LLMD in Connecticut and another question...

I think it is very common to be aware of the bite area, especially at the lower dose of treatment.

My own opinion is that if you can do the exercise, you should; especially if you are accustomed to that kind of activity. If the discomfort doesn't go away with movement it is time to stop -- you could be doing damage. Otherwise, the exercise is helping you fight the disease.

When you find your LLMD they will no doubt have an opinion. My own doctor shares my opinion (or is it more correct to say that I share his!!??)

Happy running!

You have a very positive test results. IMO the important thing with lyme as is with any other disease is to make sure you are not exhausting your body so it can fight off the disease. If you have always run and can do it without getting sicker, keep going. But if it is taking your body to the limit of exhaustion, it is better to cut back and give your body a chance to heal. I myself was always active and just have not been able to get back to that level of exercising YET. I do hope to get there someday tho. Best to you.

You are reactive on more than five bands, so even the CDC would recognize that as a positive. Many of us do not test that positive and yet have Lyme and often co-infections.

MSRunner603 said...
Just wondering if anyone knew of some in CT? Peferably between Southbury and Wethersfield. .

Hi MSRunner603,
I'm in the same geographic area as you mentioned above. If you do find a LLMD in this area, would you mind posting it? I'm looking for one as well. Thanks and best of luck with your recovery!!

Right. Having a very positive result is more like saying a clear positive. You can still have lyme with just one band and it doesn't even have to be lyme specific but with your result there is no question. It does not unfortunately tell how long you have it. My son, who we believe just got it, had a VERY positive test but he also had bulls eyes. I would though tend to say with all 3 positive IGM bands that it is an early infection and that would be a good thing.

HI MSrunner!
I'm really sorry to have to edit you post, but we don't openly give out LLMD names here on the forum in order to protect them - they are being persecuted by Insurance co.'s and by the Medical Boards because they treat according to the scientific evidence, not by what everyone else is doing.

In my most honest opinion, I would give this guy a shot! Do yourself a huge favor and read as much as you possibly can in order to understand this set of infections and the different treatments - no one knows your body like you do and you will be the first to know if something isn't quite right! Learning all you can will help you to help your doc understand what's happening with your body, that way he can change things when needed for the best possible outcomes. If you choose to see this doc, please be sure to let us know what you think of him and his practice!!

As for your running - I agree with the others about doing what you can do to stay active, but it's quite possible that leaving the longer distance runs alone for a while would be best. I would suggest that for one week try only running the shorter distances (only you know what this would be for you) and see how you feel. I'll bet that'll tell you a lot!

We do have a couple of marathon runners here right now, and they responded to another post of yours - "Running with Lyme". They have also had to reduce the amount of running and training that they do right now while they are under treatment.

Thanks MSRunner603 for trying to give out the Dr. info. And my apologies Traveler about asking for the info in the first place and thus causing you to edit their post. I too was unaware that you couldn't mention Dr. names etc., but it certainly makes sense to try to protect the Dr's. My thanks and apologies to you both.

MSRUNNER 603 and Ticked Off

 I actually posted last week inquiring if anyone was familiar with Mr. M. in Glastonbury.  (didn't get any responses)  I see a very good ND in West Hartford who treats Lyme but as you may or may not know, in Ct a ND is not able to write prescriptions.  So he refers his patients to Dr. M.  when ABX are needed.  I know that he is ILADS trained and does not take insurance (as you are already aware of).  I wish I knew more as I do have an apt on the calendar with him next month.  So, I guess what I want to say is 1) if you get any feedback away from this site, I hope that you will share it with us and 2) in the event that I do see him, I will certainly follow up with my experience with his office on this site.  Also wanted to mention that he has authored some Lyme articles in the Nutmeg Mag (can pick up in health food stores each month, it's free, I get mine at the Vitamin shoppe) and his name did come to me from Turn the Corner Foundation as well when I requested a LLMD that combines integrative with ABX in CT.  Wish I had more for you. 

Best wishes