20 PM (GMT 0)
Hello. Im new to the site. Was just wondering....I was diagnosed CDC positive a year ago today with Lyme disease and most of my symptoms have dissipated (caught early supposedly). I am left with terrible heart palpitations that feel like Im being electrocuted. I am wearing a heart monitor as I type this. Cardiologist says I have irregular heartbeat and will put me on meds to correct it. My problem is: Why would you treat the symptoms? He is not making a connection bt the Lyme and the heart problems? I had no heart symptoms at all until I tested positive for Lyme. I also have short term memory loss. I was on 200mg of Doxy per day for 8 weeks initially and that was it as my doctor said that should be enough to kill the bugs as he spoke to a local hospital CDC doc. I dont know where to go from here. confused
Posted 4/10/2011 2:06 PM (GMT 0)
Hi DocDelMed!
Welcome to our forum!! I am sorry to hear that you have a need to be here, but I am glad that you found us! I'm sure you will find us to be a helpful and understanding group!

If you haven't already, it would be beneficial for you to read through the thread at the top of the forum titled, "New to Lyme?...Start here!", as it is packed full of relevant information and informative links that have been put together by our members here! We also have a pretty good search function on this forum to help you narrow down your search for information from past posts.

From the research-type reading that I have done, most of the well-known LLMD's recommend that a person with tick-borne infections stay on abx for 2 to 3 months after all symptoms resolve.

I would venture to guess your Cardio doc doesn't understand Lyme - very few do. I would suggest that you may need more treatment and should get in to see a Lyme Specialist - a LLMD (Lyme Literate Medical Doctor). They can evaluate you to see if you still need more treatment for tick-borne infections, or if this is due to damage done while the infection(s) were active.

We can help you get started in locating a LLMD. You can start a new thread asking for help and include what area you live in. It would be best if you could include a larger city near you.

Here are a few other things to do to find a LLMD; please email our long time member, Dan's Mother at: [email protected]

You can email Stephanie at: [email protected] You can also go to: www.turnthecorner.org/bod.htm to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

I hope this helps. Please feel free to post any more questions or concerns that you may have, and to comment on other threads!

Once again, welcome to our little spot!
Posted 4/10/2011 9:18 PM (GMT 0)
You are probably low on magnesium. I just went through this and have before and for some reason forgot that it's always the magnesium. If you up your magnesium, the heart palps will go away. My lyme started with shocklike heart pains in 2006 which led me to the emergency room. Only took me 3 years to get diagnosed! For some reason lyme strips you of magnesium. Best of luck.
Posted 4/11/2011 12:58 AM (GMT 0)
Thank you for your helpful responses. I have downloaded an application (30 pages!) for a LLMD here in New York State and am going to try to get in with him soon. I have read a few books about the disease myself and have tried a bunch of different supplements like green tea, colloidal silver, selenium, zinc, B-complex, coenzyme q10 etc. It seems like there are a lot of other options too the more I dive into this. What combination of supplements/antibiotics have worked for everyone else?
Posted 4/11/2011 1:33 PM (GMT 0)
I'm glad to hear that you have found a LLMD! I do hope that things go well and you can get in to be seen soon! I would suggest you also start compiling a list of questions of your own for the doc.

As for what supplements/abx work for any one person - that's the million dollar question, as it's as wide and varied as each of our lives! This combination will be very unique to each person, depending on such things as how long they have had the tick-borne infection(s) -tbi's, and which tbi's a person has, what systems and/or organs have been stressed or compromised, and what else the person is dealing with - like a virus or other physical or emotional issues.

Not all of us choose to use or do well on antibiotics. There are several that are effective against Lyme and other tick-borne infections. I'm one of the ones who didn't do well on abx, so I chose to go with an alternative treatment - Acupuncture with Modern & Traditional Chinese Medicine. My practitioner also happens to be a Master Herbologist and I am seeing improvements now that I am in my third week of treatment.

Hope this helps a bit!
Posted 4/14/2011 2:03 PM (GMT 0)
Doc,

I'm kinda new to this site also. Lyme diagnosed Jan 11, however, ill longer (as many).

Did you see LLD yet? Are you coming along ok?

Blessings,
HH.
Posted 4/15/2011 11:14 AM (GMT 0)
I have not seen LLMD as of yet. Actually, I have left multiple messages with no call back yet. Gonna keep trying. There are not many in the area, actually only 3 or 4 in all New York State according to my searches....

in meantime, still having 4-6 palpitations per day w fog. Gonna attempt to fly with kids to Disney in FLorida for their break (ages 3 and 6). This should be interesting....
Posted 4/16/2011 1:27 AM (GMT 0)
Anyone have tips on traveling with this disease? For me, heat aggravates symptoms and stress doesn't help much....
Posted 4/16/2011 2:07 AM (GMT 0)
Hey I am new here too fifteen years ago before I was dianosed with Lyme I had bad heart palpitations to make a long story short after being diagnosed and going abx for about six months heart palps went away. Find a good Lyme doc Good Luck to You. No Worries
Posted 4/16/2011 7:15 AM (GMT 0)
Doc, this heart thing could be even bartonella too. I don't understand why people do not get completely tested for everything. my doctor took 26 tubes of blood and used 3 labs and made me take teasel root and japaneese knotweed to bring it all out of the tissue and into blood. I got serious herx from it too butt least she got a complete read.
The other thing is after taking theivermectin for strongylides parasite my chest pains DISAPPEARED and the insane panicy thing .

you have to get a real accurate stool test. another thing I don't understand why doctors don't do immediately. it was my stool test that made my doctors send me to the tick borne specialist. you can email me if you want doc. Metametrix labs 2100 series is about $395 but it is most accurate.

Post Edited (bucci) : 11/22/2011 7:20:35 AM (GMT-7)

Posted 4/17/2011 1:19 AM (GMT 0)
Bucci, thats exactly how I feel everyday. I must be tested for Bartonella then. I get chest pains, panic attacks and heart palps. Those are my main symptoms. Some days Im a little foggy too but that sounds exactly right. Thanks for the info. If I can ever get a call back from the LLMD I am trying to get in with I will suggest your suggestions. I appreciate the thoughts, Doc D
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