No offense taken here. I too kept an
open mind and doubted much of the initial information I found online. Much to my shagrin, and to my harsh detriment, I suffered the harsh reality of being denied proper treatment because of the IDSA guidelines and thus am living the chronic lyme life.
I saw a very nice ID dr. and had faith in him to a certain point. He is well known in his field and came highly recommended. However, after hitting a brick wall in treatment and his continued insistence that I be tested for syphllis, I finally came to the conclusion that he quite frankly, knew diddlysquat about lyme.
I'm not sure you will find anyone with late lyme who is successfully treated by IDSA's protocols because I don't think they go hand in hand. I do however feel it is possible to get well with late stage lyme, just not with minimal short term treatment. Because of the IDSA's shabby protocol, many insurance companies do not approve IV even for late stage lyme with neurological symptoms which is supposedly IDSA protocol.
Being a late stage lyme patient and the spouse of a late stage lyme patient, I no longer have confidence in medical research or protocol as we have repeatedly been shunned by the medical community despite symptoms and positive testing. SO the 2010 "decision" is just more bureaucratic bs to me.