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first visit with LLMD today

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Posted 8/17/2012 11:54 PM (GMT 0)
I really liked my LLMD.  He is quiet and unassuming and seems to want to get his patients well.

I definately have chronic LD as per the Igenix lab results that I took upon myself, along with my GP's help, to order a couple of months ago.  AND he diagnosed me with a yeast infection and possible Babesia.  More bloodwork was sent to Igenix to test for other parasites, etc.

NOW.....He presribed Bactrim which targets the yeast and I think he said Lymes disease.  After reading all the horrible stories about Bactrim I have decided I will not take it.  The reason for this is that I am very, very sensitive to meds.  Levaquin just about did me in 4 years ago.  I will call the doc in the morning and request something else for the yeast infection and treat that first.  My question is what other meds treat Babesia without having sulfa in its makeup?

The doc also had me order Therbiotic Complete from Klaire Labs which I should get in a few days.  I think this lab makes this probiotic.  He thinks this is the best on the market.  It costs roughly $80.00 for 5 weeks worth.  Has anybody taken this probiotic?  I was also told that it can be kept in the refrigerator but I could keep it in the freezer if I think that is the best way of preserving it.

I am not getting off to a good start and I am open to any suggestions.

Patty  xo

Posted 8/18/2012 1:22 AM (GMT 0)
I'm glad you had a good appointment. For babesia, generally people take Mepron or Malarone with zithromax as a first line med combo. I have taken Mepron two times. Both times I had to stop for liver enzyme issues (but I have problems with my liver when off meds as well). Coartem, artemisinin and cryptolepis may also be options for babesia.

Bactrim can treat bart, Lyme, and mildly go after babesia. I have not heard of bactrim being used for yeast. I haven't tried bactrim yet, but I want to. I am afraid of levaquin though and that is one that I don't want to try.

If you are very sensitive to meds, you may end up having go an herbal route. If so, Buhner's Healing Lyme book is the best place to start.
Posted 8/18/2012 1:29 AM (GMT 0)
Patty- can't comment on the Bactrim but wanted to mention that I give my daughter (age 11) Klaire Ther-biotic Detox probiotic every evening. It's very pricey, but it's my favorite probiotic. I also give her Florastor, Culturelle, Integrative pearls. I store the Therbiotic in the frige. The others are room temp.

edit-my daughter is also very sensitive to meds.

Hope u feel better soon.

Posted 8/18/2012 11:33 AM (GMT 0)
I don't know summer, but you just spent a lot of money to get this doctor's opinion. Doesn't it seem like a good idea to take his/her advice?

All the medicines you are going to be prescribed will have risks and side effects. And I am convinced this disease "whispers in your ear" telling you not to treat it!!

Did you tell the doctor you are sensitive to meds. Did the doctor suggest you start up the medicine gradually? Are you actually allergic to Sulfa?

If you don't take the Bactrim, do you have another plan for treating the Lyme?
Posted 8/18/2012 1:27 PM (GMT 0)
I have to say that I think bactrim played a huge role in getting well for me. The first LLMD I went prescribed bactrim and I herxed so bad. I stopped taking it and then eased back into it with my second LLMD who also prescribed it. Herxing of course means the drug is working so while it may be rough, it is getting what it is meant to.
Posted 8/19/2012 6:55 AM (GMT 0)
Yes, the LLMD has now prescribed Clindamycin which I picked up today.  I am waiting for the Therbiotic to arrive.  This is my second day of mucousy diarrhea (possibly from the yeast infection) so I am holding off taking the abx until the probiotic arrives.  I really need to get the show on the road, for heaven sakes.

I understand your concerns about me refusing the Bactrim but I have to listen to my gut at this time.  I may have to eventually take it but not right now.  I did talk with my pharmacist and he said if it were him he would take the clindamycin for now knowing my sensitivities to meds.  He also stated that next to penicillin that Bactrim was the second most cause of allergy reactions.   Yes, achievingrace, I did tell the doctor of my sensitivities to meds.  I don't think he was a happy camper when I asked him to change the meds....yikes!!!  You have to also understand that I have to be my own advocate, too.  I know my body and many of us have gotten in trouble listening to some well-meaning advice from doctors. I have never taken a sulfa drug.  When and if I do take Bactrim I will ease into it and thanks, springsjean.

The doc is treating the Babesia first and I am wondering if anyone else has taken Clindamycin for this?

I am concerned about the yeast infection but the doctor is not treating this at the moment so I have started a Candida diet but now I am wondering after reading a posted article by Traveler if this is a good idea since proteins and veggies cause an increase in ammonia.  Any thoughts on this?

Emylgal, I am so sorry you have to see you daughter go through this process.  Is it a good idea to take other probiotics along with the Therbiotic?

Patty  xo

 

Posted 8/19/2012 10:52 AM (GMT 0)
I can completely understand being hesitant to take certain meds. There are many meds that I told my LLMD right off the bat that I would NOT take. I have since become more comfortable trying them because I'm more afraid of my progressing symptoms than I am of the med side effects.

I took clindamycin. It goes after Lyme and babesia, but usually people don't take it alone for either infection. Is your LLMD planning on adding something else in shortly? Usually you need to combine it with an anti-malarial like mepron or malarone for babesia.

I had no strong herxing and no side effects from it. Clindamycin is known for causing c-diff so you want to make sure that you are taking probiotics the ENTIRE time you're on it. Don't start it without them. I did not have any problem with c-diff while on it and I was not on any type of fancy probiotics, just Renew Life from Rite Aid.
Posted 8/19/2012 11:49 AM (GMT 0)
Summer3, I am assuming that he is trying one med at a time because of my med sensitivities, which I appreciate. I think I will become more like you once I feel comfortable taking meds.

I am following you on your blogspot. It is a good way of journaling and it helps us newbies, too.

Patty xo
Posted 8/19/2012 12:31 PM (GMT 0)
summer16- most days I give my daughter 250 billion cfu of probiotics daily. She's had c-diff in the past (b4 I found out about the lyme & bart) and with our new combination and high dose of probiotics, she hasn't had a relapse. I give her Florastor since it was used in a study to combat c-diff.

I would not recommend trying to many meds/supplements at the same time. If you have a reaction, you will want to know what is causing it. I try and give 2-3 days before adding anything new, esp. if you are sensitive to meds. You can even see an uptick of symptoms with probiotics since it is working on the yeast.

fyi- florastor does have a minute amount of dairy, so not dairy free. But you can get Sach. boulardi, the probiotic that Florastor consist of, in other brands like Jarrow. Sachromyces boulardii is a good yeast, instead of a good bacteria. It states you can give Florastor at the same time as antibiotics, but I still separate when I can.
Posted 8/20/2012 8:44 PM (GMT 0)
Thank you, emylgal.

Patty
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