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I was sent here by the anxiety forum. HELP

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Posted 9/17/2012 11:30 PM (GMT 0)
Marthas Vineyard: So your gut says not lyme, does your gut have any other ideas? :P

Traveler: The reason I asked about contaminated water, is that When I was pregnant I lived in another part of the county that I'm in now. Well, there was well water, not a problem, or so I thought. Then a year ago my sis rented that same house... and one day some guy showed up to get a sample of water because the coal mine that was above the place had apparently been running toxins into the water supply and didn't say anything to anyone... and what's worse, that mine, "Clintwood Elkhorn" had done this before. The guy hasn't came back yet, but now I often wonder if my cooking in that water, bathing in that water, and making ice outta that water could have caused my daughters birth defects. Now I'm wondering if it could've caused whatever that's wrong with me now. I'm gonna make it a point to find that guy and talk to him... and take that mine company to court :P
Posted 9/18/2012 3:20 PM (GMT 0)
Although you can't get Lyme that way, there are a lot of other issues something like that could create. I would encourage you to check into that for sure!
Posted 9/19/2012 5:32 AM (GMT 0)
Great News: I am taking my daughter to see the UVA physicians at their clinic 2mar (well, today, since it's already after midnight), and I get a call today and they said they would see me too! So I don't hafta wait 3 months to be seen like my PCP's office told me yesterday! WOOT!
Posted 9/19/2012 1:09 PM (GMT 0)
DarkPassenger so sorry about your daughter and your illness I hope you find some answers.

Traveler so sorry to hear about your miscarriage, glad your two adult children are ok. I too watch over my daughter who could have gotten lyme from me.
Posted 9/19/2012 4:01 PM (GMT 0)
Wow, I have a lot of similar symptoms as you. The whole legs with a head thing I can completely relate to. Did the neurologist recommend a follow up MRI? Your symptoms sound kinda like MS ( but lupus, lyme, MS, and thyroid disease all have similar symptoms). I am really concerned about those lesions.
Posted 9/19/2012 4:06 PM (GMT 0)
Flowergal,
Thank you so much for your kind words. I'm so sorry that you have to watch over your daughter as well - it can all get kind of wearing sometimes! Especially since my kids have heard it all from me sooo many times now!! I always apologize for pushing for them to consider tick-borne diseases practically every time something isn't right health-wise, but fortunately all I am told is that they understand why I do this!! Poor kids!! LOL!
Posted 9/19/2012 4:07 PM (GMT 0)
Dark Passenger!!! What wonderful news!!! Congratulations!!!

Please do let us all know what comes of this appointment for both you and your daughter!
Posted 9/20/2012 5:07 AM (GMT 0)
So we saw UVA... waited forever. From 2pm-9pm!!! The Neurologists said that I don't have Lyme or Anxiety... it's just that my migraines are "extremely severe" And I'm not crazy... although they gave me "the test" they asked me to say the days of the week backwards, they asked me what random objects in the room was, and the day, date, and President. So I guess I just have really weird migraineness... They didn't get any of my test results sent to them in time, they didn't comment much on my 3 brain lesions... just that everyone is allowed to have 1 brain lesion per decade of life and it be normal, so mine sounded fine, but they said that the pattern and something to do with the contast stuff determines if it's normal lesions or not, and since they couldn't see my film, they couldn't speculate much. They didn't recommend any further testing and they think that I shouldn't be on Neurontin since I don't have epilepsy or neurophathy. And they didn't like that my original neuro put me on Cephadyn... because come to find out, thats a narcotic!

My daughters appt went well, they are slowly increasing her Keppra to get rid of those lingering seizures (It looks like facial twitching). And they are gonna see her back in November. They want me to continue to see my original neuro cause they didn't feel that they would do much different.

So were off to Shriners 2mar for orthopedics, spending 2mar night at a hotel, the going right back Friday morning to get my lil girls cast off. I can't wait for Saturday :P


Thankx for helping me thru this. I really like this site, and all yall are so nice... I shall stay on and morally support you all :D
Posted 9/20/2012 2:41 PM (GMT 0)
Dp, at this point, because you have so many of the same symptoms as those of us with Lyme, I would suggest that you now go be evaluated by a LLMD, one that understands these infections! Chances are you saw an ID doc, right? Well they don't believe in chronic Lyme and think that everyone can be healed with only a short course of abx, instead of believing the science-based treatments that LLMD's use.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Dan's Mother at:[email protected]

You can email Stephanie at: [email protected] You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is another great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

I can provide links for you to learn more about these differences in treatment of these infections if you would like. Just let me know and I'll be sure to post them.
Posted 9/21/2012 1:41 AM (GMT 0)
just want to say that i tried 2 pills of neurontin and felt mentally numb. sitting on the bed with my mouth open. duh...

next morning weaving when i walked to get my morning coffee.
wouldn't take it any more. i didn't think i had neuropathy as i didn't have tingling and numb toes..

felt stronger than low dose of oxy!
Posted 9/22/2012 4:46 AM (GMT 0)
I haven't seen an ID... they never referred me to one. Thankx for the links, I will check those out 2mar (I've had a migraine, I feel utterly drained). UVA says they don't think it's lyme... then the lady looked at me funny and asked me if I'd been bitten by a tick... me & my sister was like DUAH, WE LIVE IN THE BOONIES... even my sister told her that she had been bitten several times. The Dr Lady then changed the subject.

My neurontin doesn't seem to do anything to me... it doesn't help... it doesn't make me feel weird or high or incapable... but maybe medicine does react differently with me, I can take stackers and go to sleep.

Are migraines common with Lymies?
Posted 9/22/2012 7:52 PM (GMT 0)
Migraines are a common sign of not only Lyme, but Babesia as well. Take care of your migraine, as you don't want it to go for any longer than it has too!! smhair I know how bad they can get!

I would suggest that if the Neurontin isn't doing much for you that you stop taking it. Your body is already full of toxins, there's no reason to just keep adding more stuff for your body to deal with if it's not actually helping you.

If you haven't started yet, I would also heavily suggest that you get started detoxing as described in the "New to Lyme?" thread. It should really help with the nerve issues you are having (the left foot thing, the back of the thigh thing and others). Please don't get the water very hot the first couple of times that you use the detoxing though, as hot water can set off it's own herx for some people (I was one).

I do have to say that you really need to be seen by a LLMD. Your symptoms match up with Neuro Lyme and a possible Babesia infection from the little bit that I know about these infections.
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