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Posted 9/21/2011 10:06 PM (GMT 0)
  I just came from my LLMd appt. While I am so much better than I was a year ago, one thing remains. Everyday my skin gets itchy and crawly. I have been on Mepron for 8 months to treat Babesia, Amoxi Clav, 4000mgs/ day for Lyme. I am  taking A bart for Bartonella. I have lost 25 lbs. since this started over 1 year ago. Dr says the Bartonella is causing the odd skin sensations and she can't treat it with pharmaceuticals until the Babesia is gone.I also take Xanax for my anxiety, Lyrica for the tingly crawly sensations, and Geodon as a mood stabalizer. I won't lie, I cry alot.I have given up sugar and most carbs. I am slowly adding in fruit. Oh I forgot to say that I am taking Nystatin pills 3 x a day too. I am also on numerous supplements and probiotics. My question.....does anyone else suffer like this? My heart go out to all of you. This is driving me nuts. I have been faithfully dry skin brushing. The baths lately seem to make me worse. I take showers. I have fractionated sleep patterns, some nights better than others. How the heck long is it going to take for me to feel like my old self. I want the OLD me back yesterday. I do get random joint pain, mostly my knees and fingers. I am sorry for this rambling rant. I just want to know how many others might be experiencing symptoms like me. Thanks for your responses....Lis
Posted 9/21/2011 10:47 PM (GMT 0)
Hi Lis,

So, so sorry you feel this bad. I do know what you are going through because I was the same way awhile back. Good news! With treatment it went away.

Goodness knows I was went on a very long trip on the crazy train because of it! I don't know how I was polite to people while those symptoms were in play; I just wanted to scream!!

It sounds like your doctor has the situation in hand and you are making progress. The trick is to hold on during this bad time until you turn the corner again.

And don't be sorry about going on about this -- that's what this forum is here for!

Hold on!!!
Posted 9/21/2011 10:56 PM (GMT 0)
Thanks so much.It makes me feel better to know others have felt like this. Sad that anyone should suffer though!
Posted 9/21/2011 11:09 PM (GMT 0)
This is my thrid relapse and emotionally the toughest. It has been a relization that I tried to pretend wasn't real before "I will always have Lyme". I have been so mad at that I was outside in my yard screaming, tears running down my face pulling the grass out in a frenzy because I was mad at it. Mad at the grass! I was mad at the live parts for not being sick and growing, and I was mad at the dead parts for not being sick but still dieing.
I wanted everything to just stop, if I was going to forget where I lived why couldn't I then forget that I was sick? I am still working on my last relapse and am only upto 1/4 the recomended dose of antibiotics because of the herx reactions and my bodies inability to handle the medications. (My brain swells up, not good).
I have delt with the crawling and fantum sensations and pains, the endless amount of pills, halucination, inability to walk, talk, hold a pencil, and countless other things. The good news is that even if you happen to be like me and keep relapsing there are good days to come.
Lyme is becoming more "acceptable" today and with treatment things get better. I haven't been as physically impaired by Lyme since my first diagnosis. and have regained much of what I lost. I am still batteling but I know where you are at right now and it's the worst place on earth. It will get better.
Posted 9/23/2011 2:06 PM (GMT 0)
  I am sorry that you relapsed. How long were you off meds to have this happen?Maybe your first treatment wasn't long enough. My LLMD said I could be in treatment for years! I am so impatient , and mostly would settle for just half of the old me back. I am on so many meds. Including some Psychiatric stuff. I hate it! I feel not real most of the time.I am hoping to cut back on some of these meds soon. I am just so afarid it will affect my sleep patterns again, as that was a major issue. It seems I have opposite reactions to alot of the meds. I hope you feel better soon. No one should have to suffer like this!
Posted 9/23/2011 2:22 PM (GMT 0)
Oooh, I can really understand about the sleep thing. It is so clear to me these days how even one night of bad sleep can increase symptoms and generally make for a very poor attitude.

And the impatience. I think if this disease could be cured by sheer force of will, most of us would be better by now!! But that isn't the way it works.

Do make sure you are feeling way better before stopping any of your meds -- and be sure to only go off one at a time so you know what is causing what.

Take care.
Posted 9/23/2011 4:29 PM (GMT 0)
I overwork myself most everyday. I find my mind going to dark places if I don't stay busy.It also helps to make sure that I just about pass out everynight , because sleep is so important to healing.Miss Cranberry, you are right, my symptoms explode starting in the late afternoon. I have way too much anxiety to take a nap!
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