HealingWell
Search Close Search
☰

Headaches due to lyme

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/22/2011 6:30 AM (GMT 0)
Hello, My 16 year old son was diagnosed this September with lyme after looking for a diagnosis for a year which is a long time in the life of a teenager. He has bad headaches which started with the lyme symptoms last year. Do any of you get these bad headaches and what do you do for them for relief? I would truly appreciate any suggestions. Thanks so much and blessings!
Posted 11/22/2011 7:31 AM (GMT 0)
Ocean.. My biggest problem before diagnosis was headaches.. I was diagnosed with migraines and cluster headaches.. These headaches are very very bad and include a stiff painful neck.. I had to be on a narcotic(tramadol) I was not able to function otherwise. I do not take them all the time because of the addictive potential. I will use tylenol or ibuprofen 1st and if I cant take it then I use the big gun. Please take it his pain very serious. There were times where I barely made it through the pain was so bad. May I ask is he still receiving treatment? In my experience the headaches should be getting better with treatment..
Posted 11/22/2011 11:46 AM (GMT 0)
Yes my headaches were daily for over 2 years, and I never had headaches in my llife. My husband is also suffering from headaches. I will tell you that after treatment for 2 years my headaches are totally gone.

The recommendations I would try are resting (a daily napa would get rid of my headaches sometimes) and drinking alot of fluids including lemon water. Also the LLMD suggested rubbing peppermint oil on my husband's temples. He thought she was crazy until he trie dit and it worked. He was like me, and willing to try anything. Also, magnesium is so important. Somtimes the headaches are caused by muscle tension and magnesium will help with that.

I so hope things get better for your son. Is he still in treatment?
Posted 11/22/2011 12:19 PM (GMT 0)
Yes I have also had headaches for over two years some migraines and some cluster. Dark rooms and also cold compresses with arnica in the cold ice water. They are very debilitating and should be taken seriously. I can't imagine having someone so young with all the same problems as me. I hope he recovers quickly! He has so much life ahead with hopefully no Lymes! Take care
Posted 12/11/2011 11:21 PM (GMT 0)

Thank you all so much for the information regarding headaches for my son. He too gets neck pain with the headaches. He has tried Trmadol and it did help, but I don't let him have that too often as was said it can be addictive. The neuro. doc. put him on Pamelor, Midrin, and Isometheptene dichloralphenazone acetaminophen. He started of with Doxy. for about two months and then he just finished up ten days of Quinine and Clendymiacin is now beginning ten days of Biaxin and Plaquenil and will repeat the cycle with the clendimyacin and Quinine. etc. I did notice that he has had a few days where the pain level was down which is great considering it was a 9 out of 10 many days before treatment or in the beginning of treatment. His flare ups occur about every four weeks cooincidently at the time of the full moon. This flare up right now doesn't seem to be as intense as some have so maybe on some level things are beginning to work which would be good for him. I can't imagine the pain he and all of you feel. I pray for peace and comfort.

I feel terrible for him as he is 16 and wants to be at school taking engineering classes as that s his goal to be an engineer (medical). He also of course wants to be with his friends and it as you all know is hard when you feel so bad. He is blessed to have caring and understanding friends though and that is the saving grace for him.

I appreciate all of the feedback I have gotten and apologize for not replying sooner. Thanks so much and have a blessed day.
:-)
Posted 12/12/2011 5:38 PM (GMT 0)
Thanks for the info Springsjean! I have a 16 year old daughter who has Lyme and Bartonella, and she has headaches quite frequently. They are usually mild and they tend to migrate (one day it's behind her left eye, next day it's near her right temple, then by the base of her neck, etc).

I am taking Magnesium Malate myself, and now I will be adding Magnesium to her daily vitamins!
Posted 12/12/2011 6:10 PM (GMT 0)
One other thing I would suggest, only because my husband and I swear by it, is Arnica cream.  It is reasonably priced and I got it in Whole Foods.  We just bought more and I noticed it said for headaches.  My sister was just overseas and she said the Europeans use it for everything.  Perhaps this could help your son's headaches.  Google search it.  My husband is amazed at how much it helps him as he is very conservative when it comes to new things. 
Posted 12/12/2011 6:55 PM (GMT 0)
The neurotoxins that come from systemic infections can cause a chemically induced form of Migraine. If your currently not being treated, diet and lifestyle changes can make a big difference.

BTW - I've hear the figure that only about half of folks with migraine (a neurological disease) actually have headaches. Brain fog and auras are also symptoms. I personally almost never have headaches. At my worst I can feel pressure in the temples.

Alka Seltzer Gold (w/o aspirin) can give temporary relief (but it is high in sodium).

Here is a book that was recommended to me and I've recommended it to others who have found it helpful.

www.amazon.com/Heal-Your-Headache-Program-Taking/dp/0761125663

This is a convenient link but it's available at other retailers also.
Posted 12/12/2011 6:59 PM (GMT 0)
I am like you Sickman, a very high pain treshold so rarely experiences painful headaches. That doesn't make it any easier because I feel the pounding and pressure just the same.
✚ New Topic ✚ Reply