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Posted 6/17/2011 1:01 PM (GMT 0)
www.westport-news.com/news/article/Conn-court-upholds-discipline-of-Lyme-disease-doc-1421843.php

"Connecticut Court upholds discipline of Lyme Disease Doc.

The state Appellate Court on Monday rejected the appeal of a New Haven pediatrician who claimed state officials were wrong to discipline him in 2007 for the way he treated two children he diagnosed with Lyme disease.

Dr. Charles Ray Jones, who has been a polarizing figure in the treatment of Lyme disease, was reprimanded, fined $10,000 and placed on two years of probation by the Connecticut Medical Examining Board. While patients praise him for treating the disease with long-term courses of antibiotics, many in the medical community says his methods fall outside accepted treatment guidelines and are unproven...."

For more info or the rest of the story, please follow the link above.
Posted 6/17/2011 1:34 PM (GMT 0)
So hard to believe that they get in trouble for HELPING people! Surprising ANY doctors treat us! It completely enrages me!!
Posted 6/17/2011 11:02 PM (GMT 0)
Doctors have to watch every step they take and every breath, too. Dr. Jones' license was suspended because a father accused him of having prescribed medication to his children who lived in another state without ever seeing them (if you can imagine a father who cares so little for his kids). I am sure if Dr. Jones did, it was only to help, but unfortunately if you leave even the tiniest way for them to get to you, they'll find it.
Posted 6/17/2011 11:02 PM (GMT 0)
Yes, and it's so hard for me to believe how many LLMD's just keep prescribing antibiotics to their patients to the point where the antibiotics destroy a patient's body, never explain to them about detoxing (because they simply don't know about it), etc. 

My heart still breaks when I think of all the people that I know that passed away, not from lyme bacteria, but from the treatment...   And some of those people were members of this site.    That makes me feel so very sad... 

Posted 6/17/2011 11:04 PM (GMT 0)
walkingafineline,

I remember when that incident happened and from what I remember, that child was never seen and there were many problems as a result.   I had saved the article right after that incident happened but as of now, I can not find it. 

Posted 6/17/2011 11:34 PM (GMT 0)
Right you are Deejavu. My gut still suffers from the effects of abx. I recently read that more people with Lyme disease die from suicide than the disease itself. If that's true, and I would not be the least bit surprised if it is, it just goes to show you that there's something very wrong with the way lyme disease is being treated. How can anyone have hope that they can get better when there's so much controversy about this disease? Basically, we are left to fend for ourselves. This just isn't right!

Regardless, the IDSA has no right whatsoever to go after LLMD's who are doing the best they can with what tools they have available to them. The IDSA should spend more time and money searching for a cure rather than going after LLMD's who are doing their best to help people get better. Granted, abx hasn't got a very good record for healing people, except if they got treated within two weeks of the tick bite, still, at least they are doing something as opposed to the IDSA who denies there is such a thing as chronic lyme disease. In my opinion, they need to be shut down and sued for malpractice.

Gary
Posted 6/18/2011 12:04 AM (GMT 0)
Yes Gary, many have committed suicide after trying long term antibiotics and not getting better.  One member of this site was not open-minded to trying alternative medicine and took her own life after years of long-term antibiotic use.

I also knew of a nurse who was on long term IV and that caused so many complications that her body just couldn't handle the IV antibiotics anymore and she passed away (no suicide in her case).  

I truly believe that everyone should learn as much as they can and be their own advocates.  Educating oneself, asking many questions on forums as well as their own doctor (people forget that doctors work for them not the other way around), reading books, etc. is one of the best solutions in any disease. 

As I always said, if one's current protocol is not working after a substantial amount of time, then it's time to explore other protocols.  I also believe that a protocol should "not" make a person feel worse.

Gary, I believe that in time you're gut will heal totally.  I am just so happy that you were open-minded to alternative medicine and how well you responded!!

Denise

Posted 6/18/2011 12:22 AM (GMT 0)
Finding the balance. That is the key... Alternative without antibiotics just wasn't enough and that has nearly killed me. So its onto antibiotics just long enough to handle the co-infections and bring it under control. Though I am still going to be getting my Myers cocktails twice a week, my vitamin D injections (because my D level is the lowest my doc has ever seen) and massive amounts of probiotics both through pills and through homemade yogurt and kefir.
I live in a place with no bathtub. darned sorry now I designed it with a walk-in shower and not a huge soaking tub.
Oh well, when I am in NY I will use my mother-in-laws to do detox baths.
Posted 6/18/2011 1:38 PM (GMT 0)
walkingafineline,
You may want to get into the habit of doing epsom salt/hydrogen peroxide foot soaks every day, as it will probably do you more good than sporadic detox baths.
Posted 6/19/2011 10:36 AM (GMT 0)
Tala, I agree with you that doing foot detox baths on a daily basis is much better compared to the tub baths if not done routinely.  How are you doing on Dr. Jernigan's protocol?  

Lymester, I feel Merck (the manufacturer of Vioxx) should have done more testing on Vioxx before releasing it but just like the other pharm companies, they were out to make big money.   Hey, big business in pharma companies!

As far as doctors getting their licenses taken away (and rightfully so), I don't know how many doctors you know personally that lost their license due to malpractice.   I personally know of many (not lyme related doctors) due to the many operations that I needed to have since 1974 that I could probably write a long article about not to mention doctors that treated friends of mine as well as other family members.

One thing I learned in life is no matter how good a reputation a doctor has, that still does not make them perfect as they are human and make mistakes just like the rest of us.   I also learned to ask questions and do my own research before "hiring" a doctor to do work for me.    But that's me.  I never take a doctor's word just because he/she has a big name.  That means nothing to me.  It's how they answer my questions after I do my own research that influences my opinion of them.

Posted 6/21/2011 11:22 PM (GMT 0)
A lot of the LLMD that have been persecuted have only been trying to help others with tbi's. It's a tricky thing trying to decide which abx will actually work for which infection in which person. I just wanted to show why we don't allow anyone to post the full doc's name. We have precious few docs willing to treat us as it is!
Posted 6/29/2011 4:50 AM (GMT 0)
 

I just posted this on another string, but the cancer documentary Healing Cancer From the Inside Out discusses the battle between allopathic and homeopathic medicine in the U.S. early on.  You will see in that film, that there has historically been persecution toward practitioners who do not "fit the mold."  

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