HealingWell
Search Close Search
☰

Is it time for a Lyme Literate Doctor?

Support Forums
>
Lyme Disease
How many other people accidently X-ed this box?
yes - 33.3% - 1 votes
no - 0.0% - 0 votes
My brain isn't working! - 66.7% - 2 votes
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/12/2012 5:18 PM (GMT 0)
I was diagnosed with Lyme back in the Fall of 2011 with a HUGE Lyme rash (not that size makes a difference). My doctor put me on 2 months of Doxy and I felt better for a short time. My fatigue, joint pain and weakness never went away and she referred me out to see other specialists for Carp Tunnel and Raynauds. The Rumatologist diagnosed me with Fibromyalgia and my doctor put me on the meds for that. In the meantime my original complaint was still persistent and then I was diagnosed with ADD and (I'm in my 30's) and then I started to have memory issues and Brain Pain ... I suppose like a Brain Freeze but much much more intense and lasts about 30-60 seconds. Anyway... I think it is important at this time to mention that I do not have ANY vascular access but my doctor INSISTED we NEED to get my blood ... somehow... and we got enough to test for Lyme and a few other things.... I tested positive for Lyme. So, last week my DR. put me back on Doxy and my symptoms were getting really bad ... I just saw her this morning and she changed my antibiotic to Levofloxacin; I asked for a brain scan or something because of the head pain/brain freezes and memory issues and how I will be in the middle of a sentence and I just forget what I am saying. But she told me that a scan won't show anything. So... I need to know if I am doing the right thing by staying with my DR. or should I be seeing a Lyme Literate Dr.? Is my doctor doing right by me? I am SO confused right now .... any help would be appreciated.
Posted 4/12/2012 5:50 PM (GMT 0)
I think you need to see a lyme literate doctor or at the very least, learn about how lymes works so you have answers to ask the right questions to a doc to find out what they know and if they can actually help you.

I just wanted to tell you about the Levofloxacin which is from the family of fluoroquinolone antibiotics.

There are many names that they are marketed under and have a bad reputation for injury. I know 2 people injured from them. One central nervous system injury, the other tendon rupture.

CNS side effect injury would be like lymes symptoms etc.

Beginning side effects can be insomnia, panic attacks, muscle pain is an indicator.

They call the injury getting floxed from "flox" being in many of the drug's brand names. It's been in litigation for a long time, but still being prescribed.

There are many names for it. Levaquin , the Levofloxacin that you are on is a fluoro, cipro, ciproflaxin, and there are many MORE different names for the same drug in that family. Here is a site you need to read.
http://fqvictims.org/fqvictims/index.htm

Good luck okay? xo

Post Edited (waverunner) : 4/12/2012 11:54:27 AM (GMT-6)

Posted 4/12/2012 5:54 PM (GMT 0)
Thank you so much! I am really trying to invest my time into learning about Lyme and getting accurate information. I am so grateful!
Posted 4/12/2012 7:43 PM (GMT 0)
Absolutely it is time to see a LLMD!

Way overdue, I would say. You want to treat this effectively, especially as it seems to have progressed into your Central Nervous System.

As well meaning as your doctor might be, they simply don't have the training and experience to treat Lyme thoroughly.

You will need to be assessed for the several co-infections that often accompany Lyme that interfere with treatment.

Let us know if you need help finding a Lyme doctor. Also, don't forget to have a look at our "New to Lyme?" thread. there is a lot of very helpful info in there.

Glad you have found us! This is a great group, very supportive and informed. Ask away!
Posted 4/12/2012 7:50 PM (GMT 0)
I PERSONALLY have been poisoned by Cipro, Levaquin, and Avelox!  Think twice before you even consider these drugs!  Most of the symptoms are similiar to Lymes....except tendons issues...I beg you NOT to take these drugs!!!  :)
Posted 4/12/2012 8:21 PM (GMT 0)
I don't really know what else I can take.... I am allergic to any penicillin based antibiotics as well as Bactrim. I got a list of Lyme Literate Doctors but there aren't any in my area that are able to get my in before July. I have to start calling outside of this area
Posted 4/12/2012 8:26 PM (GMT 0)
SO am I allergic to cilliams as well...I have read of others taking different kinds of antibiotics..trust me..It is NOT worth the PAIN!!!
Posted 4/12/2012 8:30 PM (GMT 0)
What are all those listed below your post? Hahaha I have like half of those! no really laughing by the way!
Posted 4/13/2012 12:19 AM (GMT 0)
Yes Yes Yes absolutely it is time to see an LLMD! Regular doctors do not understand Lyme or how to treat it so that it actually goes away! Please do not hesitate and make the call for an appointment with an LLMD as soon as possible.

The longer you wait, the more damage the spirochetes are doing, which means a more difficult & longer recovery.

Also, fluroquinolones are not really all that effective against Lyme. Tetracyclines and Flagyl/Tindamax are more effective.

You also need to be assessed for coinfections. Only an LLMD really has a clue about how to do this right.
The tests for coinfections are even less reliable than the tests for Lyme.

Also, I'd suggest reading the thread at the top of the forum for those new to Lyme - there is a lot of great information there.

Take care,
✚ New Topic ✚ Reply