Anyone NOT have success with Jernigan protocol?

I did not see any positive changes at all and I know a couple of others personally who also didn't BUT a few on here did well with it. Lyme is a complicated disease and there are many strains. What works for one may not work for everyone or none of us would continue to be sick. With that said I would try it because you just never know, you may be lucky and recover at Hansa. I have tried everything I have come across with no improvement. If there is even a small chance....most of will try anything to recover our lives, so if you can afford it, go for it. Good luck.

Post Edited (PrayingForAMiracle) : 7/30/2012 5:10:10 PM (GMT-6)

Hi jwjjtt,

I didn't go to Hansa but got totally well using Dr. J's healing at home protocol.  There are other forums that talk about Dr. J. and Hansa in more detail.

I always suggest to read Dr. J's book called "Beating Lyme Disease" before doing anything so one knows what to expect.  Even though I had a coinfection, it didn't matter...  The bottom line was to build up my immune system (using botanicals and detoxing) so then my body was able to kill the bacteria on it's own. 

Bars, Dr. J's protocol uses biological medicine along with detoxing, no abx.  KC is Kansas City but I believe the Hansa Clinic is located in Wichita, Kansas.  Again, I suggest reading Dr. J's book first even if you don't do the protocol as it's an enlightening book.

Hope this helps,

Denise

Goodness, I wish there was a simple answer! 

Well, the only disadvantage that I could think of as far as going to Hansa would be one's expectations if that makes any sense.  I guess it depends on the mindset of that person.  There are a few people who think that because they are going to a clinic that they are going to walk out cured.  That is not true at all...  It's not like going in for a hip replacement operation and coming out with a new hip!

Dr. J. can and will give a person the "tools" they need to heal but it's up to that person to use those tools once they get home.  For example, if that person is not willing to use the suggestions outlined by Dr. J. or whatever is recommended, then in my opinion, they are wasting their money.

The advantage is that Dr. J. has the diagnostics that can pinpoint exactly what's wrong with a person besides the lyme bacteria (it's not always the bacteria itself, i.e.:  could be damage the bacteria caused, previous antibiotic use, or one's body is not functioning right in certain areas, etc.).

Last but not least, Dr. J. can not solve one's emotional problems or stress.  I personally believe that if one is suffering emotionally that can prevent them from getting better.  So either that person wants to deal with their problems and get help or not.  That's a choice all people need to make, lyme or no lyme.  But that's a topic all by itself.

Mind, body and spirit, yes, they are all connected.  If one is out of sync then it affects the rest.

The healing at home protocol is outlined in his book (though Dr. J. invented new botanicals I never took since his original book).  Not only did that protocol work for me but for others I know.  Obviously the disadvantage is I did not get pinpointed by Dr. J's diagnostic techniques yet I became well anyway.

If someone asked me if I would still go to Hansa, my answer would be yes because I would want to learn more about my body to achieve optimum health (not lyme related).  I simply would not trust any holistic practitioner where I live.  I keep up with Dr. J's latest news by reading his blogs, etc.  He's always researching something new!

Last but not least, Dr. J. trained with Dr. Thomas Rau of the Paracelsus Clinic in Switzerland years ago and if you are interested, there is about a 90 minute video you can watch where Dr. Rau did a lecture at the Marion Institute in MA. 

I don't know what else to say..  I hope I helped a little bit.

Denise

Just for the heck of it I peeked in on this site today...I used to be a regular and then after I got better I would pop in from time to time to let people know what was helping me; but at that time there was a lot of negativity toward Dr. J's protocol and suggestions to think positively and how that alters our health and healing process and I didn't need it, so I moved on. Sorry, but it's the truth.

I've told my whole story many times before, but I got better doing Dr. J's at home protocol also. I agree with Deejavu's posts :) It more than likely was a combination of all or several of the things I did, but Dr. J's is what got me to the point I'm at now. Would I skip the antibiotics knowing what I do now? Absolutely not, even thought I couldn't wait to be done with them -- I think everyone has a hard time with antibiotics and the longer you are on them, the more you want to be off them. I'm not sure I'd skip any of it. I can't quite remember, but I think I was only about 60-70% better when I got done with the antibiotics. I know it was better than when I started the antibiotics, but I reached a plateau and just wasn't continuing to get better. I did the antibiotics (along with some herbals) for 9 months, then did just various herbals for several months, and finally had to make a decision to travel out of state knowing I would be starting over on the tests with many follow up visits, plus any treatment costs (all out of pocket, as the only thing insurance has covered for me was the antibiotics) or try Dr. J's at-home protocol.

I had bought his book almost a year earlier and decided he was a flake and doubted it would do anything but cost me more money. Over time, several members here would talk about both Hansa and the at-home protocol, and after you've tried many options and know you are still miserable and have to do something (and your regular GP has told you don't come back for these problems because he has no idea what is wrong, has referred you to all the specialists he can, and he can't help you), you are willing to try something in your pre-Lyme days would be considered flakey and a stupid waste of money.

All told, Dr. J's at-home protocol cost me about $800 (out of pocket, of course, insurance does not cover this). I did his protocol for just over 1 year and it was NOT any instant relief/cure, but I bought the stuff and I kept using it and gradually started to notice an improvement (while keeping up the foot soak detoxing; I never did the whole body baths). Of course I had "gotten better" before and it came back with a vengeance, so I was never sure if I was actually getting better or if it was a coincidence like with the alternative allergy treatment (there's a whole other story in itself!). Any Lyme treatment is a very long road to travel, there are no shortcuts for any of us. Sorry, but we all think we will be the exception and none of us are.

It was well worth the money I spent to try Dr. J's protocol. I was very leary that it would work, because up to that point I had spent around $3,000 cash out of pocket on insurance co-pays with the 9 doctors/specialists/tests to that point, various herbals, and alternative allergy treatments that an alternative allergist told me was causing all my problems. That's not to mention travel expenses, etc. that go along with dr. visits. And, I have not kept track of all the epsom salt and hydrogen peroxide for detoxing that I've purchased for over 2 years now...it would have to be in the hundreds and I plan to keep detoxing and may never quit. Maybe when I'm senile and can't remember to do it or why I'm even doing it, then I'll quit :)

I was sick for 4 years before I was diagnosed with LD (more than one negative Elisa test before that point), treated for a total of about 2.5 years, and I'm at about 97% back to normal now, nearly 7 years after all of this started out of the blue. One day I was absolutely fine and I literally woke up the next day in a whole other confusing/frustrating world! My initial symptoms came on out of nowhere and there was no doubt something was very wrong; it was not a gradual thing like it was when it came back and then just continued to get worse and worse to the point my mind was like I had alzheimer's and the pain was HORRIBLE and I could barely function without pain meds (and to find something that would work at all that I could tolerate; another story in itself!). To backtrack a little, after this came on intially, I was sick for 6-9 months and it started to get better and continued to get better (at the time I thought it was the alternative allergy treatments because the allergist told me that's what was causing my problems and it was just coincidence that I was getting better - just my luck!) to the point I felt almost back to normal for nearly a year I think and then the symptoms slowly crept back in and by the time I was diagnosed nearly 4 years after it all started I was a train wreck wondering if I could keep doing my job because I just couldn't think or remember ANYTHING. I finally found pain meds that helped and I could tolerate maybe about 6 months before I was diagnosed with LD. Some days I'm better about remembering the details and timelines than others! I finished up Dr. J's protocol in March of this year, and I do have minor transcient symptoms that come and go, but I keep detoxing and I stay at about the same level of healing/health.

Good luck and I wish you well in your decision making process. Hope something in what I've shared will help you.

I don't think there is such a thing as a total cure once you have longstanding LD, and you live with the reality that it MAY come back, but I'm prepared to go back on Dr. J's protocol, if necessary or even see a different LLMD if necessary (the doctor I was seeing left their practice, so that option is gone).