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Just checking in, Lyme free now for 3 and a half years....

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Posted 9/16/2012 11:14 PM (GMT 0)
Its been a long time since I checked into this site. But many have found me and contacted me recently.
On Oct. 3rd. in 2008 I dragged my sick butt into a clinic for Lyme. And got out of there on Feb. 8 TH of 2009. I went in in a bad state and came out healed. It is hard to believe that it was almost 4 years ago. And yes I still count. I was afraid for a long time of relapsing. But that hasn't happened. Being healed of something so tragic and painful and discouraging is hard to explain. To this day I am not sure what all worked. Or why my treatment did in fact work. For I am no Doctor. What I still find annoying is the lack of information out there on alternative medicine helping cure people. It is also amusing that
Oxygen and diet are considered alternative medicine. The things that resonate with me from my long treatment are how great I felt after Ozone treatments. And the vitamins that I took. And still do.
The mystery of colloidal silver, and how much better I felt getting this stuff pumped into me daily.
The sad thing is this. How does the average person, even with great health insurance get my treatment?
They don't.
On a cheerful note.....well there is a treatment out there that does work. I am now living without pain. no longer a 100 year old lady...lol. Its good to be back and clear of the disease for my almost 4 year anniversary.
Posted 9/16/2012 11:26 PM (GMT 0)
Hi Martha's Vineyard!!!
Congratulations!!! yeah Yippee!!! turn woo hoo!!! smilewinkgrin

4 years and counting!!! how wonderful that is!!! I would also like to thank you for not only coming back and making this very encouraging post, but for continuing to help those that contact you off site!!

May you stay free from these infections for the rest of you very long and happy life!! :-)
Posted 9/16/2012 11:33 PM (GMT 0)
Hi Martha's , so happy to hear there are those who are successful with their treatment. Can I ask you how long you think you had t he disease before you started treatment? Do you still maintain any type of treatment? Thanks for sharing your success.
Posted 9/16/2012 11:49 PM (GMT 0)
That is great..you were there for 5 months? If you see this will you email me? Thx
Posted 9/17/2012 5:46 AM (GMT 0)
Hi Springs!
And thank you all for the warm welcome and
the horaahs!
Feels like a party!
I got Lyme the first time in 2001.
Working in my garden in MV. Lost a child
soon afterwards. Got pregnant again,
not knowing what had happened.
And when she was one in 2004 we both
got it. Again in my yard in MV.
That time I knew what I got. Rash on her and all.
And I was floored with it. It was like someone shot
me in the butt with a Lyme dart!
It took me down hard and fast. And I got
treated immediately too. But being allergic
to penicillin I had to take Doxy. It just didn't
work for me. And from then on....it was a slow
roll deeper and deeper into every symptom in the book.
Posted 9/17/2012 5:52 AM (GMT 0)
Thank you Traveler. It brings tears to
my eyes to even see that in print!!
I can't tell you how many times I cried
out for help on this site. I felt lost, scared,
hopeless and bewildered. But I found
support and faith and hope and love
here. And it was the people on here that
reached out to me and helped me during
my battles. And I found the support and strength that
I so badly needed to push forward and
not quit.
Posted 9/17/2012 1:33 PM (GMT 0)
MV, thanks so much for posting this update. So many times I wonder if I will ever get my life back and this kind of good news really helps.

Would love to hear what you think helped you the most.

Wishing you much health and happiness.
Posted 9/17/2012 5:41 PM (GMT 0)
To Springs. I still take the vitamins from the clinic. Big amounts of vitamin C. And the immune support vitamins. I am on a strict diet. Mostly fish and fresh veggies and fruit. I keep my diet very organic and
stay away from processed foods and the junk. I drink mostly water. I love the Naked shakes at the grocery. Mango and veggie drinks. Keep it clean and simple, my diet and my life as well.
Posted 9/17/2012 5:49 PM (GMT 0)
to Flower gal. When I went into the clinic and had dementia badly. And walking and talking were hard.
After getting my port in my chest I immediately started the Ozone treatments. where they take about a pint of blood out and purify it and pump it full of pure oxygen. I would get a head rush from it. I started the heavy and i mean heavy vitamin therapy and they started me on the peroxide and the colloidal silver.
no other drugs. In about 8 days something happened. I woke up in the morning to go to treatment and noticed some things right away. my migraine was gone, so was my every day fever. And my bed wasn't soaked. I felt normal. But with Lyme we can all have those. "good days" mine kept on.
My fever has dropped down to normal. And I felt good. When this persisted I jumped on a plane back to Florida to take my kids to Halloween. to show them I was okay. I wasn't the best patient for I kept running home to see my children. But they needed to see me doing better. and they were my first priority.
Posted 9/17/2012 5:53 PM (GMT 0)
I think that Oxygen pumping through my body had huge benefits. And I think that the vitamin that they gave me, over 17 twice a day, restored me also. I had refused the abc they wanted me to take at the clinic. I had taken enough of those for years. it was time for something else for me.
Posted 9/17/2012 7:45 PM (GMT 0)
MV,

Where were you treated? at what clinic?

I have been thinking about Oxygen chamber therapy since I seem to have reached a "plateau". I would like to know more if you are willing to share.

thanks so much
Posted 9/17/2012 8:18 PM (GMT 0)
Hi Flowergal,
I did the chamber therapy two summers ago to give it a shot. I highly recommend it. it is great for you. Some tips....don't eat or drink before you go in. Go in the morning. And learn how to pop your ears, try chewing gum.
I went to Envita in Scottsdale Arizona. It was my last hope. I did their treatment twice. I also did their chelation treatment for 6 weeks. Hard to do....felt awful, but it paid off for me.
Happy to answer any questions you may have. But they are much better at explaining all that they do. I was just a very sick patient there.
Posted 9/17/2012 9:45 PM (GMT 0)
I can understand how you feel - this site has saved me as well, although I'm still healing. The way you felt being scared, lost and bewildered is why I'm still here, I just can't leave knowing that there are so many still in that spot! I'm so glad that you have returned to share your story!! Thank you so much for that!

I do hope that your daughter has healed well also!!
Congrats again! :-)
Posted 9/18/2012 3:43 PM (GMT 0)
My daughter is 9 now. She got lyme at the age of one and again at the age of 3. Found the ticks on her. And she got the bull eyes the first time. that was in MV. she was covered in them from just walking in out grass. I could barely see the tiny things on her. They were the size and color of sugar.
the 2nd time was near the bird feeder in Texas. Got ride of those. And the house in MV.
Her treatment was amoxy both times. And in the 2nd week of it she got scary sick. fevers up to 107.
She got those high fevers once a month for years. Every time she would catch something at school when she was 3 she would get awfully sick. Very scary for us.
I also took her at one point to the Dr. in Conn. but his treatment made her throw up non stop. I couldn't get her the same treatment at Envita she is too little. Or was. We put her back a year at 4 because she missed so much school.
Now....she gets arthritis in her legs and hips. And has had this since she first got it. And she has bad photo sensitivity and is prone to migraines. If she gets a bad cold she gets pneumonia quickly. Twice in the last two years. other than that she is a A student and I keep her on a healthy diet and low stress and lots of rest. She slept in my bed for 8 years because of these fevers. 107 is freaky scary.
I have done the herbaric chamber with her and she likes it. she has no neurological issues.
Posted 9/18/2012 4:30 PM (GMT 0)
just wanted to say thankyou Marthas Vinyard for sharing your experience , it means alot . I feel like a sponge to anything on the subject , I see that as horrid as I feel that the only way I am going to get thru this is to fight for myself
Posted 9/18/2012 4:48 PM (GMT 0)
Very true indeed, LottaAnsy!! Each of us needs to be informed not only about our choices, but about these infections as well! You are the only one who knows your body and how it reacts to things better than you do!!!
Posted 9/18/2012 6:36 PM (GMT 0)
It is very encouraging to hear from someone who feels healed to the point of being back to their normal self! Thank you for sharing!
Posted 9/20/2012 4:47 AM (GMT 0)
so happy that you are well.! hope for all of us..
all these stories are so sad..the told on the family, the kids..such a shame.

have to think positive and advocate when i get better
Posted 9/20/2012 2:35 PM (GMT 0)
That is the best thing you can do, Guitargal!! Get some healing under your belt, then help us spread awareness and help others with what you have learned!! That's the only way we will ever get the word (& healing!) spread!!
Posted 9/21/2012 7:13 PM (GMT 0)
I am a big fan of oxygen and however you can get it. Can you believe that it is now a drug that we need to prescription for? lol!
The chamber is something that does such amazing healing things to the body. But if you are still taking a lot of harmful drugs it doesn't make since to do it. The body needs to heal itself. Restore all it its balance. Its natural balance.
Posted 9/21/2012 8:10 PM (GMT 0)
MV,

Thanks for the advice. I emailed my LLMD regarding HBOT since you need a prescription to do it. Not sure he would be supportive, but I have another Dr. who would. I have read it actually helps the ABX do its job. Although my research says it helps Lyme but not Babesia which I think I have:(.

I so appreciate positive news so thanks for the update.
Posted 9/21/2012 9:42 PM (GMT 0)
Hi Martha's Vineyard, so glad to hear from you!!  It's been a long time and it's wonderful to hear how well you have been doing!

Flowergal, a person can also get oxygen into their blood by adding 1 or 2 bottles of food grade hydrogen peroxide in the detox bath along with epsom salts.  Lyme bacteria hate oxygen.  It's really important to do a total dry body skin brush before getting into the bath in order to remove the dead skin cells that are keeping toxins in.  Also fresh grated ginger really helps. 

The instructions are in the "New to Lyme ~ Start Here!" sticky thread on top.

Good luck!

Denise

Posted 9/26/2012 6:25 PM (GMT 0)
I have just been a Guinea pig...:>) squealing and biting along through too many treatments to name. I hope that I can help others. I gave all of my neighbors the book cure unknown who had houses in MV and NY and Nantucket. lol.....they hated me for a while...lol
It has been a long battle for my family. I try to make things funny and some times come off pissed. But I don't have a temper.
I too am still dealing with Lyme. But not for myself, for my 9 year old. She got it twice in her life. She had to be put back a year in school. And when she gets a cold she ends up with pneumonia. I am going to get her back into the chamber and pump up her immune system. I keep her on a very healthy diet.
But she gets migraines easily and frequently and she has arthritis. She got that when she was one from her first tick bite.
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