Do Lyme sufferers experience morning stiffness in the morning?

I believe that it's just the arthritic nature of Lyme Disease. I experience the same things as Lymester. If I keep moving, I'm fine, but sit down or be still in any manner for 20 or 30 minutes and I'm all stoved up!

I do have to say though that I have Lyme Arthritis and there is obvious twisting and turning of my fingers and toes.

Moving is best for me too.  My muscles (not joints) used to 'stove up' as Traveler put it,  after being still-- on the couch, sitting in a chair, riding in the car-- for only a few minutes.   

As soon as I would get up and go do something the stiffness would abate.

Lately this stiffness has gotten much better.  I feel more relaxed, can be still for longer periods of time.....and only parts of my upper back plague me now when I am still, with a sensation that isn't really stiffness.....

...... but more of a feeling like my back muscles have holes in them that are opening and closing.  It's like a school of fish are swimming around in my back, gasping for air. A REALLY WEIRD and new sensation!!! 

Lyme is just so full of bizarre surprises.

Maybe it's the spiros trying to find a place to hide or they are 'screwing around' LOL..... as the antibiotics chase the last of them down.  

I still have some muscle knots-- very fibro-like-- in my back and shoulder blades.  These developed many, many months ago and even with massage or trigger point pressure (which feels really good!)  they never go away. 

Some days they do not need attention and seem to be benign (pain free, hooray!!) and on other days they scream to be pressed on.  

I keep one of those big, knotted rope, dog chew toys in my car and place it between my back and the seat-back, and roll around on the knots. Feels great.... though it can bring tears to my eyes when I hit a particularly nasty spot.  Once the blood gets flowing there is a wonderful feeling of release and relaxation.  Ahhhhh......

There are times when I get up from a very lengthy lie or sit-down and hobble off like I'm 100 years old.  Sometimes I think it's all in my mind though, because I have jumped up on occasion to run to the phone or to stirr something I'm cooking that I forgot about.....and there's no stiffness at all.  

My LLMD says this stiffness is always a Lyme patient complaint and that it will go away.....and is always one of the last things to go away. 

Hmmmmm.    I do wonder.   Ever hopeful.  

I'm going try to NOT BE STIFF-- in my mind-- when I get up, rather than going with an expectation that I will be stiff.    Mind over matter. Maybe.  

 

I do a lot of stretching throughout the day and that helps in an over-all sort of way. I'm also not to move too quickly when I do get up though - I have really created a muscle cramp by doing that and then, I'm really in pain!!! I have to hobble in to stir that pot on the stove!!! That's when I suddenly say -Let the darn thing burn!!!!!

Actually for me, it usually starts with *sniff sniff* what the heck am I smelling?? *sniff sniff* "OH NO!! Not again!!!" **jumps up and tries to run, hobbles, almost falls because legs won't catch up with upper body** "Oh! ow! Oh! Youch! .... Oh well, pizza anyone?"

Traveler

Thats hilarious...well sad at the same time but thats exactly it with the Pizza anyone comment. Bahahahaha!!! Thats me to a "T"

Funny when hubby and I go somewhere and we get to the destonation and we get out of the vehicle and he comes around to my side
of the vehicle and just lingers while i drag myself out and hobble inside the store, limping, and breathing funny cuz of the pain. He
grabs my hand to steady me, and when I get inside and see all the stuff I can buy my pain is put on the second shelf. funny how some
things can just take your mind right off the daily hell we go thru.

Thanks Denise what a good thread makes me think of all that I went thru and still go thru with my parents and friends. The hardest one to
take for me was when I bought the Under our Skin DVD to give to my parents whom didnt understand alot. The only question my mother had
and addressed my hubby was "What Part Is In Her Head" WOW!!! I was so hurt for so long and didnt speak to her for a yr. Now I keep my
distance from people who dont want to learn or have negative attitudes and comments.

Good Luck to Everyone and Be Strong for Yourself, or Visit us here this forum is a lifesaver....MMMM cherry lifesavers oopss just a thought