do i have full blown neurological lyme?
yes - 0.0% - 0 votes
no - 0.0% - 0 votes
no its m.e. - 0.0% - 0 votes
yes - 100.0% - 1 votes
no - 0.0% - 0 votes
no its m.e. - 0.0% - 0 votes
no its toxic overload and metals - 0.0% - 0 votes
possibly lyme - 0.0% - 0 votes
you're mad! - 0.0% - 0 votes
jolene73
Regular Member
Joined : Jan 2012
Posts : 22
Posted 5/17/2012 3:43 PM (GMT 0)
Hi everyone,
Hoping that someone might be able to help me.
I am going through hell at the moment after starting a detox last year (dr Wilson adrenal fatigue) and stopping 3 months in due to scary symptoms coming back.
My main symptoms are all neurological based: intense migraine/seizure ITA like symptoms that are from head to toe: tingling, electric shock, twitching, MAV, mental/emotional issues, feeling like I have way too much adrenaline/ insomnia etc. No pain relief wprks and my feet are blue, puffy and extremely dry. I also cannot lift my arms due to pain.
Is this Lyme, M.E or heavy metal toxicity? I had bells palsy at 21 (I am now 39) which I put down to my wisdom tooth being overerupted on that side and pushing my jaw out. However I also had an immune problem at 16 where I lost loads of weight, couldn't eat, had severe exhaustion and swollen glands
It was diagnosed as glandular fever at the time but I also temember I had been in Thetford Forest a lot that year where my sister was based as a police officer (a big Lyme area)
Anyway, my lyme results are as follows:
2010: igm:22-25 - IND, 31-IND, 39-IND, 41- +++
Igg: 31-IND, 39-IND,41- ++, 58+
MELISA-P100 B.AFEZELLI 3.20, PEPTIDE MIX 4.15
2012: LTT: BBSENSU STRICTO - 3.85
PEPTIDE MIX INC SENSU STRICTO 12.04
FULL AG LSYATE BB SENSU STRICTO 4.98
What does everyone think? Full blown neurological lyme? Or M.E? ? Or just toxic overload from years of abusive behaviour to my poor old body? Everytime my body goes through extreme stress situations and too many chemical/drug/stressful situations the same thing happens....I am iller. now than ever....
can anyone help shed some light!
Thank you
xxx
Tickle
Regular Member
Joined : Mar 2012
Posts : 150
Posted 5/17/2012 7:23 PM (GMT 0)
Just based on the poll with its repeated answers, I'd say you have lyme fog! lol
jolene73
Regular Member
Joined : Jan 2012
Posts : 22
Posted 5/17/2012 7:48 PM (GMT 0)
Oh bloody hell, I didn't realise I had done that... might attempt at light heartedness in the face of adversity. What do you think of my lab results, tickle? I really do need someones opinion.
Tickle
Regular Member
Joined : Mar 2012
Posts : 150
Posted 5/17/2012 9:34 PM (GMT 0)
My LLND considers an "ind" result as positive. It isn't negative, something was detected, therefore consider it a positive.
You are showing two bands that are specific for Bb, as well as one band (41) that is specific for flagella - which Bb has, so you're pretty darn positive for lyme.
Your physical symptoms are also hallmarks of lyme disease. Twitching, Bells Palsy, headaches....
I don't know what those other tests are...so I can't comment on them.
Disclaimer: I'm a Bb (patient) not a doctor!
jolene73
Regular Member
Joined : Jan 2012
Posts : 22
Posted 5/18/2012 9:30 AM (GMT 0)
Thanks Tickle. I just feel like I am producing so much adrenaline or something at the moment I am permanently exhausted. I can't even put my heels on the floor my neuro pain is so bad. Does that sound weird?
Would appreciate any other viewpoints too.
Posted 5/18/2012 12:04 PM (GMT 0)
Jolene,
I'm no medical professional either, but your symptoms and test results seem to point pretty directly to Lyme. It is so easy to blame all the symptoms on other things but when you step back and look at the whole picture, Lyme just makes sense.
We have several other members from the UK on the forum here, perhaps they can help you find a Lyme Literate Doctor. Or maybe you already have one in mind?