Hi everyone,
I am brand new to this site and registered because I have been feeling so down as to be suicidal....
For years now I have had chronic neuro pain, starting 2-3 years after I had bells palsy (now some 15 years ago) I began having 'electric shock' type of feelings on the left hand side of my face and a crawling/migraine feeling that was unexplained despite numerous scans and I was told I was just stressed. I ended up very depressed and had panuc attacks. Prior to this I must admit I had been doing recreational drugs frequently too, so it was put down to this. I went onto a drug called dosulpein and gradually the pain and depression got under control and I went back to work. Fast forward to three years ago when after being diagnosed with polycystic ovaries that gave me acne, I was put on a strong drug called Roaccutane/isotrentin. After 6 weeks of being on this drug my neck seized up and I started getting terrific nerve pain and migraines on the left hand side of my neck and down my back. I have developed multiple chemical sensitivity and am in chronic pain constantly.
To cut a very long story short (apologies for the length of my first post!) I paid to see a doctor atBreakspear Hospital here in England, where I was tested for Lyme disease as the doctor believed the initial symptoms could have come from Lyme (cold feet,twitching muscles low blood pressure, cracking joints, stiff neck, sensitivity to light, seeing 'floaters and white streaks',chronic neuro pain, brain buzz when eating sugar etc) and my WB tests came back as follows:
IGM _ 23-25 IND
31 IND
39 IND
41 +++
IGG - 31 IND
39 IND
41 ++
58 +
My doc says it shows clinical significance of being infected in the past, even though the results say 'negative' on the papers and my nhs doctor and every neurologist Ive seen says its not Lyme. I also had some 'white matter' show on my brain mri, which they have said jyst shows migraine.
Apart from my partner, everyone had been treating me as a suicidal depressive and can't understand why I feel like I do. I was a very happy woman until this began again, but niw I am struggling to live... I would really like someone to be honest with me and let me know if they think that my results point to Lyme, as my pain is now beyond a joke and I really don't know what to do...
I apologise for my ramblings but I hope that someone might be able to offer some advice. Thank you so much xxx