Anyone else with Lyme AND Celiac disease? / possible new infection of some sort from Costa Rica

I was officially dx'ed with Celiac back at the beginning of March. Before the Celiac issues started (Sept 2011) my lyme treatment had been going really really well. I even went a whopping 3 months without a lyme flare-up. Ever since the tummy trubs, though, everything began to backslide. The first few weeks of being 100% GF I started feeling better off and on but every slip-up/glutening would result in terrible week long pains (crippling exhaustion, severe bloating, cramping, diarrhea, then constipation, then severe muscle aches) (such a steep learning curve with this disease!)

I felt semi decent in the weeks leading up to vacation to Costa Rica at the very end of March. I did well most the trip until the last night. I felt AWFUL. Nausea, body aches, bloating etc, so I just assumed I got glutened and expected to be in agonizing pain for the next week then it would pass. Well. It's been almost 3 months now and that agonizing pain hasn't lifted. I'm only eating whole foods and have checked/re-checked all supplements etc so I KNOW I'm not glutening myself over and over. Is it possible that I'm still in such horrible pain because my intestines are still healing? I've read that it can take some people up to a year to feel better after going completely gluten free, but I'm also a tad worried that I could have contracted something else while in Costa Rica. (I am an idiot and didn't get immunizations.) (YEAH. I KNOW. Great idea! Lets go to a 3rd world country with a compromised immunity without getting immunizations!) (I believe this is called "natural selection")

This whole time I've been waving it off as MEH, this is pretty par for the course with healing Celiac but I'll be better once my intestines start healing. I just wanted to see if any other Celiac/Lymies had a similar struggle post Celiac diagnosis.

I am heading to my regular doc next week to run some tests just to be on the safe side. (Some symptoms don't seem related to Celiac or Lyme--I suddenly have no desire to eat. :/)

My god, if I got ANOTHER bacteria in CR I think I'm just going to live in a bubble.

Thank you, Lyme Warrior :)

My Dr. thought I suffered from Celiac but we later discovered it's crohn's. I blame Lyme because before Lyme 10 years I had no problems. I suffered from frequent potty breaks and times of constipation and a lot of gut pain, nausea etc etc...

Hey gang!

Jewels2970--I'm feeling about a thousand times better now. Thank you so much for asking :) The debilitating muscle pain turned out to be a severe vitamin D deficiency caused by the Celiac. I actually figured it out myself when I went to lay out by the pool one day. I came in and my muscle pain was significantly diminished the rest of the day, so a light bulb went off that it must have had something to do with sun exposure/vit d. Sure enough once tested my levels were near nil. Once I started supplementing the pain slowly faded away. :)))))))))

Razzle--I just read an article about the wax on produce being potentially contaminated. Kills me to hear it's true/affecting people. All I can eat now is produce and I don't like knowing that even that could be a danger zone. :/ My body is still in such upheaval trying to heal that I'm actually reacting to kale and spinach now! I used to have green shakes for breakfast every day and apparently you can develop intolerances to foods that are consumed too frequently (but seriously, KALE?? The most nutrient rich food there is?? w. t. f.). I'm so sorry to hear that your reactions last for so long :( Mine go anywhere from a week to a month, but I've been glutened for almost 2 months straight lately because I'm learning the hard way that "gluten free" labeling can't always be trusted. It really burns me up that something that has gluten free ingredients but NOT gluten free manufacturing practices can be labeled "GLUTEN FREE!!". Pine nuts got me awhile back and tostadas last week. *shakes fist* *runs to bathroom*