Symptom Timing during the day.

Okay, another interesting observation from your resident technical guy (read: anal person ). I have noticed that my symptoms vary during the day and I think everyone sees that. But mine also have a distinct peak period - abt 3:00pm to 7:00pm. Part of this was explained away by my mistiming of my cholestyramine dose but, still there is a definite rise is symptoms at mid-afternoon (2:30p to 3:30 pm), they stay for a couple of hours and then slowly subside beginning around 7:00pm and nearly gone by 8:00p.  My symptoms are primarily dizziness, lightheadedness, more difficulty concentrating and sometimes some disorientation   . It's a little creepy because that is the time I am getting ready to drive home in the evenings after work - 36 miles and not real good for the confidence at that time. Today, I am home but it hit almost dead-on at 3:00 today (I am on EDT).

Three questions:

1. Do others have this regular timing to symptoms?

2. What might cause this?

3. Any suggestions on how to deal with them while they are underway? or just wait them out?

Hmmmm....interesting. I wonder if I time my exercise for that time period if it would ward them off? Or at least slow 'em down? Something to try.

Hi lh - thx - yeah, I usually feel better after exercise. Part of it is physical but part of it psychological. If I lie around too much, I begin to just focus too much on the Lyme and the symptoms - this just causes me to have anxiety on top of the symptoms. It's crazy trying to separate the real symptoms sometimes, from the ones I add on. But I now have a better feel for this. The key again, seems to be BALANCE - balance the exercise, the diet, sleep, the meds and the detox in a way that fit your own body and constitution. That is the pathway back to health.

Yeah - it could be a variety of things, I guess. I usually recover after dinner, so maybe its a blood sugar thing too...Lyme-based of course cuz I never had this before. My eating pattern is typically a light breakfast, a light lunch and a big dinner - so maybe this is indicative of the light meals early in the day not sufficiently fueling me until I get to dinner? Or, we all have regular diurnal cycling - maybe it's related to that!?!

Interesting

good for you, cat111. Generally, I had a very good day too. I did have increased symptoms late afternoon and evening but just flowed with them - worked all day, drove 36 miles home, then to grocery store. PLUS, like you, I got a 40-minute run in on the treadmill at lunch - that covered 5 1/4 miles - sweat and working out - feels right to me too - feels like I NEED to do this to get the Lyme out!  Hey - lightheaded and stuffed ears are my thing too these days - as well as stiff in the upper back and neck! We're Lyme cousins!

Umm, Jess, very few 90 year olds run 4 miles in an hour!!!!

My best 5-mile time is 33:40 on the treadmill and 35:35 on the road. But, after my Lyme "attack" I struggled some (thought I was "overtrained") Still I can muster sub 37:00 on the treadmill for five miles these days. I do between 97-103 minutes for a half-marathon. I am really getting p-o'ed at this Lyme and really am preparing to kick its butt - soon! I don't want to do too much, too quickly, but I am slowly amping up my training program - I may target a half marathon is Rehoboth Beach, DE in early December. I doubt my time will be my best but I am planning to run it.

I broke my hip on Mar 31st 2007, another two bones in my arm and a finger plus had 37 stitches to my face (fell off a ladder while power-washing my house). My 1st question to the doc was , "When can I run again?" He LAUGHED and said - maybe a year? I said "WRONG ANSWER!" LOL, he did scare me some when he said, "Look, you can do this RIGHT and run again, or, do it WRONG and never run again.!" I calmed a little and meekly siad, "okay" but please monitor me closely and be honest with me as I plan to heal quickly (I always do). On Jun 23, he said you can start running - less than 3 months AFTER A BROKEN HIP. a month later, I ran a local 5K and beat 75% of the people there.

My deal is with some things, I tend to sit around and sulk and pity myself. I guess this is okay to an extent but, ultimately, that gets us NOWHERE. The answer is to always move forward, accept setbacks now and then and summon all your physical, mental, soulful, mindful and spiritual qualities and BRING IT! The commercial by Nike - JUST DO IT! - what a thought!! Don't get me wrong, it is important to get good rest and don't go crazy but, try and find that sliver, that edge of what you can fully do, and grab it...and don't let go! We have one life here, folks...LIVE IT!

Okay, enough of my self pep talk....I plan to rest this evening to let this herxy feeling of starting a new pass a little - and it's super hot out here. Tomorrow, I hit the YMCA for a nice cardio work-out and each subsequent work-out, I am going to push the envelope just a little further....

I was skeptical when you began to say you knew the owner of the company and could get a discount on the products - those were big red flags to me that some type of conflict of interest was involved. But, again, just because they were red flags does not mean that any funny business was going on. And, then, instead of providing a better explanation, you seemed to go on the dfensive immediately which raised more red flags.

Look, I am no mind-reader. Also, words written in black-and-white can be and, are indeed often misinterpreted on the internet. Add to this that the area of Lyme is rife with scams and money-grubbing con-artisits, then sometimes good people get misidentified as not-so-good. This appears to be the case with you. But, also when dealing with the internet, you have got to have a thick skin sometimes - don't take things personally and, instead, try to explain your position in more detail. No offense was intended.

Congrats on the 7:20 mile as part of a 4-mile run! That is awesome! I am 51 - I did one single mile a couple years ago in 5:55 and I have run a 5K in 20:12. But, I had hoped to be able to run either a 4- or 5-mile run in under 7:00/mile average - I have done it on the treadmill but not on the road - yet! And I am slower these days due to the Lyme. Too hot out here to run now - have to stay on the treadmill!

Back to running, One blessings of Lyme is am lighter now at 45 then when I was 21. When I have symptoms I "waste" loosing all of my fat and muscle, so when I get started again on the healthy diet I develop muscle weight not fat. Ergo i have gone from slow to pretty slow. I was psyched to get the 7:20. I think i will go for a mellow bike today with the heat.

JT

I am with you JT - 9 years ago, I was age 42 and 280 lbs....I lost 80 lbs in a year and I never gained it back. Now at 198 and physically very healthy (except for the Lyme). Lyme has a message for those of us who will listen...get healthy and get with life...I wrote a book and began painting watercolors too (book brought some minor local acclaim)...without Lyme, I might just be your average working stiff plodding through life...

I am envious of you.

I can't do any amount of walking or riding any more.

My ankles, hips and knees wont allow it. I end up with swollen legs and hobbling like I'm 190 yrs.

I do get into the pool but once fall comes it'll be closed for the winter.

Getting back to the topic...I also get the light headedness and total fatigue. Starting at 2 or 3pm to 8pm.

So go ahead and add me to the list.

Cat I love the quote from Cary Grant. Thanks for sharing.