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Severe 24/7 headache?

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Posted 7/17/2011 5:11 PM (GMT 0)
Anyone woke up one day with a severe 24/7 headache that felt like nerve pain. It travels behind your eyes, and around to the back of your neck? Mine has not gone away for 6 months. Main reason we put all this together and discovered lyme.
Posted 7/17/2011 5:57 PM (GMT 0)
Hi romohr,

Welcome to the forum. So sorry you have such wretched symptoms. There is just no way to run away from such awful pain in you head is there?
Are you getting any treatment at the moment?

Please take a moment to read the permanent thread at the top of the forum entitled "New to Lyme? ... Start here" It has a great deal of very helpful info and resources. Also please note that there is a search function at the top right hand corner of the page. You can use it to comb through the older posts to answer your questions.

Hope you get some relief from your head ache soon.
Posted 7/17/2011 9:09 PM (GMT 0)
I would suggest you start detoxing - slowly at first. There is a great post on detoxing in the "New to Lyme?" thread that Achievinggrace mentioned.

It's very much a possibility that your headaches are either caused by or made worse by the toxins being released from the tick-borne infections (TBI"s). Here is an article by a well known LLMD explaining about toxins and how they affect us: findarticles.com/p/articles/mi_m0ISW/is_285/ai_n19170382/?tag=content;col1

Start with drinking lemon water - up to 2 quarts a day. When you start the Epsom salt/peroxide baths, only stay in for 10 minutes the first time or two until you see how you react. Also please do the dry skin brushing, this will help with detoxing as well.
Posted 7/17/2011 11:37 PM (GMT 0)
I also had the 24/7 headache but for 2 years. Only upon treatment did it go away. I also discovered that sometimes if my headaches return, taking magnesium helps as it relaxes muscles and also detoxing with lemon water helps. I hope you get some relief soon. It is a terrible terrible feeling.
Posted 7/18/2011 5:46 AM (GMT 0)
 

I agree with everyone's posts on detoxing.  For most Lyme patients, toxins are the cause of headaches. 

I get occassional headaches like you describe (not 24/7), but mine are more the result of having been in a car accident where the neck and the plates of the skull were affected.  Because I had skull plates slightly out of place, they would press on things, and I would get terrible pain behind the right eye, going through the forehead, around the top of the skull, and into the right jaw joint and neck.  A combination of chiropractic and craniosacral therapy is finally helping correct this, after seven years.  I also have a mouth guard for TMJ and teeth grinding, which helps stabilize the jaw joints.

 

Posted 7/18/2011 1:15 PM (GMT 0)
Oh my gosh. I cannot believe how many of you experience this! This is just one of the symptoms I am experiencing. I woke up 6 weeks after my daughter was born with this headache and it has not gone away since. I am on gabapentin for it, and am up to 1800mgs. I keep having to increase it. I also take vicodin or percocet. It varies daily on which works and which doesn't. I either have a tolerance or the headache it neurological and can't be helped by the medication. I am going out of my MIND! I cannot believe some of you have dealt with this daily headache for YEARS! God love you. I see an internal medicine doctor on July 25th. I have been waiting TWO MONTHS! I hope he puts me on an IV of antibiotics. My mom and I are convinced this will help. I had a shot of riceplin (sp?) a couple weeks ago in my toosh and the next day I felt AMAZING! Thank you so much for your replies. Although it is tough to hear, and I feel for you all, it IS nice to hear I am not alone. :)
Posted 7/18/2011 1:20 PM (GMT 0)
I also have severe TMJ. I wear a night gaurd. It was to a point two months ago I broke my front tooth off!! I also discovered I have sleep apnea, which explains to a point my sleep issues but not my falling asleep issues :( The sleep apnea is alittle weird to tell people because I'm only 5'5 145. :) But I wear my mask and my dental gaurd. It's like gearing up for space travel when I go to sleep. LOL.

I am wondering what medications you all used to treat your headaches while you did treatment for lyme? I know my doctor will know specifically (sp). I am just curious what you all did medication wise. I also drink lemon water and nothing else. I also did an allergy test and removed all those foods from my diet.

I apologize for my spelling, it has become worse and worse as days go on.
Posted 7/18/2011 3:28 PM (GMT 0)
hi all! im in the process of trying to find a LLMD as i have yet to be diagnosed with lymes but have been experiencing symptoms for 6 months and the last 2 months have had constant head pressure and pain! is this the type of headache lymes can cause? it almost feels like i have been tipped upside down and all the blood rushed to my head- it also causes pressure/fullness in my ears and sometimes face, and the feeling moves around my head. i was concerned it was nerve or blood vessel related because i have also had pulsating feelings. i have tried ibuprofen but it doesnt help and im not on antibiotics. is this typical of lymes?
Posted 7/18/2011 4:58 PM (GMT 0)
I have a very high pain threshold so have avoided the headaches for the most part. However, I think the headaches are caused by the body's inflammatory response (brain/CNS swelling causing pressure and pain). Don't think that I am somehow "lucky" though for not having the headaches - for me, instead of pain, I get intense vertigo and light-headedness - and I still experience the head pressure (all probably again due to inflammation). So, there's no escaping symptoms not matter who you are! The challenge is to try and 'accept' them as we chart our path to getting better!
Posted 7/18/2011 6:10 PM (GMT 0)
The 24/7 type of headache (only one of many types for me), actually feel like my head is toxic. Similar to how Teeners explained - being turned upside down for waaay too long, combined with a 'buzzy' or electrical type of feeling, being almost dizzy, and just kind of 'out of it'.
For me the only thing that helps is dry skin brushing,detoxing and lots of lemon water, as Darvocet and Vicoden don't touch this. It takes a day or two for it to work, but at least it works!!!
Posted 7/18/2011 6:32 PM (GMT 0)
My headache feels like nerve pain. When it's full it feels like aching on my forehead and wraps around to my neck and the back of my head. When it's really bad and I don't have gabapentin in me it feels like pressure behind my eyes and knife life stabbing behind my face. Does anyone experience this? It feels like something is twisting and pinching the nerves inside my head. :( Before we figured it was lyme my mom almost thought I had a form of shingles.
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